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Long term use of pain meds? (really anxious)

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  • KstoneQueen
    replied
    Yeah, sex hurts initially. Probably too much info, but once we "get going", I seem to be okay, KWIM? It takes about 5-10 minutes of pain/discomfort until I forget about it, LOL. But, then after I hurt for the rest of the night /the next morning. However, I had never thought of the possibilty it could make me hurt for DAYS.

    Where do I get this book from that you mention? I have just been staying away from the typical trigger foods that I have heard make it worse. I can't really take antacids like Tums, because I also have reccurrent kidney stones
    (25 or more in the last 7 years), and the Tums seem to make it worse. I have those gel packs that I can heat up...the problem is being able to just sit with that on my bladder, because my little one is crawling everywhere. I agree, I need some help with the kids. I don't really have anyone to take them right now. I wish I did though.

    Thanks for helping me...I am feeling a bit calmer now. I have an appt. with my GP tomorrow, who has kind of been in charge of this whole fiasco. Probably won't help though, since I do the research and tell HIM what I have learned, and her just goes with whatever I say. NOBODY knows anything about this bladder problem!

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  • Want2BPainFree
    replied
    You are not alone, and I'm new here as well, but I've seen others refer to meds making their symptoms worse. It may be worth looking into.

    Also, I'm actually surprised sex doesn't hurt for you. I pretty much can't have it without pain. I've all but given up on intercourse.

    I would definitely try to get some help with your children right now. I think that would be of benefit to you all.

    And taking a bath isn't really practical if you are in constant pain.

    Have you taken any antacids? Have you cut your diet down to the flare diet described in the book Confident Choices? Chicken, rice, potatoes, milk, carrots, green beans. I think that is it. My book is at home. Heating pad?

    Getting upset and worried and stressed is only making it worse. Please, please, try to remain calm. I know that is easier said than done b/c I recently experienced a flare and I was raving mad/depressed/upset.

    Come here and type it all out. It is cathartic.

    Leave a comment:


  • KstoneQueen
    replied
    Could the pain meds really be the cause?! I mean, I had to have had pain to start on them in the first place, but now could the pain just be from the meds? I never thought of that. This weekend I was down to 4 pills in a day because the pain wasn't so bad. Then, on Monday and ever since I am taking the maximum 12 per day because I have to take them around the clock. I can't sleep properly because of the pain. Somehow the pain did get worse from Sunday to Monday. It doesn't seem to be med induced, since I was way down on my meds on Sunday. But, now that you mention it, Sunday night I had sex. OMG, that could be it?! That is so depressing. You mean, every time I have sex with my husband I could be in for this much pain, meaning that I will have to be on pills whenever I have sex?!

    As you can tell, I am really freaking out today. It seems like there is no way off this crazy ride. I thought getting a diagnosis would help me, but now I am not sure. I went 7 years not knowing what was wrong, getting test after test. But, I just went on with life as usual. Now that I have the diagnosis, I thought I'd be happy. However, it seems to have made me worse, since now I just obsess over EVERYTHING I do, and whether it was bad. I drank a pot and half of coffee a day for years. I gave it up cold turkey 6 weeks ago. I thought for SURE, giving it up would help me improve. Now, I just feel like saying "screw it", and making myself a cup to relax, since giving it up isn't helping! The pain is radiating down my left leg, my back, and any movement hurts bad. I have real issues with pills. Long story, but thanks to the stupidity of some doctors, I took $10,000 worth of meds in 7 years for a condition that I NEVER HAD. I swear that is what gave me IC in the first place . Now, whenever I have pain and need to take pain meds (which help me), I have a panic attack because I am sooo afraid of medications. Right now I am really needing to take something, but I am so scared of everything right now, that I can't think clearly. Thanks so much for talking to me about this. Nobody, not even my doctor understands this disease. Or my urologist!! Thankfully, I am currently waiting for a referral to a specialist who actually knows about this disease. My stupid *&%$ urologist told me to "take a hot bath." Yeah, RIGHT!! Everytime I pee? I have two kids to look after, one of them is 9 months old the other 6 years old. Why don't I just spend the rest of my life in the *&%$ bathtub?!! Thanks for letting me vent. I really appreciate your help, I just feel so alone and out of control.

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  • Want2BPainFree
    replied
    I don't think you're going crazy. What you are going through is perfectly normal. However, I would look into the possibility that the pain medication itself is causing your bladder pain.

    Do you drink plenty of water? Are you doing something physically that could cause the pain? Like sex? Horseback riding?

    I know I'm grasping, but just trying to drum up conversation to pull your mind away from the pain back to a set of questions...sort of a checklist.

    Leave a comment:


  • KstoneQueen
    started a topic Long term use of pain meds? (really anxious)

    Long term use of pain meds? (really anxious)

    I am new here, and having a really bad day. I am just feeling really overwhelmed about this whole diagnosis. I am trying the diet, and have been doing so for about a month. Anyhow, so far it isn't working very well. Today I am in major pain, and feeling totally lost. I take my pain meds, but I am just freaking out wondering what is going to happen to me? I mean, I've been taking pain meds now for a year, except for 2 really short periods of time where the pain was bearable without meds. What if I am on meds for years and years? Is that a possibility? Will my liver be damaged? Am I trading IC for other problems by using meds to treat the pain? I can't not take anything...I would go insane from the pain. I just want this pain to GO AWAY. That doesn't seem to be happening anytime soon, and I am just really scared.

    How long have you all been on pain meds? Do you take something everyday? Currently my doc has me on demerol. It seems to be the only med that doesn't make me nuts. I have bipolar disorder, and oxcontin/oxycodone made me crazy. I was allergic to hydromorphone, and morphine made me nuts. Ultram did nothing to help this pain. I am soooooo scared about what is going to happen to me. I know my body is dependant on these meds now...if I don't take them for 8 or so hours I start to withdrawl. Is this normal? I feel like a junkie or something. I hate being dependant on stupid little pills, but it seems I have no choice. This pain is so bad. Can somebody help calm me down, right now I am in a major panic attack and I am going crazy.
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