Announcement

Collapse
No announcement yet.

No success with pain clinic. Im so mad and confused. I could just cry.

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts
    mimimama
    ICN Member

  • mimimama
    replied
    This is powerful information! Thanks so much for sharing your story with us!

    i will put this in my mental bank..

    FYI, i find that the locally owned pharmacies are much more customer friendly than say ,Walgreens, CVS, Riteaid..etc. We have a wonderful local pharmacy that we drive out of our way to take our scripts to, just because they are so kind!

    Originally posted by momw/ic View Post
    I had a similar pharmacy situation where the pharmacist saw fit to question my medications and prescriptions here. My uro had given me Lortab 5/325 for break through pain and then I had a cyst w/hydro done and he did a biopsy, dialation and ulcer ablation while he was in there. When I woke up from anesthesia he told me I would probably need more pain meds so he gave me a written script for Lortab 10/325 and the directions that allowed me to take more and more often than the 5/325. When my husband took the script to get it filled the pharmacist would not fill it because I had some already. When my husband explained the situation and that even if I took 2 at a time what I had to get it up to the 10mg that I would run out in a couple of days. He was going out of town in 3 days so he wanted me to be all set when he left. The pharmacist still refused to fill so my husband had the doc paged to call him. When the doc called and my husband told him the situation he was so mad. He said that they are "practicing medicine without a license and that is illegal and grounds to be reported". The doc talked to the pharmacist and told her all of that and she told him that he needed to turn me over to pain management. He told her that I was in pain management that he was managing my pain and she was standing in the way of that. Bottom line is she hung up from the doc and said he agreed that I needed pain management and did not need the script. What she didn't know was that we had the call on a three way call and I had heard the entire conversation! He took the script from her and went to another chain pharmacy and they filled it no problem. The next day my husband went in to the pharm to talk to the manager and told him everthing that happened. It turns out my doc had already called and was livid (we had paged him again and told him what the pharmacist told us he said) and he would be reporting the store and the pharmacist.

    Through all of that I learned that the pharmacists and the insurance company cannot override anything like that the doctor has ordered. It is considered practicing medicine without a license and is illegal. If you use that exact phrase to them a lot of times they will back down because it scares them that you know about that and that they don't have all the power. Sorry this is so long but I thought this might hielp.

    Leave a comment:


  • cia
    replied
    Mom w/ic: That is a fascinating story. You go get em girl. Through the process of having my daughters UTI's treated I have realized a certain level of frustration that Drs. have with pharmacist's, I never noticed it before. When they gave me a scrip for pain meds the week before my hydro, I told the doctor that I didn't think they would fill it because they had just given me some the week earlier for that damn everyday all encompassing pain. (I guess narcotics have to be filled within 24 or 48 hours of being written). The doctor just looked at me and said "they better". I didn't realize how powerful that was until I read your post.

    Leave a comment:

  • leelee88
    Support Volunteer

  • leelee88
    replied
    Thanks for the info..

    Leave a comment:

  • momw/ic
    ICN Member

  • momw/ic
    replied
    I had a similar pharmacy situation where the pharmacist saw fit to question my medications and prescriptions here. My uro had given me Lortab 5/325 for break through pain and then I had a cyst w/hydro done and he did a biopsy, dialation and ulcer ablation while he was in there. When I woke up from anesthesia he told me I would probably need more pain meds so he gave me a written script for Lortab 10/325 and the directions that allowed me to take more and more often than the 5/325. When my husband took the script to get it filled the pharmacist would not fill it because I had some already. When my husband explained the situation and that even if I took 2 at a time what I had to get it up to the 10mg that I would run out in a couple of days. He was going out of town in 3 days so he wanted me to be all set when he left. The pharmacist still refused to fill so my husband had the doc paged to call him. When the doc called and my husband told him the situation he was so mad. He said that they are "practicing medicine without a license and that is illegal and grounds to be reported". The doc talked to the pharmacist and told her all of that and she told him that he needed to turn me over to pain management. He told her that I was in pain management that he was managing my pain and she was standing in the way of that. Bottom line is she hung up from the doc and said he agreed that I needed pain management and did not need the script. What she didn't know was that we had the call on a three way call and I had heard the entire conversation! He took the script from her and went to another chain pharmacy and they filled it no problem. The next day my husband went in to the pharm to talk to the manager and told him everthing that happened. It turns out my doc had already called and was livid (we had paged him again and told him what the pharmacist told us he said) and he would be reporting the store and the pharmacist.

    Through all of that I learned that the pharmacists and the insurance company cannot override anything like that the doctor has ordered. It is considered practicing medicine without a license and is illegal. If you use that exact phrase to them a lot of times they will back down because it scares them that you know about that and that they don't have all the power. Sorry this is so long but I thought this might hielp.
    momw/ic
    ICN Member
    Last edited by momw/ic; 07-10-2007, 11:18 PM. Reason: quote messed up

    Leave a comment:

  • leelee88
    Support Volunteer

  • leelee88
    replied
    Thank you Cia...

    I am always in need of Hugs

    Ronda

    Leave a comment:


  • cia
    replied
    It is so depressing to think we have come so far in so many places and that there are still doctors out there that are unwilling to consider any alternative therapies and insult their patient by being unwilling to listen to their questions and opinions. I read these things and I think of my fourth urologist in a row (1993) telling me that there is nothing wrong with me and that I am just drug seeking. I can't believe how small that can make us feel, even when we know we aren't imagining things. It doesn't seem to matter how well informed you are, if the person you've probably waited months to get an appointment with, is uninterested in your opinion, you are back at square one desperate to find someone else to listen and help. I will offer the fabulous grouphug, because I know your frustration and I am petrified of the day, that I know will come, when I will have to stand before some uninformed, pompous, know it all that will try like hell to diminish me to a three foot tall helpless child.

    Leave a comment:

  • Moonheart
    ICN Member

  • Moonheart
    replied
    Check out Newsweek for a really good article on The New War On Pain. Very encouraging!

    Leave a comment:

  • leelee88
    Support Volunteer

  • leelee88
    replied
    Thanks Sandy, Jen, Lori,

    I cant believe either that pain doctors do not treat this disease well should I say this pain doctor..And what gets me is he even said he has done research and knows it has been compared to cancer pain..So I mean what the lol.. you know I am at the point now that I know that I am going to have to fight my way through all this because most of these doctors do not know enough about IC to do anything to help anyone..My GYN is so interested in it she even ask if I would bring her some recent research on it, so if anyone knows of a good link that is pretty recent please share it with me so I can bring it to her..Thanks Ronda

    Leave a comment:

  • ICLori
    ICN Member

  • ICLori
    replied
    Ronda, I'm so sorry this happened to you. But brava for you for speaking up for yourself, and for getting another referral to a different uro!

    This is just so sad, it just shows how much ignorance there still is about IC among doctors. Darn it!

    Blessings,
    Lori

    Leave a comment:

  • jen74
    ICN Member

  • jen74
    replied
    Wow Ronda, So he had the nerve to tell you he does not treat people with IC for their pain! What an A******! I cant believe he told you that. I would never wish this disease on anyone, but he needs to have it for a good while and see just how painful and debilitating it really is! I just dont know what in the heck is wrong with these so- called doctors. And he is suppose to be a pain doctor for goodness sakes. Again, I am sorry. I am glad you are getting in to see a different uro. I hope she is much better than the last one.
    Jen

    Leave a comment:

  • SandyRN
    ICN Member

  • SandyRN
    replied
    I'm so sorry. I had a doctor like that and the only thing he would "give me" for pain were spinal injections and he, of course, signed me up to receive mail from a company I won't name encouraging me to try out all these implant things. I was REALLY angry at him giving out my home address. I have a feeling this guy I saw was getting some major $$$$ from the company to put in these implants. Just to clarify, it wasn't the interstim, but things similar to it.

    Please don't lose heart...ask for a different referral.

    Leave a comment:

  • Briza
    ICN Member

  • Briza
    replied
    Ronda,
    I'm glad you got in to see her today after what happened yesterday. I also love my gyn, and I always feel so much better after a visit with him, so I can understand how it feels to go to the one dr you know will at least support you and not give you the run around. I hope the new uro works out and that your pain med situation is resolved soon. But I am glad to hear you sounding better and keeping on with the fight to get adequate treatment. It's rough, unfortunately that's what we have to do!

    Leave a comment:

  • leelee88
    Support Volunteer

  • leelee88
    replied
    Update

    Well went to GYN today and going up on Topamax which is a good thing.. I told her all about what my URO did and the pain Doctor and her mouth dropped..So she said she usually does not do reffer her patients to other drs when they already have one but she knows what I am going through and knows I am not getting the right treatment or care I deserve.. So she referred me to another URO who happens to be a woman and specializes in IC.. That I am greatful for that..She also said she was going to call her and give her the run down on my history.. So I thought that was nice..So Thats where I stand now..I will keep you updated on how the 50mg of Topomax does

    Thanks again for all of your support
    Ronda

    Leave a comment:

  • Moonheart
    ICN Member

  • Moonheart
    replied
    Originally posted by aprilmae View Post
    Ronda,

    Sorry to hear all of this. I am finally out of my hole I was hiding in and back in the world. I have a good friend going through approval for the neurostimulator - let me know if you would like to talk to her and I will give you her email address. Her symptoms seem similar to yours.

    As always you are in my prayers. I know I haven't been around much but I know you understand.

    Lots of love,
    April
    Oh Ronda I'm so sorry. When are you going up on the Topamax? You're only at 25mg still? That just won't do it. I started out at 50mg and never was at 25mg. I'm so sorry you are so miserable. I have to run to the pharmacy. I'm going on day five without my Topamax now because I couldn't get to the store, and I'm feeling it really bad. I hope it doesn't put a kink in the relief. I'll be very angry with myself. I'm having horrid anxiety and starting another flare and when I read you being so upset....oh, my whole pelvis just gets in an uproar.

    HUGS from me to you,
    Moonheart

    Leave a comment:

  • aprilmae
    IC Friend

  • aprilmae
    replied
    Ronda,

    Sorry to hear all of this. I am finally out of my hole I was hiding in and back in the world. I have a good friend going through approval for the neurostimulator - let me know if you would like to talk to her and I will give you her email address. Her symptoms seem similar to yours.

    As always you are in my prayers. I know I haven't been around much but I know you understand.

    Lots of love,
    April

    Leave a comment:

Working...
X