Such Severe Back Pain

[sarahjth]

Does anyone go to a chiropractor for relief?

[Berkshire Road]

They're definitely no fun -- that's the understatement of the century! Terri, I hope it helps. I know they have improved my quality of life enormously. Good luck!

PS -- I really chose a bad user name, because everyone shortens it to n'importe, which is colloquial French for "doesn't matter." LOL. I'd prefer to be addressed as Carolyn, please!

[sarahjth]

I also get severe back pain when I am flaring. It's down my spine and in my lower back. It sometimes curls around to my sides. Man, IC flares are no fun!

[trumpet]

N'importe Qui, I have made an appointment with my urologist to ask
about the lidocaine patches that you suggested. As you said, I'm sure they would be much better than what I can buy over-the-counter.
I really am ready to get this under control a little more that what
pain level I have right now. MAKING myself go to work this morning
was quite a chore!

Terri

[Moonheart]

Oh yes, I have back pain in the same areas that glass is talking about!
I went to my Primary Care doctor, who sent me for xrays & told me
there was nothing wrong with the discs in my back. When I saw my
Urologist, he told me the back pain was "referred pain" from my bladder.
The bad side to this is that he offered nothing to treat the pain, other
than the Pyridium Plus that I already take.

Actually, the back pain I have now is much worse than any bladder
symptoms I have. I do get some relief from the topical pain patches
that are sold over-the-counter. The one I like best is Tiger Balm, and
it lasts for about 6 to 8 hours.

I'm hoping someone out there can give suggestions for help with this pain.
I have had a complete hysterectomy about 8 years ago, so in my case,
I KNOW the pain I'm having is NOT endometriosis -- you have to have a
uterus for THAT!

Terri

Actually endo can be anywhere in your abdominal cavity and attached to your organs and other tissue. It can and does return even after a hyst and many women continue to suffer even after hysterectomy. I'm one of them. I'm so glad you don't have ongoing pain from it.

[Berkshire Road]

Lidoderm

Well, as I said, prescription lidocaine patches (lidoderm is the brand name) work very well for me. They are much stronger than what you can get over the counter.

[trumpet]

Oh yes, I have back pain in the same areas that glass is talking about!
I went to my Primary Care doctor, who sent me for xrays & told me
there was nothing wrong with the discs in my back. When I saw my
Urologist, he told me the back pain was "referred pain" from my bladder.
The bad side to this is that he offered nothing to treat the pain, other
than the Pyridium Plus that I already take.

Actually, the back pain I have now is much worse than any bladder
symptoms I have. I do get some relief from the topical pain patches
that are sold over-the-counter. The one I like best is Tiger Balm, and
it lasts for about 6 to 8 hours.

I'm hoping someone out there can give suggestions for help with this pain.
I have had a complete hysterectomy about 8 years ago, so in my case,
I KNOW the pain I'm having is NOT endometriosis -- you have to have a
uterus for THAT!

Terri

[Berkshire Road]

Yes, I have back pain too, and my doctor does believe it's all connected. One thing that really helps a lot is lidoderm, which are prescription transdermal lidocaine patches. They don't help bladder pain, but on my back and hips they are heaven. Maybe you can ask your doctor.

[Billsbaby]

i have back pain daily along with my regular ic pain.it sucks!!!

[glassd18]

Thanks Stephanie,

I asked my uro about PFD and she said she checks for that during her exam and said she didn't see any signs of PFD. I have a neuro appointment on April 3rd, and a new uro appointment April 4th, and hopefully between the two I can come home with some answers. I figure the neuro can at least tell me something even if he can't do much.

Di

[rosesitty]

glass - you may want to check to see about PFD. It may be that instead of the IC. Since I started PT, I've had severe hip and back pain - so much I've had to take pain meds, which I never did before. PLUS a ton of muscle relaxers, which have made me a walking zombie. If it isn't one thing, it's another.
Stephanie

[Briza]

Me, too. Back pain always occurs with my bladder pain.

[glassd18]

You know what gets me is that you'd think my uro would know that IC can cause back pain because it seems to me this is a common denominator for some of us.

[waterflow]

Yupe, mine never stops and stays the same humungous pain all the time. Only thing that helps some is the tens unit. WIthout it I can't stand up straight and walk.

[Sarojini]

I get back pain too. When my bladder is flaring, the pain radiates to my lower back and down my thighs a little bit.... *sigh*

I hate flares!