Pain all the time.....does it stop

[stac7_8]

Let's see where to start. Ok I was DX last month finally with IC. My problems is that I'm in pain just about every day. I feel like I will never feel better. I have had only 2 instills....the first one I got a bad infection but it seemed to help for a few days. The 2 one didn't do the trick at all.

I am getting a referral to a URO from my GYN and also a pain spec referral.
I have been trying my best to cut out certain things. I used to drink about 5 or 6 cans of soda a day maybe more.....not sure. I am now only drinking 2 a day. I still have to have one in the am....I gotta wake up

I have found that wheaties are great...no problems and mashed patotoes or a baked patotoes.

I'm just really having a hard time with this.....I feel like I'm never going to get better. I feel like this pain will never go away.

I went to a job fair yesterday and by the time I got home I was so tired and in alot of pain it was crazy. But thinking back on it....I did not use the restroom for at least an hour and half or more. Hey.......ding ding ding the light just went off. lol

Well anyways....thanks!!!!

I just want the pain to stop so I can get myself a JOB and be able to take care of my kids like I used to.

by JOB I mean outside the home. I am a photographer but I'm just getting started and all my work has been on referrals.

[Moonheart]

I can so relate. I've been going through the same feelings. It's so hard to come to grips with this disease. I am losing hope that I'll ever be able to have a day without pain.

I do think the soda is a contributor to you feeling worse. It's nasty stuff and has been known to cause several neurological diseases. I can't drink any sodas anymore. It makes me feel far worse.


Sorry I'm not more help. I just wanted you to know you have a friend here who understands.

Take care,
Moonheart

[sweettabby]

I am so sorry for you. I would maybe stop drinking the soda and see if that could help. I know I do drink them but really have to watch. They do affect me especially diet soda. I would try to drink lots of water as well. It seems to cut down on the acid in the urine I think. I had DMSO treatments for my IC and they did help me but it took awhile. I do not do anything anymore except Urised and I am pretty much not bothered. Every once in awhile a flare up, mostly burning. Try not drinking any carbonated beverages for awhile and see if it gets any better.

[enk11]

yes i agree with sweetabby...lots of water helps alot to cut down the acidity in the urine. also, try taking a warm bath twice a day if possible..it helps with pain and is relaxing, becabeing stressed out always makes the pain worse. maybe check with your doc beforedoing the baths if you are prone to UTI...i have heard that if you get UTIs a bath may not be the best idea. heat and Ice, alternating those will help also. but ,s timportant is to relax and get enough rest. sorry I cant help more. just knw thatwe are here for you and know how you feel.

[Roxie2007]

HI! Sorry to hear you are in so much pain. IC isn't fun a condition in the least!
IC is one of those things that you have to go by the book when eating and drinking.......the sooner you get your mind around that the better. I used to think I needed a Diet Coke every morning on the way to work.....then I figured out that was what was causing pain all day.
Have you tried AZO (it's OTC) for bladder pain? Also you can try Elavil for pain and frequency, it's a prescription.
I go to an IC specialist and he hardly ever recommends instills etc...because they can make bladders worse in some cases. He just uses meds, and it's worked great for me.
Good luck to you! Keep us updated on your progress........Roxie

[Kara Isabel]

Hi,

I sure do know what you mean!

I know you probably don't want to hear this again, but giving up the soda WILL really help. I hated that I had to give up my soda, coffee and wine, but in the long run it was worth it.

I, too, ended up going to a pain management doctor and that gave me life back! They have been altering my meds alot the last few months, so its been very rough on me, but when they have the pain med coctail *right*, I can actually function in a normal capacity. I hope you find a great pain mgmt. doctor that helps you.

Hope you feel better,
Kara

[ICNDonna]

If I were to drink two sodas a day, I would be curled up in a ball with my heating pad and pain pills! Actually a fourth of a cup of soda throws me into a flare.

Please ask yourself if those sodas are worth the pain. I know it's not easy, but you really do need to avoid them entirely.

Sending encouraging hugs,
Donna

[stac7_8]

First I want to say Thank you to everyone for all the support.

I know that cutting the soda is a must. I'm trying my best, it truly is not easy. U know how a smoker says it isn't easy to stop....well that is kinda how I feel. I know I can do it because I have done it in the past. It is truly just getting "my head around it".

Thanks again to all

I have not had any soda today....as of yet. I got a bottle of water this am. So I really am trying!!!:woohoo:

[Roxie2007]

HI! Good for you for buying water today instead of a soda!
I know the ritual I had.....I'd leave for work and stop at a quick shop near the subdivision for a diet Coke.....and start drinking it there and then.....It was such a habit!....and habits can be difficult to break. BUT you will feel much better not having the caffeine and carbonation in your bladder all day long. Keep up the good work! You'll be feeling better before you know it! Roxie