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This might be useful in obtaining pain management

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  • This might be useful in obtaining pain management

    I really do think this link has some good information about IC - read it if you have time, and let me know what you guys think about it! I especially like that it states IC pain is equivalent to end-stage cancer pain. That really helps to describe the level of pain we are living with every day!


  • #2
    Sad Wikipedia understands us and Veteran Uros don't!

    It's so sad that Wikipedia nailed exactly all the different aspects of IC as a whole and a most uro's have no idea. Too bad there isn't a Dr. Wikipedia in human form.


    • #3
      I wish the doctor's would read this!!!! Thanks so much for posting this.
      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.


      • #4
        Of course Wikipedia would get it right. Its entries are written by people, like us, who write articles and submit them to a website. It stands for What I know is...
        W = What...
        i = I...
        k = know...
        i = is.
        From the content of this entry, I would say that maybe Jill might have submitted it to them. Still, I am very glad that it is there for people to learn from.

        Thanks Lori...

        Shopping??? Did someone mention shopping? I'll get my hat... ;-)

        Where I can be found most days.

        Link to the ICN Patient Handbook:

        Link to the IC Diet:

        IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.