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  • Update #2

    Hi- Well I went to the new uro today and miracle of miracles he turned out to be a really nice, caring knowledgable urologist! Those are words you don't often find together when speaking of Uros! Sorry, anyway he thinks I have a pretty severe kidney infection. He wants to do another cat scan this one with contrast tomorrow. I had know idea how painful a kidney infection could be! When he pounded on my right side I literally almost fell off the table. I am still running a low grade fever so all in all I am one unhappy camper. The good thing is that someone actually committed to what they thought was wrong. Thanks for thehelp especially when I was so scared. Hugs-Malone

  • #2
    I'm so glad that he's figured out what is wrong. I hope youre on the way to recovery. Hope you feel better soon!!

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    • #3
      appreciate it

      Insea- Thank you for your kind words. I really need them right now. I felt better today and then went for a cat scan with dye and An IVP Xray and am now curled up in a ball with pain. I still have a low grade fever. My uro said he would read it stat so I am hoping he will call today still. Iam so down--just when my bladder is the best it has been in years! Plus I really don't want to talk to anybody b/c I am tired of being the sick one--I want to be the normal (or as close as I will ever get) one! I am so afraid he will call and say he has no idea what it is--maybe that is the years of trying to get IC diagnosed! Thanks for listening and I hope all is well with you. Hugs-Malone

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      • #4
        Aw, so glad the new uro is nice. I was lucky and my uro is nice and he's the only one I've ever seen. I have heard horror stories here, though, and know we don't always get so lucky right from the start.

        I hope you find out something from the testing that will help your pain.
        Kim

        Diagnosed August 2001

        Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)


        Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

        I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

        *****************************

        “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

        “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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        • #5
          I hope your Dr comes up with something that is easily treated and then you feel allll better. That does happen sometimes. Do all your pain treatment coping strategies. I know when your in pain it's hard to get up and do something--so much easier to just lay there. My husband was kinda telling me the same thing the other day. Take care~angie

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          • #6
            I hope he is able to find out what the problem is and get you to feeling better very soon. I am thrilled you got lucky with a great uro. That is awesome! Big hugs!

            Barb
            (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

            [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
            :angel: IC Angel Volunteer Coordinator :angel:
            :) Contact me via PM or e-mail if you would like to help
            I have learned all about life in 3 words: It goes on! :D--Robert Frost
            PCOS 7/85
            RSD 7/94 :headbang:
            Endometriosis 9/98 :toilet:
            Antiphospholipid antibody syndrome 9/99
            Kidney stones--too many to count
            Factor V Leiden mutation 10/02
            IC 6/03 :evilsmile
            Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
            "Spirit is an invisible force made visible in all of life"--Maya Angelou
            "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]

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            • #7
              What did the CT scan end up showing?

              A couple of years ago I had a severe kidney infection, and my CT scan showed a nephronia (not quite an abcess, but a concentrated area of infection). I had suddenly spiked a fever of 103 and had the worst pain I've ever had in my life. I kept the fever up for almost a week, and was on antibiotics for a MONTH! I wouldn't wish that on my worst enemy (well, maybe....jk). I hope you get an answer and get better fast! Good luck!
              32 years old

              former Med/Surg RN

              endometriosis x 13 years (with attempted/ failed complete removal in June 2008), IC diagnosed with cysto/hydrodistention April 2007, second cysto/hydro in June 2008

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