Announcement

Collapse
No announcement yet.

OK, here I go, Pain Mngmt Clinic

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • OK, here I go, Pain Mngmt Clinic

    My gyn (good guy) has referred me to pain management clinic on Wed. He's been great in managing my mild pain for a while now, but it has come to the point where he wants to put that part of my treatment in someone else's hands, since my pain has gotten worse and is not respsonding to my regular pain med, Tylenol 3, and I've been having to take a lot of it. So, after getting over the initial fear of seeing a new doctor, who may or may not do anything for me, I'm trying to find out all I can about how the appointment will go, etc. Our great new moderator IHURTOO has filled me in on a lot of it, and I've read a lot of everyone else's posts regarding their positive experiences with pain management, so I am hoping for the best.

    One thing I am concerned about is that I suffer from Post Traumatic Stress Disorder for a few reasons, one of them being my cysto/hydro disasater and poor treatment by my urologist while I was in the hospital for a week after the hydro, and the long recovery time. I suffer from intense doctor anxiety and it takes all I can to keep myself together during appts, especially if the dr is new and not listening, does not seem to care, extremely long waits (I think this is going to be one). I do have anxiety med for situations like this.

    So I guess my questions are:
    Should I take my anxiety med before I go?
    Should I tell the PM dr my history with PTSD? (Worried to do this, don't want the "pain is all in your head, your're hysterical" response, you know. I have told my referring gyn of my PTSD, but I don't think he's written anything down about it in my file, at my request.

    If anything, I'm grateful for getting an appt so quickly. The wait for specialists in my area is at least 2 months.

    TIA for any responses!

  • #2
    Briza,
    I dont have the answers you are looking for , but I wanted just to say I am so glad you got a referal, I wish my uro would give me one..Hope you have a good day...
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.



    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

    Comment


    • #3
      I've got doctor anxiety too, so I can totally understand how you feel! I don't think you need to tell the doctor about the PTSD, especially since most of it's related to doctors. You never know how he'll take that. I would tell him the meds you're on for it and just say you have some issues with anxiety from untreated pain....which is true, right?

      If it were me I would definately take the anxiety med before I went, just to be sure that I was able to talk to the doctor without being so afraid.

      Go in there armed with as much information as you can about pain meds, and what you'd like to try. I'd take a health history, and a pain history with you. Even if you only have a few days before your appt, or even one day, you can chart your pain today, where you feel it, what time you feel it, intensity, etc.

      Make sure your gyn has sent over your records if this doctor wants them. It can only help prove your case that you are in pain...and saves him and his staff time in the future trying to get the records.

      Just go in there with your head held high and know that you have nothing to lose by going to this appointment. HE works for YOU. I know that's easier to say than to do, but try and look at it that way. If you don't get what you need from this doctor, then you'll find another one til you get the help you want and deserve.

      I hope everything works out for you!!
      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

      Comment


      • #4
        I totally can see your reason for being stressed when going to the doctor. I actually have the opposite. I go there thinking I am wasting my time and money since I usually end up going to the doctor and leaving with less money, and still no answers or help. I have had rotten luck with finding any good doctors. My best advice is to try and keep in mind that you are hiring them to help you, if you dont like the doctor or do not feel comfortable with him/her, then you can fire them and find another one. You are always in charge of yourself. Nobody can do anthing to you without your permission.
        Jen

        Comment


        • #5
          sympathize

          Briza,
          I so sympathize with you! Sometimes I think it helps if you wait and see how easy this doctor is to talk to or how receptive he is to the whole IC thing. Remember you do not have to tell him everything on the first appt. you will see him again and when you gain more confidence it will be easier. I guess just wait and see--maybe you will be lucky enough to just connect but if not take it as slow as you need to. It is important that you are comfortable. Good luck-I will be thinking about you-Malone

          Comment


          • #6
            Briza,
            I hope everything goes well at the appt.! I'll be thinking of you!
            Tons of support,
            Jaime

            IC angel helping families in need for the holidays. [email protected]

            Comment


            • #7
              I agree with Sandy. Most pain management guys are good with anxiety issues too, because they tie in to the effectiveness of the pain management. You can PM me if you want.

              Hugs,
              Barb
              (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

              [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
              :angel: IC Angel Volunteer Coordinator :angel:
              :) Contact me via PM or e-mail if you would like to help
              I have learned all about life in 3 words: It goes on! :D--Robert Frost
              PCOS 7/85
              RSD 7/94 :headbang:
              Endometriosis 9/98 :toilet:
              Antiphospholipid antibody syndrome 9/99
              Kidney stones--too many to count
              Factor V Leiden mutation 10/02
              IC 6/03 :evilsmile
              Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
              "Spirit is an invisible force made visible in all of life"--Maya Angelou
              "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

              Comment


              • #8
                HI! I too can totally relate to 'new dr. anxiety'. I'm going to a new rhem. dr. on Monday and was just sitting here making my 'new dr. list of questions' that I always go in with. It's SO hard going to a new dr. and telling them your life history and telling them 'why' you are on all the meds you are on.....yada yada yada....... I'm glad you have anxiety meds to use and think you should take them before you go for the appt. It can only help! Take care.......thinking of you! Roxie

                Double Spinal Cord Stimulator surgery 8/09
                Unsuccessful MiniArc sling surgery 12/07
                Dx'd Hypothyroid
                Dx'd Chronic Axonal Neuropathy & Myopathy
                June 2007
                Dx'd IC May 2006 (after suffering for 25+ yrs!)
                First Cysto 1979
                First Hydro 1981 (Many treatments since then!)
                Collagin"Durasphere" injections for urethra
                Gall bladder surgery Aug. 2004
                Gastric Bypass Dec. 2004
                Dx'd: Barrett's Esphogus July 2004
                Dx'd: Vaginal Atrophy 2005
                Bladder surgery 2000
                Dx'd: IBS 2000
                Hysterectomy (fibroids) 1999
                Laminectomy 1989
                Dx'd: Degerative Disk Disorder 1989

                For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                Comment


                • #9
                  Happy

                  Briza,
                  I am really happy for you! There are so many jerk doctors out there but it sounds like you found a good one! Remember it is important to stay ahead of the pain to keep the nerve endings quiet! It is a good day when you find a good Doc! Hugs-Malone

                  Comment


                  • #10
                    Wow! What a blessing! I'm so happy for you!
                    http://www.TheCraftyEwe.etsy.com

                    Comment


                    • #11
                      Bri,
                      Ativan is in the same family as Valium actually, the benzodiazapine family. Flexaril is not a controlled substance and it's actions are alot like(and your body looks at it like)a trycyclic antidepressant. Valium isn't used alot for anti anxiety anymore because it has the longest half life of the benzos(stays in the body the longest)and because alot of people take it with meds that have additive effects there have been alot of accidental overdoses and stuff.

                      Hugs,
                      Barb
                      (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                      [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                      :angel: IC Angel Volunteer Coordinator :angel:
                      :) Contact me via PM or e-mail if you would like to help
                      I have learned all about life in 3 words: It goes on! :D--Robert Frost
                      PCOS 7/85
                      RSD 7/94 :headbang:
                      Endometriosis 9/98 :toilet:
                      Antiphospholipid antibody syndrome 9/99
                      Kidney stones--too many to count
                      Factor V Leiden mutation 10/02
                      IC 6/03 :evilsmile
                      Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
                      "Spirit is an invisible force made visible in all of life"--Maya Angelou
                      "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

                      Comment


                      • #12
                        Bri--
                        Flexaril may come in 5mg tabs. Let me check my drug book and make sure. There are some other muscle relaxants that work the same that may have less side effects for you. One is Skelaxin, and 2 more off the top of my head are Soma and Zanaflex. Just a thought. Let me know if I can help or PM me if you need to.

                        Hugs,
                        Barb
                        (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                        [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
                        :angel: IC Angel Volunteer Coordinator :angel:
                        :) Contact me via PM or e-mail if you would like to help
                        I have learned all about life in 3 words: It goes on! :D--Robert Frost
                        PCOS 7/85
                        RSD 7/94 :headbang:
                        Endometriosis 9/98 :toilet:
                        Antiphospholipid antibody syndrome 9/99
                        Kidney stones--too many to count
                        Factor V Leiden mutation 10/02
                        IC 6/03 :evilsmile
                        Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
                        "Spirit is an invisible force made visible in all of life"--Maya Angelou
                        "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

                        Comment


                        • #13
                          Flexeril is scored so it can be broken in half to make two 5mg dosages.
                          http://www.TheCraftyEwe.etsy.com

                          Comment


                          • #14
                            Or I could be wacko? *shrug*
                            http://www.TheCraftyEwe.etsy.com

                            Comment

                            Working...
                            X