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  • Is anyone on Lyrica?

    I went to a Pain Clinic today and was totally unimpressed by the doctor. I knew more about IC and PFD than he did. I brought my IC book and he had to consult it to know what I was talking about! But he put me on Lyrica and gave a TENS unit. I'm nervous because I read that the side effects from Lyrica were depression an weight gain, two things I don't need. Anyone on this and can tell me about their experience?

  • #2
    There are several people who post regularly and take Lyrica successfully. And lots who find a TENS unit helpful.

    Donna
    Stay safe


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    [3MG]

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    • #3
      I took Lyrica and it really bothered my bladder and made me worse. But that is just me. There are people who have had great success with it. I hope it works for you.
      Jen

      Comment


      • #4
        HI! I take Lyrica for nerve damage pain. It helps with the pain BUT it causes my hands, ankles and feet to swell and has causes weight gain!! Which are major side effects! Are you seeing an URO/IC specialist? or just seeing the Pain Management dr.? I tried a Pain dr. and he wanted to do spine injections! YIKES! But for the past 4 yrs I've seen a URO/IC specialist and he's been great! So I'm one of the lucky ones! Roxie

        Double Spinal Cord Stimulator surgery 8/09
        Unsuccessful MiniArc sling surgery 12/07
        Dx'd Hypothyroid
        Dx'd Chronic Axonal Neuropathy & Myopathy
        June 2007
        Dx'd IC May 2006 (after suffering for 25+ yrs!)
        First Cysto 1979
        First Hydro 1981 (Many treatments since then!)
        Collagin"Durasphere" injections for urethra
        Gall bladder surgery Aug. 2004
        Gastric Bypass Dec. 2004
        Dx'd: Barrett's Esphogus July 2004
        Dx'd: Vaginal Atrophy 2005
        Bladder surgery 2000
        Dx'd: IBS 2000
        Hysterectomy (fibroids) 1999
        Laminectomy 1989
        Dx'd: Degerative Disk Disorder 1989

        For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
        I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

        Comment


        • #5
          Well my Uro ran out of ideas so he sent me to a pain clinic. They also suggested spinal injections and spinal implant devices like the Interstim which I am SO not ready to try. But this Lyrica, even after two pills, makes me SO drowsy I am not sure I can drive. And all I want to do is sleep! ARG! I just feel like that was the last resort and even they were clueless.

          Comment


          • #6
            You won't be as tired once you get used to being on the Lyrica. The drowsiness is more in the begining. You have to take Lyrica every day......it's not an "as needed" drug. Roxie

            Double Spinal Cord Stimulator surgery 8/09
            Unsuccessful MiniArc sling surgery 12/07
            Dx'd Hypothyroid
            Dx'd Chronic Axonal Neuropathy & Myopathy
            June 2007
            Dx'd IC May 2006 (after suffering for 25+ yrs!)
            First Cysto 1979
            First Hydro 1981 (Many treatments since then!)
            Collagin"Durasphere" injections for urethra
            Gall bladder surgery Aug. 2004
            Gastric Bypass Dec. 2004
            Dx'd: Barrett's Esphogus July 2004
            Dx'd: Vaginal Atrophy 2005
            Bladder surgery 2000
            Dx'd: IBS 2000
            Hysterectomy (fibroids) 1999
            Laminectomy 1989
            Dx'd: Degerative Disk Disorder 1989

            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

            Comment


            • #7
              Myca,

              I've actually had the opposite of depression and weight gain with Lyrica. I've been taking it for a year for pain. I hope you have a good experience with it.

              Kara
              Complex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011

              "One hour at a time, this was NOT my American Dream but it has to work out somehow."

              I also have some journals of my journeys, past and some present at:
              http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/

              Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.

              Comment


              • #8
                Couldn't deal with it. I can't function like that. And I have responsibilities around the house and places I need to be able to drive to. I've switched to Neurontin so we willl see how that works. I hope I have more success with that.

                Comment


                • #9
                  Lyrica did nothing for me and just put me to sleep. I was on a pretty low dose...but I couldn't even get used to that. No pain relief whatsoever.

                  Good luck finding a med that works for you!

                  Kitty!

                  Just diagnosed w/PFD - Oh Boy!

                  What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.

                  What I'm presently on:
                  Noritriptyline 25 mg
                  OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
                  Zanaflex 2 mg at bedtime
                  Percocet PRN for breakthrough
                  Zyrtec
                  Nasonex (allergies)
                  Jolessa (b.c.)
                  Physical Therapy 2x weekly

                  Be my buddy?

                  http://www.facebook.com/home.php?#/p...88&ref=profile

                  Comment


                  • #10
                    I was recently switched from Neurontin to Lyrica. It does absolutely nothing for me either. My pain doc swears it 'works with the narcotic'.

                    An aside: another doctor said it was made by the same company that makes Neurontin. They put it out when Neurontin became available as a generic but is still basically the same drug. If this is true, it makes me mad because it cost me so much more than generic Neurontin.
                    8/2007 - My constant bladder pain is now gone due to a surgery where the ilioinguinal and iliohypogastic nerves were cut. I still have IC symptoms but they are improving. It's still early to say, but I believe this solution will work permanently for me.

                    Symptoms since 2005 - 24/7 abdominal pain, cold sweats, low back pain, vulv, etc.
                    Surgeries: Spinal Fusion L4-L5-S1 10/97, Anterior spinal fusion L5-S1 9/05, Lap for Cysts, Endo 9/06, Hysterectomy kept cervix 12/06
                    Meds: Morphine, Neurontin, Valium, Hydroxyzine, Vivelle Estrogen, Thyroid,
                    Exercise & PT: All at least 4 times a week
                    Whirlpool baths, Moist heat, Treadmill, Stretching, Trigger point, Yoga Positions; Ab & Pelvic Massage

                    Comment


                    • #11
                      Carolin, Lots of companies switch up one little ingredient of a drug when they lose their patent and it goes on the market. Prilosec did that with Nexium....Now every other commercial on TV is about Nexium...the purple drug. It's such a rip off that they can do that! I didn't know about Neurontin...but it make sense!

                      Double Spinal Cord Stimulator surgery 8/09
                      Unsuccessful MiniArc sling surgery 12/07
                      Dx'd Hypothyroid
                      Dx'd Chronic Axonal Neuropathy & Myopathy
                      June 2007
                      Dx'd IC May 2006 (after suffering for 25+ yrs!)
                      First Cysto 1979
                      First Hydro 1981 (Many treatments since then!)
                      Collagin"Durasphere" injections for urethra
                      Gall bladder surgery Aug. 2004
                      Gastric Bypass Dec. 2004
                      Dx'd: Barrett's Esphogus July 2004
                      Dx'd: Vaginal Atrophy 2005
                      Bladder surgery 2000
                      Dx'd: IBS 2000
                      Hysterectomy (fibroids) 1999
                      Laminectomy 1989
                      Dx'd: Degerative Disk Disorder 1989

                      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                      Comment


                      • #12
                        I just read that there is a laundry list of side effects for Neurontin that sound pretty bad. And I read that is can cause many adults to committ or attempt to committ suicide. Great! Now I really wanna try it.

                        Comment


                        • #13
                          LOL Well I hadn't read about the suicide thing but do know it causes feet and hands to swell and causes rapid weight loss....what a wonderful pain med! LOL Roxie

                          Double Spinal Cord Stimulator surgery 8/09
                          Unsuccessful MiniArc sling surgery 12/07
                          Dx'd Hypothyroid
                          Dx'd Chronic Axonal Neuropathy & Myopathy
                          June 2007
                          Dx'd IC May 2006 (after suffering for 25+ yrs!)
                          First Cysto 1979
                          First Hydro 1981 (Many treatments since then!)
                          Collagin"Durasphere" injections for urethra
                          Gall bladder surgery Aug. 2004
                          Gastric Bypass Dec. 2004
                          Dx'd: Barrett's Esphogus July 2004
                          Dx'd: Vaginal Atrophy 2005
                          Bladder surgery 2000
                          Dx'd: IBS 2000
                          Hysterectomy (fibroids) 1999
                          Laminectomy 1989
                          Dx'd: Degerative Disk Disorder 1989

                          For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                          I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                          Comment


                          • #14
                            OPPS that weight gain......not weight loss........I wish it was weight loss!!!

                            Double Spinal Cord Stimulator surgery 8/09
                            Unsuccessful MiniArc sling surgery 12/07
                            Dx'd Hypothyroid
                            Dx'd Chronic Axonal Neuropathy & Myopathy
                            June 2007
                            Dx'd IC May 2006 (after suffering for 25+ yrs!)
                            First Cysto 1979
                            First Hydro 1981 (Many treatments since then!)
                            Collagin"Durasphere" injections for urethra
                            Gall bladder surgery Aug. 2004
                            Gastric Bypass Dec. 2004
                            Dx'd: Barrett's Esphogus July 2004
                            Dx'd: Vaginal Atrophy 2005
                            Bladder surgery 2000
                            Dx'd: IBS 2000
                            Hysterectomy (fibroids) 1999
                            Laminectomy 1989
                            Dx'd: Degerative Disk Disorder 1989

                            For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                            I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                            Comment


                            • #15
                              I was on lyrica 75mg for a month and was not able to take it during the day, I could only take it at night. It made me LOOPY!!! Bad....I had to really think about what I was going to say before I said it. lol Now my Pain doc has put me on a lower mg 50. It doesn't make me "loopy" just tired.

                              I have not expericed the weight gain....well yet. I hope that I don't!!! That would really suck. I'm trying to lose weight.

                              But now that I think about it some that would explain some cravings that I have been having. I know it is not a "female" thing....I don't have the parts anymore....lol....so that would really explain it. OMG I will have to talk to my DR about this. No way am I going to put all this weight back on.

                              Well anyways.....good luck to ya
                              Live your life to YOUR best, and Love to YOUR best!!!



                              DX in 03 with Shingles
                              Removal of Left ovary due to Cyst in 2005,
                              I have had cyst since I started my period as a child age 12
                              Hysterecotmy December 06
                              IC DX March 07 by PST
                              2 "rescue" instills in March 07
                              Cyco May 07 confirmed IC
                              Uro study June 07
                              1st Pain Block July 17,08
                              Hydro/Cysto Nov 11, 2008
                              12-11-08 was told I had alot of inflamation

                              Meds: Allergic to 6 things
                              Premarin......taking the gen cause I get it at Walmart for 4$$
                              Presique for my drepression :woohoo:
                              Abilify for my depression
                              Adderall ...found out I'm ADD...makes sense now
                              Kolopin for anxiety
                              Noroco for my pain
                              Valtrex for my shingles as needed

                              Sorry if my spelling is off on the meds [/FONT]


                              http://community.webshots.com/user/s...host=community

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