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  • #1

    MS Contin

    So far so good! My pain level yesterday was 7-8 and I had to leave work at lunchtime. I took my very 1st dose this morning around 9:30. I'm going to be taking 60 mg twice a day. Within an hour I was already feeling relief and by 11am the pain was completely gone and has stayed gone...it's 5 pm now:woohoo: No dizziness or nausea or groggies, only side effect I seem to be feeling is a sense of extreme calm....don't think there's anything anyone could do or say to upset me right now...kinda like if I took 3mg xanax instead of the usual 1mg. I'm not going to argue with that side effect right now, but hoping that I won't be THIS calm as I get used to the med, because I'm so relaxed that I know I can't drive right now.
    I want to cry ....because I'm so happy the pain is gone.
    Tags: None
  • #2
    :woohoo: :woohoo: That's great that you're getting such great pain relief!! I hope it continues to work this well for you. I need to figure out what I'm going to do about pain meds, my uro didn't want to give me anymore because he thought the Elavil would help with my pain so much that I wouldn't need it. Well it does help with the pain but I still have flares and still need something, ibuprofen doesn't do ANYTHING at all for my pain and tylenol never has.
    Christine



    I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
    1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
    2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
    I have tried every oral medication as well as rescue instills and DMSO.

    I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

    Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
    Also proud mom to the best Bullmastiff on earth, Claus

    Comment

    • #3
      Oh, Bri, I'm so happy for you I could cry!! :woohoo:
      Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
      Wishing you happiness and good health, and all the best out of life.

      Peace, Carolyn
      ___________________________________________________

      Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


      On the Beach with IC

      Comment

      • #4
        Oh, Brig! I am so happy for you! I just knew it would help! I cant tell you how happy I am right now! :woohoo: This has truly made my week, (actually, probobly my month!)

        I hope it continues to work well for you and you feel better and better as you get used to it!

        Love and hugs,
        Amy

        Comment

        • #5
          Thanks Bri, I'm hoping that I can get some relief too, I just took my last Vicoden because I'm having a flare from running around the house today cleaning before my brother and sil arrived. It scares the crap out of me that I don't have anything left BUT my hubby goes to see our PCP on Tuesday to get his Paxil upped so I think I'm going to tag along and explain my IC situation and see if they will give me SOMETHING to get through this, my gyn had given me some wygesic (I think that's how you spell it) a couple of months ago and although it didn't get rid of the pain it took the edge off. I'm not sure if we even have any pain management clinics around here, I guess I'll have to start doing my research just in case.
          Christine



          I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
          1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
          2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
          I have tried every oral medication as well as rescue instills and DMSO.

          I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

          Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
          Also proud mom to the best Bullmastiff on earth, Claus

          Comment

          • #6
            Duh Bri, I'm such a goof, I wanted to ask you how long you have been at your job? There is a federal law that if you have been at your job for a year and it's a big enough company that you can get FMLA (family medical leave act) for a medical condition. You can get up to 12 weeks of unpaid leave per 12 months and they can't fire you. This is what I did when I had Griffin for my obgyn appts because I could only get them during work and for after I had him. I'm coming up on my one year w/ my job next month and I think I'm going to ask them for the paperwork. Luckily I have a desk job and a really understanding boss so most days I can make it through but I want to know that if I have a major flare and just feel like I can't make it to work that I still have my job security which is really improtant since I'm the breadwinner in my family. I hate to hear people fear for their jobs when they have a serious medical condition like IC and they can't help it while other people keep their jobs even though they just call out because they don't feel like coming in. You may already know about all of this and if so I'm sorry for rambling
            Christine



            I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
            1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
            2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
            I have tried every oral medication as well as rescue instills and DMSO.

            I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

            Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
            Also proud mom to the best Bullmastiff on earth, Claus

            Comment

            • #7
              Yay!!!!!!

              I cried as I read your letter....tears of HAPPINESS for you, girl!! :woohoo: :woohoo: What a relief....chronic pain does sooo much to affect a person's mood, and now you finally have some much needed (and deserved) relief!!! Doesn't it feel wonderful?? BASK (sp?) in it!! And now you have the peace of mind of being able to function at work--that's probably where alot of the calmness you describe is coming from!!
              Thank You all so much to everyone here for all your sharing, caring and support!
              < My "Bear"
              CurrentTreatments:
              Started herbal teas 6/2/06 Marshmallow root, comfrey root, and catnip. 6/25/06 added Mullein Leaf Powder to tea.
              IC Diet
              Hydroxyzine 50 or 100mg at night (Is restarted)
              Zoloft 100mg 4/8/07 (Is restarted)
              Klonopin 1/2 mg 4 X Day (started 3/17/07)
              Past Treatments: Amitriptyline, Neurontin, Hytrin, Heparin instills (was Dc'd after 5 weekly tx's due to severe urethritis), Superior hypogastric plexus block, E-stim, Elmiron instills (started 4/18/06-Dc'd 5/30/06 due to severe urethritis/infection requiring foley cath @ home 4 days), Oxycontin (oxycodone) (4/18/06)-pain (Dc'd 5/31/06), Levsin S/L (hyoscyamine) (3/17/06)-antispasmotic (Dc'd 5/31/06), Elmiron (1/24/06)-(Dc'd 6/25/06), Prelief, Zanaflex 4mg for PFD (Dc'd 10/1/06), CystaQ 1 in am & 1 in pm with food(started 5/12/06-increased to 2 in am & 1 in pm 9/20/06---Dc'd 10/18/06), Lyrica (started 10/26/06 up to 600 mg-Dc'd 12/4/06 due to urinary retention), Vicodin (hydrocodone) ES PRN for pain (Dc'd 1/4/07); Cymbalta 30mg (start 1/17/07) up to 60mg in am (1/26/07) (D/c'd 3/17/07); Ativan 1mg(Lorazepam)- PRN Anxiety (changed to Klonopin 1/2mg 4Xday 3/17/07); Pyridium (phenazopyridine) PRN-bladder analgesic; MSM (6/12/06) 1000mg after breakfast & dinner (Dc'd 3/15/07); Acidophilus (Natrol) 100mg. 1 capsule 1/2 hour before breakfast (5/20/06) (Dc'd 3/17/07)

              Added BACK in - Atarax (hydroxyzine) (started 4/6/06 Dc'd 5/31/06) Restart 50mg at night 8/18/06, up to 100mg at night 1/4/07. Zoloft 100mg-Depression (Dc'd 7/25/06) Restart 4/8/07) 100mg.
              Dx'd: Dec 05 (Positive PST in November and positive cystoscopy in Dec) Symptoms: Pain, frequency, urgency & retention

              My Myspace page - http://www.myspace.com/42620225

              Comment

              • #8
                I am so happy for you Briza! I know we have been in the same boat lately as far as awful pain on a daily basis is concerned. I hope this relief lasts and the side affects decrease soon.
                Rachel
                DX's:
                IC; PFD; possible Fibromyalgia; IBS;

                Symptoms: Frequency, Urgency, pelvic and bladder pain, bladder and pelvic spasms, difficulty starting urination, weak stream, incontinence, vaginal and urethral pain

                I've Tried:
                three Hydrodistentions, various Rescue Installments; 6 DSMO treatments; Pyridium Plus; Proced; Detrol (patch); Elavil; Uricet K; Elmiron; Nortiptyline; Ultram; Allegra; Ditropan; Ditropan ER; Vesicare; regular Lidocain; Neurontin; Lyrica; and few more I can't remember!
                Currently using:
                Valium; Vicadin; Proced DS; Claritin; Buffered Lidocain; Cymbalta; Baclofen; Prazosin @ night (also on Prednisone and Adderall for my joint pain and severe fatigue)
                Heating pads; frozen water bottles; A&D ointment; Poise pads; IC dieter since 8/06; yoga; imagery & relaxation CD, Mindfullness, self healing CD's; hot baths; seat cushion; prayer
                I am 28 yrs old, dx'ed in '06, still trying to get my health undercontrol!!

                Comment

                • #9
                  So happy for you Briza. I feel foolish but I do not know what MS CONTIN is? It appears to be a pain pill for sure but most meds I have heard of. Is MS CONTIN short for something else? Ziggy

                  Comment

                  • #10
                    That's GREAT!!!!!

                    I just sent you a PM before I noticed this thread, asking how you were doing! I think the few side effects you have will probably ease up in a few days!

                    I'm SO happy you are getting some relief!!

                    Great news!

                    Hugs,
                    Kara
                    Hugs and Wishes for Pain FREE days!!,
                    Kara

                    www.loveforearth.net ~reducing plastic waste one bag at a time~

                    Facebook: Kara Kaiser
                    Twitter: Love4Earth

                    Me and my Guccigirl... she helps me through those painful hours!

                    Comment

                    • #11
                      Hi hon,

                      I'm so happy for you! I'm on MSContin and it's a lifesaver. I have that same relaxed feeling most of the time, and it's so relaxing that I actually get overly frustrated when my kids act up and "disturb my calm".

                      You were wondering if you should take the second dose? If you can get by with less med at this stage, then I'd do so. What would give you better coverage though is to take 30mg at a time and see if you get good relief that way. If you can do 30mg 2x a day initially, you'll give yourself more room to titrate up later as you become tolerant to the med.

                      If you don't have long lasting relief at 30mg, definitely take the recommended dosage and on schedule. You'll have far better coverage if you do. Of course everything should be cleared with your doctor first.

                      Again, so happy for you!!!
                      http://www.TheCraftyEwe.etsy.com

                      Comment

                      • #12
                        Stop it! Your embarrassing Mark! By the way, please thank Mark's girlfriend for the sweet Amazon gift card from a month or so ago. No wonder he adores her! She is always putting up with him, and believe me, he has ALOT of issues!

                        Comment

                        • #13
                          Amy, Brig -- You guys need serious help, you do know that, right?
                          Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                          Wishing you happiness and good health, and all the best out of life.

                          Peace, Carolyn
                          ___________________________________________________

                          Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                          On the Beach with IC

                          Comment

                          • #14
                            It sounds like you may be having an allergic reaction. Have you called your doctor? If not, I suggest you do so this morning.

                            Donna
                            Stay safe


                            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

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                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                             [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

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                            • #15
                              Awesome - I'm on MS Contin too. I've been taking for about 5 months and couldn't live without it. I just tried to lower my dose. Sometimes I take the 15 mg pills, but the 30 work the best and last so long. It is great!

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