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  • #1

    Article about IC on front page of Hawaii Tribune

    Hi Everyone,
    I just wanted to post a quick message to tell you that there was an article about IC on the front page of the Hawaii Tribune yesterday. They were talking about how severe IC is and about this girl who uses medical marijuana for her pain mgmt of IC. It was a well written article and seemed to be quite honest about how bad IC can be. I was happy it was there because my husband, mother in law, and father in law all read the article and said it gave them new insight in to what I go through every single day.
    Sarah
    Current meds; , effexor 37.5 mg 2 times a day, and lyrica 100 mg 3 times a day, lots of reading and snuggling with the pets!
    Tags: None
  • #2
    I hope the article will be available on line. I'll try doing a search.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    • #3
      I found it at http://www.hawaiitribune-herald.com/...ws/local01.txt The reference to IC is in the caption below the picture at the beginning of the article. Not much, but at least IC is mentioned.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment

      • #4
        Hey, Donna - it's fun with dsl isn't it? Fast too!

        Comment

        • #5
          Hey, at least it mentioned IC and said it was a serious pain condition. The rest of the article was just about medical marijuana but any mention of IC makes me happy. As long as it isnt negative. LOL
          Sarah
          Current meds; , effexor 37.5 mg 2 times a day, and lyrica 100 mg 3 times a day, lots of reading and snuggling with the pets!

          Comment

          • #6
            thank you I am pringting it up and leaving it on hubbys pc desk..
            'The will of God will never take you where the Grace of God will not protect you.'

            Comment

            • #7
              I think ANY mention is great for awareness!

              Kara I.
              Hugs and Wishes for Pain FREE days!!,
              Kara

              www.loveforearth.net ~reducing plastic waste one bag at a time~

              Facebook: Kara Kaiser
              Twitter: Love4Earth

              Me and my Guccigirl... she helps me through those painful hours!

              Comment

              • #8
                Maggie: I'm loving my new "magic" internet connection! I've searched and searched and searched --- and looked at google earth a lot.


                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                 [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment

                • #9
                  Donna, I couldnt believe it when you said you had to use dialup internet before this. You truly have the heart and patience of an angel! Seriously. To do everything you do here, which I know must take a lot of time, and do it on such a slow connection, man I just can't believe it.
                  I spend quite a bit of time searching and looking at google earth too.It is pretty cool. One thing I LOVE about the internet is getting recipes online. I love to cook, especially french food, and cookbooks are expensive. But ha, now I get them online! My favorite cookbook of all time, Barefoot in Paris, has almost all of its recipes online now. Too bad I paid 40 dollars for the book before I knew that!
                  Sarh
                  Current meds; , effexor 37.5 mg 2 times a day, and lyrica 100 mg 3 times a day, lots of reading and snuggling with the pets!

                  Comment

                  • #10
                    Definitely -- any non-negative mention of IC is great!

                    As our Angel of the Airwaves, I'd like to take this opportunity to ask any of you who feel you are able to write a letter to YOUR local newspaper -- you can go to their website and find the editor's email (and sometimes the health editor's email) there. Describe IC, tell them how debilitating it is, tell them how many of us can't get a good diagnosis for years, and that when we do, we are often treated badly anyway. Tell them you want to get the word out that this is a real disease -- not in the patient's head. If you're brave, offer to tell your own story. I did
                    ****
                    Jen

                    *Diagnosed with severe IC in 2004
                    *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
                    *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
                    *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

                    **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment

                    • #11
                      Sarah, I am happy that your family understand it better now. I know when families and friends understand it, it can bring great comfort to you.

                      Donna I just think you got the smart of understanding computers. I am still slow at it and I have high speed. It's funny how kids catch on to this computer stuff faster than their parent.

                      Hugs, Trishann

                      Comment

                      • #12
                        OK, am I reading this article wrong. Is it saying the lady got interstital cystitis because she was exposed to tear gas. How can that be? I know we was not all exposed to tear gas?

                        Trishann

                        Comment

                        • #13
                          I think some people do get it from things like that. Someone on here got it from a pap smear. I dont think they were saying that everyone gets it b/c of that, just that she had.
                          Sarah
                          Current meds; , effexor 37.5 mg 2 times a day, and lyrica 100 mg 3 times a day, lots of reading and snuggling with the pets!

                          Comment

                          • #14
                            Donna,
                            You are so cute with your new internet hook-up
                            Kind of like a kid in a candy shop :woohoo: :woohoo:
                            Miss Bessie

                            Galatians 6:2 - Carry each other's burdens, and in this way you will fulfill the law of Christ.

                            Hebrews 13:2 - Do not forget to entertain strangers, for by doing so some people have entertained angels without knowing it.

                            Proverbs 4:23 - Above all else, guard your heart, for it is the wellspring of life

                            Comment

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