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  • #1

    Im MISERABLE

    Sorry to keep venting about the pain but just need help. I have been in excurating pain for 2 wks now. Both of the doctors I are on vacation. The doctors told me to see someone else in the practice if i needed it. Well it was finally to the point today where i called to get in. They told me that they completly full and double booked and i couldnt come in. The uro-gyn come backs from vacation I think on monday. I have been in flare for a few days i wanted to get a bladder treatment but they wouldnt even let a nurse do it.
    I am going to complain to my doctor next time i see him. I let work today due to UNBEARABLE pain. I dont even know when i will be able to go to the doctor. I work all the time I get off work at 5 normally and they close at 4.

    Thanks for listening
    jessie
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    • #2
      You might want to talk with your doctor about maybe doing some instillations at home. That way you wouldn't get stuck again.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

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      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.       [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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        • #3
          HI Jessie,
          So sorry to hear about your pain tonight. IC can be SO painful. I really feel for you. Are you using Azo? That always takes the edge off for me. I hope you are able to see your doctor. Would going to the ER be an option?? If nothing else maybe they can get in touch with your dr. to see what they can do for you till Monday. Hope things get better. Roxie

          Double Spinal Cord Stimulator surgery 8/09
          Unsuccessful MiniArc sling surgery 12/07
          Dx'd Hypothyroid
          Dx'd Chronic Axonal Neuropathy & Myopathy
          June 2007
          Dx'd IC May 2006 (after suffering for 25+ yrs!)
          First Cysto 1979
          First Hydro 1981 (Many treatments since then!)
          Collagin"Durasphere" injections for urethra
          Gall bladder surgery Aug. 2004
          Gastric Bypass Dec. 2004
          Dx'd: Barrett's Esphogus July 2004
          Dx'd: Vaginal Atrophy 2005
          Bladder surgery 2000
          Dx'd: IBS 2000
          Hysterectomy (fibroids) 1999
          Laminectomy 1989
          Dx'd: Degerative Disk Disorder 1989

          For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
          I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

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            • #4
              We are working on the installations at home. We are having a problem with my insurance company. They are being awful about it making me keep sending these things in. Hopefully i will be able to get them started soon. So i want have to go throught this mess again.

                Comment

                • #5
                  Everyone already offered all my ideas for advice, so I just want to tell you I am so sorry about this situation. Something similar has happened to me, and I felt both helpless and furiously angry. I wish I could help you in some way, but you have all my sympathy.
                  Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                  Wishing you happiness and good health, and all the best out of life.

                  Peace, Carolyn
                  ___________________________________________________

                  Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                  On the Beach with IC

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                    • #6
                      I am sorry you have had such bad responses to your needs. If the pain is that severe, I would go to the ER to at least get the pain under control some. They can probably give you some medication at the ER and then a script to get your throught the weekend. I hope you feel well soon.

                      Hugs,
                      Barb
                      (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

                      [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
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                      I have learned all about life in 3 words: It goes on! :D--Robert Frost
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                      "Spirit is an invisible force made visible in all of life"--Maya Angelou
                      "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

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