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I went to a Pain Clinic today and was totally unimpressed by the doctor. I knew more about IC and PFD than he did. I brought my IC book and he had to consult it to know what I was talking about! But he put me on Lyrica and gave a TENS unit. I'm nervous because I read that the side effects from Lyrica were depression an weight gain, two things I don't need. Anyone on this and can tell me about their experience?
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There are several people who post regularly and take Lyrica successfully. And lots who find a TENS unit helpful.
DonnaStay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool -
I took Lyrica and it really bothered my bladder and made me worse. But that is just me. There are people who have had great success with it. I hope it works for you.
JenComment
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HI! I take Lyrica for nerve damage pain. It helps with the pain BUT it causes my hands, ankles and feet to swell and has causes weight gain!! Which are major side effects! Are you seeing an URO/IC specialist? or just seeing the Pain Management dr.? I tried a Pain dr. and he wanted to do spine injections! YIKES! But for the past 4 yrs I've seen a URO/IC specialist and he's been great! So I'm one of the lucky ones! Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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Well my Uro ran out of ideas so he sent me to a pain clinic. They also suggested spinal injections and spinal implant devices like the Interstim which I am SO not ready to try. But this Lyrica, even after two pills, makes me SO drowsy I am not sure I can drive. And all I want to do is sleep! ARG! I just feel like that was the last resort and even they were clueless.Comment
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You won't be as tired once you get used to being on the Lyrica. The drowsiness is more in the begining. You have to take Lyrica every day......it's not an "as needed" drug. Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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Myca,
I've actually had the opposite of depression and weight gain with Lyrica. I've been taking it for a year for pain. I hope you have a good experience with it.
KaraComplex Case: Severe IC 1999, Interstim 2001, Endometriosis 2001, End Stage Refractory IC 2002, Bladder Removal (Cystectomy) 2002, Gall Bladder Removal 2005, Infertility 2003, Urethra Removal, Bladder Reconstruction (Urethrectomy/Indiana Pouch) 2006, Celiac Disease 2007, Adhesion Disease 2007, Pudendal Nerve Entrapment, Ovarian Cysts, Vestibulitis, Vulvodynia, Total Vestibulectomy and removal of both Skene's Glands, 2007 and Coccydynia 2007. Fibromyalgia and, Chronic Myofascial Pain Syndrome both in my neck and knees, 2007, PNE Decompression Operation May, 2009.Multiple Chemical Sensitivities, Anesthesia Awareness (to awaken during operations)Pudendal Nerve Decompression Surgery, Revrse Uterine Sling, Sept. 2011
"One hour at a time, this was NOT my American Dream but it has to work out somehow."
I also have some journals of my journeys, past and some present at:
http://karasnewblog2008.blogspot.com/ and http://icnkaralynn.blogspot.com/
Most of my Journaling now is currently on Facebook. These are old and my ICN Patient story is very old and outdated.Comment
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Couldn't deal with it. I can't function like that. And I have responsibilities around the house and places I need to be able to drive to. I've switched to Neurontin so we willl see how that works. I hope I have more success with that.Comment
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Lyrica did nothing for me and just put me to sleep. I was on a pretty low dose...but I couldn't even get used to that. No pain relief whatsoever.
Good luck finding a med that works for you!
Kitty!
Just diagnosed w/PFD - Oh Boy!
What I have tried: Elmiron, Lyrica, ,Methadone, Vicodin, Norco, Cystoprotek, imipramine, xanax, hydroxizine, trazadone, a bunch of anti-spasmotics and more I'm sure I can't remember.
What I'm presently on:
Noritriptyline 25 mg
OxyContin 20 mg AM - 10 mg afternoon - 20 mg PM
Zanaflex 2 mg at bedtime
Percocet PRN for breakthrough
Zyrtec
Nasonex (allergies)
Jolessa (b.c.)
Physical Therapy 2x weekly
Be my buddy?
http://www.facebook.com/home.php?#/p...88&ref=profileComment
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I was recently switched from Neurontin to Lyrica. It does absolutely nothing for me either. My pain doc swears it 'works with the narcotic'.
An aside: another doctor said it was made by the same company that makes Neurontin. They put it out when Neurontin became available as a generic but is still basically the same drug. If this is true, it makes me mad because it cost me so much more than generic Neurontin.8/2007 - My constant bladder pain is now gone due to a surgery where the ilioinguinal and iliohypogastic nerves were cut. I still have IC symptoms but they are improving. It's still early to say, but I believe this solution will work permanently for me.
Symptoms since 2005 - 24/7 abdominal pain, cold sweats, low back pain, vulv, etc.
Surgeries: Spinal Fusion L4-L5-S1 10/97, Anterior spinal fusion L5-S1 9/05, Lap for Cysts, Endo 9/06, Hysterectomy kept cervix 12/06
Meds: Morphine, Neurontin, Valium, Hydroxyzine, Vivelle Estrogen, Thyroid,
Exercise & PT: All at least 4 times a week
Whirlpool baths, Moist heat, Treadmill, Stretching, Trigger point, Yoga Positions; Ab & Pelvic MassageComment
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Carolin, Lots of companies switch up one little ingredient of a drug when they lose their patent and it goes on the market. Prilosec did that with Nexium....Now every other commercial on TV is about Nexium...the purple drug. It's such a rip off that they can do that! I didn't know about Neurontin...but it make sense!
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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I just read that there is a laundry list of side effects for Neurontin that sound pretty bad. And I read that is can cause many adults to committ or attempt to committ suicide. Great! Now I really wanna try it.
Comment
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LOL Well I hadn't read about the suicide thing but do know it causes feet and hands to swell and causes rapid weight loss....what a wonderful pain med! LOL Roxie
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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OPPS that weight gain......not weight loss........I wish it was weight loss!!!
Double Spinal Cord Stimulator surgery 8/09
Unsuccessful MiniArc sling surgery 12/07
Dx'd Hypothyroid
Dx'd Chronic Axonal Neuropathy & Myopathy
June 2007
Dx'd IC May 2006 (after suffering for 25+ yrs!)
First Cysto 1979
First Hydro 1981 (Many treatments since then!)
Collagin"Durasphere" injections for urethra
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Dx'd: Vaginal Atrophy 2005
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disorder 1989
For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:Comment
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I was on lyrica 75mg for a month and was not able to take it during the day, I could only take it at night. It made me LOOPY!!! Bad....I had to really think about what I was going to say before I said it. lol Now my Pain doc has put me on a lower mg 50. It doesn't make me "loopy" just tired.
I have not expericed the weight gain....well yet. I hope that I don't!!! That would really suck. I'm trying to lose weight.
But now that I think about it some that would explain some cravings that I have been having. I know it is not a "female" thing....I don't have the parts anymore....lol....so that would really explain it. OMG I will have to talk to my DR about this. No way am I going to put all this weight back on.
Well anyways.....good luck to yaLive your life to YOUR best, and Love to YOUR best!!!
DX in 03 with Shingles
Removal of Left ovary due to Cyst in 2005,
I have had cyst since I started my period as a child age 12
Hysterecotmy December 06
IC DX March 07 by PST
2 "rescue" instills in March 07
Cyco May 07 confirmed IC
Uro study June 07
1st Pain Block July 17,08
Hydro/Cysto Nov 11, 2008
12-11-08 was told I had alot of inflamation
Meds: Allergic to 6 things
Premarin......taking the gen cause I get it at Walmart for 4$$
Presique for my drepression :woohoo:
Abilify for my depression
Adderall ...found out I'm ADD...makes sense now
Kolopin for anxiety
Noroco for my pain
Valtrex for my shingles as needed
Sorry if my spelling is off on the meds
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