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Topamax for pain

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  • Moonheart
    replied
    LOL! Sorry hon! But you know you'll get through it right? You did the same thing I did didn't you? Silly me eating jalapenos and all just because I felt great. And then to top it off? I made Thai food!!! What was I thinking?!!! LOL! Boy did I suffer!

    So now, I'm back to normal, eating yogurt everyday (it's okay for me for some reason) and being a good girl and taking my Elmiron which surprisingly is what brought me out of the flare. I never take it, then took one dose and bye bye flare! Wild!

    Okay, anyway, yet again I've been up all night (are you sensing a pattern here?) and hopefully I'll get something done today and won't sleep the day away. I hate those days, where I stay up all night then sleep all day. I'd rather be up all night and work all day. At least I feel like I got something done.

    Hon, I'm sending Anti-Flare Vibes your way okay? Think of the "Open...open...open" lady from those commercials? Did you ever see those?

    Anyway...go lay down with some water and a pack of whatever makes you feel better k?

    Love ya!

    Moonie

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  • leelee88
    replied
    OK OK Moonheart slow down you are wearing me out...
    I am having a terrible flare today dont know what set it off, I really hope the 50mg helps.. I know its working though because before the flare started I was feeling pretty good.. I think it was what I ate this weekend hotdogs..I knew better..lol..Now today water water water uggggg...

    (((((((((((hugs)))))))))))

    Ronda

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  • Moonheart
    replied
    Originally posted by Roxie2007 View Post
    I think I'm going to ask my Rheumatologist if Topamax would help me with my body aches. I'm on Lyrica now and have gained 13 pounds on it! It sucks! But it does help with the pain.....but I can't continue to gain so rapidly like this......ugh!!!!! Roxie

    Oh I hope you get it and it works for you!!! I have NO body pain now! NONE!

    I was out in the garage cleaning the WHOLE garage in just two hours Friday evening. Then this evening, I helped the kids mow the lawn, I trimmed hedges, pulled weeds, transplanted my tomatoes, oh my goodness! I haven't done this much in ages! Tomorrow/Today, I'm hoping to get up early even though I'm in this bad habit of being up all night from the all time flare, and I want to get out in the garden some more ( I have wild strawberries ) and take pictures to do more designs on the t-shirts etc... and get the current projects finished.

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  • Moonheart
    replied
    Originally posted by leelee88 View Post
    Jessica,

    It has helped some with the pain but not near as much as elavil, but I am only on the minimal dose. I am going Tuesday to get it increased to 50mg.. I have had no side effects from 25mgs.. It is helping with my frequency and as far as weight I have lost 8 pounds in 2 weeks :woohoo: I get hungry but when I start to eat I seem full so I push it away..I am so excited about that..I am hoping the 50mg will help more with my pain..I have noticed that my body aches have went away I truly believe I have Fibro..So we will see.. Please keep me informed..

    Ronda
    Ronda, isn't it amazing that the body aches just went away like that? :woohoo: Mine were gone just like that! Crazy! I think I've levelled off with the weight, but I'm not sure. I know I lost somewhere around 40-50 all at once, but that makes sense because I'd gained that much all at once when I went off of the Topamax a couple years ago. All fluid retention I know.

    Except for a flare I had last week, I've bee all good the whole time! I had to take full doses of my MS Contin during the flare and now I'm getting back to before where I could not take it or only take half a dose if I want. It's just wonderful!

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  • Roxie2007
    replied
    I think I'm going to ask my Rheumatologist if Topamax would help me with my body aches. I'm on Lyrica now and have gained 13 pounds on it! It sucks! But it does help with the pain.....but I can't continue to gain so rapidly like this......ugh!!!!! Roxie

    Leave a comment:


  • leelee88
    replied
    Jessica,

    It has helped some with the pain but not near as much as elavil, but I am only on the minimal dose. I am going Tuesday to get it increased to 50mg.. I have had no side effects from 25mgs.. It is helping with my frequency and as far as weight I have lost 8 pounds in 2 weeks :woohoo: I get hungry but when I start to eat I seem full so I push it away..I am so excited about that..I am hoping the 50mg will help more with my pain..I have noticed that my body aches have went away I truly believe I have Fibro..So we will see.. Please keep me informed..

    Ronda

    Leave a comment:


  • Jessica12974
    started a topic Topamax for pain

    Topamax for pain

    I know that a few of you are taking Topamax and have had great results with it! I have a few questions!!! How long did it take to help with the pain? How long does the side effects last and how bad were they? I had bad nausea the first time I took it and I have not taken it since. How long did it take before you noticed weight loss? I know that a side effect is lethargy and I was wondering if it affected one getting up early in the morning for work or ability to drive? I do not want to give up on this med yet but I do not have weeks to wait for the side effects to wear off and I certainly cannot lay in bed all day! Oh yeah very important, did it cause you urinary frequency? That is another reason I am afraid to take it again! I was in the bathroom all night! Sorry about all the questions!!!! And thanks so much!!!!!

    Jessica
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