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Gave in and asked for pain meds.

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  • Gave in and asked for pain meds.

    So far, I've tried and failed with elavil, atarax and elmiron. I was sure that at least one of them would work. Unfortunately, I just got worse with elmiron and went into retention with the others.

    Today I called my primary doc and asked for an appointment because my uro is out of town and I'll be out of town next week and I was just plain tired of the pain. Just tired, worn down, couldn't do it anymore, etc.

    I met with an awsome PA and then I proceeded to cry the entire appointment. I think the tears were from a wierd combination of stress, pain, fear (at asking for pain meds) and relief (that I was finally asking for help). She knew exactly what IC was and said, "ugh, that's really painful" as soon as I said the words. She then gave me a perscription for percocet. My first official pain med. I suspect my absolutely genuine tears helped convince her that I wasn't drug seeking. But boy, it was hard for me to ask for help. I'm crossing my fingers that the percocet takes the edge off the pain.

  • #2
    I am glad you were able to get something for your pain. My nurse and mom voice say please don't let yourself get into the pain cycle because it is so hard to get out of. What I mean is, once the pain is bad it is so much harder to control and takes more medication than when you intercept it earlier. I so hope you feel better soon.

    (Babs passed away in April 2009. We honor her memory and remember her fondly. - Jill O. ICN President & Founder)

    [SIZE="1"]Proud mama of a gift named Lindsey who taught me through her autism what is important in life:angel:
    :angel: IC Angel Volunteer Coordinator :angel:
    :) Contact me via PM or e-mail if you would like to help
    I have learned all about life in 3 words: It goes on! :D--Robert Frost
    PCOS 7/85
    RSD 7/94 :headbang:
    Endometriosis 9/98 :toilet:
    Antiphospholipid antibody syndrome 9/99
    Kidney stones--too many to count
    Factor V Leiden mutation 10/02
    IC 6/03 :evilsmile
    Deep Venous Thrombosis and Cellulitis 12/05 :loco: DVT and Greenfield Placed 3/14/08
    "Spirit is an invisible force made visible in all of life"--Maya Angelou
    "Ohana means family--no one gets left behind or forgotten." Stitch[/SIZE][/SIZE][/SIZE]


    • #3
      I'm so glad that you got something for your pain Robin. I know you were really worried to ask for it. When we're in pain there is nothing wrong with asking for pain meds. I didn't ask for a long time because I thought they wouldn't give me anything but I was so happy that I did. I hope that the percocet helps. I take viocoden when I get pain and that really helps, doesn't always get rid of it but at least takes the edge off and I think percocet is a little big stronger.

      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus


      • #4
        Thats really good she understood and prescribed you something.. I have to begg my URO for anything! I am really happy for you

        ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

        Link to Patient Handbook:

        Diet Reference Sheet:

        Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

        Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

        Meds I have Tried:
        Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
        Lexapro< Bad reaction to this med!
        Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

        Dx With IC in Nov 2006 with Hydro/Cysto
        Hydro/Cysto Caused Bladder to Rupture.

        Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

        ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


        • #5
          Robin I am so happy for you that you had the courage to ask for help. With pain issue sometimes it is impossible to deal with it alone and need some help to get some relief, never feel bad about getting the help you need. Hope this medicine works for you.

          Sending hugs, Trishann


          • #6
            I hope it helps, the percocet worked better for me than the lortab, but my dr. doesn't like to keep filling it, I go in Thurs for hydro again, and her and I are going to have to talk, my quality of life is so low, I have a pain dr about an hour away that is willing to talk to me, but when I called to get my uro's office to call them, the uro's office said we don't call, they have to let call us, so the round robin goes on. If my uro is not willing to help with pain meds, they need to help me get to a pain specialist that is interested in ic. I don't know if you had read any of post about this, but he had written a article in our paper regarding chronic pain patients not getting the care they needed, so I emailed him with my story. He actually emailed me back and said he wasn't up on ic pain management, but he would try. Now just getting the right records is a pain. I think I will get a complete set for myself, which I need anyway, and then go from there. Good luck. I agree with Babs, don't let the pain get so bad before you take it, or it will not work as well. I found that out the hard way.


            • #7
              I have also found out the hard way...with the pain!!! I will wait to take my pain pills until the late afternoon. I only do this cause I'm a stay @ hm mom and I have 2 small kids that I have to take care of. I have an 8 month old and a 3yr old.

              I'm glad that you found the courage to ask for something. I hope it helps you. Please remember to watch yourself for the first few times for any reactions. I'm not able to take Percadan (sp), got hives on my hands. So just be careful ok.....well that is true with any new med. Take care and have a great day
              Live your life to YOUR best, and Love to YOUR best!!!

              DX in 03 with Shingles
              Removal of Left ovary due to Cyst in 2005,
              I have had cyst since I started my period as a child age 12
              Hysterecotmy December 06
              IC DX March 07 by PST
              2 "rescue" instills in March 07
              Cyco May 07 confirmed IC
              Uro study June 07
              1st Pain Block July 17,08
              Hydro/Cysto Nov 11, 2008
              12-11-08 was told I had alot of inflamation

              Meds: Allergic to 6 things
              Premarin......taking the gen cause I get it at Walmart for 4$$
              Presique for my drepression :woohoo:
              Abilify for my depression
              Adderall ...found out I'm ADD...makes sense now
              Kolopin for anxiety
              Noroco for my pain
              Valtrex for my shingles as needed

              Sorry if my spelling is off on the meds [/FONT]



              • #8
                Do all pain meds cause urine retention and nausea? I took norrco which is tylenol with hydrocodone about 6 weeks ago for my bladder pain, and OH my GOSH it made me soooo sick. I only took one pill too and it had me sick for over 4 days. It also caused me some urine retention. Does this mean that I will have these issues with retention and severe nausea with all pain meds likely? I do have exisiting stomach motility issues as it is and so maybe I have the stomach issue because I am already weak in that area, I dont know. The only thing I can take right now is x-tra strength tylenol. This is scary because I have no clue what to do if I get worse and absolutely need something for the pain.


                • #9
                  All Narcotics have the side effect of retention as far as I know. I am so glad they took your pain seriously. Hopefully it will bring you releif

                  IC diagnosed officially via cysto/urodynamics 1/26/07

                  Grade II Endometriosis diagnosed via lap 12/11/07

                  "Fall down seven times, Stand up eight."

                  "Life is a tragedy for those who feel and a comedy for those who think."

                  Current Treatments:
                  Interstim Since 5/25/07!
                  Birth Control


                  • #10
                    Robin: I am so glad that your doctor gave you something for pain. I know that a lot of doctors won't -- my Uro only gave me something one time as he knew I was really in pain and other than that the only time he gave me anything was when I had my hydros. He then recommended a pain specialist which I go to now.
                    I'm impressed that your family doctor knows something about IC, (I know that my does as well) but a lot of them don't.