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WHAT PAIN MEDS DO YOU TAKE?

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  • boukie
    replied
    for flares i take 10 mg of vesicare and 20 mg of ditropan. I was just in a flare for the last 2 days and I missed work. Now I am finally feeling some relief. I would find a diff. dr if he's not listening to you. I hope things simmer down for you.

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  • Claredale
    replied
    There is a pain scale in the patient handbook, but the way you are describing it sounds good to me. When I am at a 4, I say the bed is calling for me and when I am at a 7, I am in bed or in my comfy chair with my blanket and heating pad! I am still not comfortable, but I am doing the best for myself. When I reach an 8-9, there is nothing to make me comfortable.

    Check out the pain scale. It will definitely help you and the doctor will know that you have researched your pain and know what you are talking about. I honestly feel that doctors that deal with patients with IC know that you have chronic pain and will need pain meds just to function. All that is in the patient handbook as well.

    Happy thoughts for tomorrow!

    Tracey

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  • sickofmybladder
    replied
    I am newly diagnosed and so far have not received any pain meds - am leaning on my remainder of the post op meds....... I go back tomorrow and my husband has indicated that I have to ask for something.... I don't want to seem like a "drug seeker" -

    I am consistently at a pain level of 4 & and at night up to a 6 or 7 (I base this on - if I could I would be in bed with the 4 - but I can't - at night I can't do anything after working all day but go to bed with heating pad - my mom says I'm not stating my pain correctly - that it sound higher to her based on how I feel - my husband says the same).

    Do you have any suggestions how I can approach this? I really want some level of life back......

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  • soccermom32
    replied
    I am fortunate that my pain doctor believes I am in pain. He gives me vicaden with many refills. I also use Pyridium and Urelle. Pyridium with a vicaden though and my pain is gone within an hour.

    I only use it when its a real flare. Sometimes I may need vicaden like 2 or 3 days in a row, but never more. I also use it for the first 2 days of my period b/c cramps flare my bladder. For the rest of the time that I get a twinge of pain or something, I use the arthritis Tylenol - its 650mg compared to 500mg and I take 2. They work really well.

    I don't know what I would do if my doctor didn't perscribe me pain meds. I would be devastated. He is well into his 70's too....he better live forever and be practicing forever if I'm going to have this dreadful disease forever

    Good luck.

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  • HillaryD
    replied
    Again, thanks daphne for your reply. You are probably right about Percocet not being for me. I am so scared to try something new though, because I can't take Vicodin or Lortab. I wonder what he will prescribe? I have tried Neurontin and Topamax before and they both made my entire body swell up & I couldn't stand it. I hope he will give me something that will help me and not give me any side effects.

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  • daphne
    replied
    maybe you can try some benadryl for the itch and it will also help you sleep. You need to get a different pain. Percocet is not the med for you. There are so many different choices. I also take lyrica 2x in the am 1x at noon 2x at bedtime it is for nerve pain. It works great and has very few side effects.

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  • HillaryD
    replied
    Daphne-
    Thanks for your reply. Percocet makes me itch from head to toe as well, but helps with the pain. I hate the itching! And, I also can't sleep when I take one. I do not have any Valium, but I take Clonazepam at night for Restless Leg Syndrome, and I know those two medications are very similar. I am hoping they will give me an install tomorrow, I haven't had one in such a long time and I need it! Thanks for the good luck wishes!

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  • daphne
    replied
    I hope your appointment goes well. I get vicoden and it helps. Percocet makes me itch from head to toe. Do you have any diazapam? (valium). That sometimes helps to calm the spasms if you take it with pain meds. also the heat and I sit in a hot tub. If it is still really bad when you see the Dr. tomorrow ask about an emergency instill. When I am really bad I get these 3x a week for a week or two and they usually help (may take a few days). I wish you good luck. If the Dr. is afraid to give you pain meds ask for the name of a pain management specialist. iI see one and get my meds every month. good-Luck!!

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  • HillaryD
    replied

    I was DX'd with IC in early 2003 & have never had problems getting pain meds for it until today. I've been lucky enough to not have a flare up for 6 months now, but one started yesterday. I just got insurance again, so I went to see a new dr today, just a general md, because I thought that maybe I had a UTI instead of a flare & I've also got a yeast infection under my breasts. I had an old RX of Percocet that I was given in 2005 when I had my Hysterectomy. This medicine is 2 years old and when I tried to take one a couple of months ago it didn't help at all. I showed it to the dr and asked if he could write me a new RX for it & he wouldn't. He wrote me for Vicodin, which I can't take & told him I couldn't take it & he still wouldn't write the Percocet for me. I am not a druggie, obviously since I've had this Percocet for 2 years now- was given #30 and still have 7 pills left. Why do dr's do this? Is Percocet that much worse than Vicodin?
    The only good thing I can say about this dr is that he got me an appt with the top IC dr in the state for tomorrow. I sure hope this guy can help me out some how. I have a friend that has seen him and she said he has no problem writing pain meds, so that gives me some hope. Now all I have to do is try to sit with a heating pad in this 100 degree heat and wait for tomorrow.

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  • dancemomof2
    replied
    Sure hope it works for you, I just knew how awful I feel on Ibuprofen when I use it.

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  • hdb1982
    replied
    I have only taken the Ibuprofen once since he rx'd it. I am on my4 dose of ELavil and am begining to have mild panic attacks again. I don't want to stop it though because I want to see if it helps first. If it does help and the panic attacks continue I will talk to my dr about going back on xanax. It seemed like my IC was a little better when I took xanax.

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  • dancemomof2
    replied
    Becareful with the Ibuprofen it cause alot of IC'er more trouble and could be your retention trouble itself.

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  • hdb1982
    replied
    Any dr who says IC is not painful is an idiot. If that is the case why is it also called PAINFUL BLADDER SYNDROM? I take loratab 7.5/325 4 x day( which is not a generic Vicodin it is its own drug) Neurontin 300mg 3 x day and on Monday I started Elavil 10mg 1 x day and Ibuprofen 800mg 2 x day. I am already having retention problems since starting the Elavil which is one of it's side effects. I think you either need a nes dr or a referral to a pain management clinic. All of the one's I have called do not treat IC but hopefully you will have better luck.

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  • kmvps
    replied
    pain meds and new doc

    hi everyone. just wanted to tell you my recent experience with my new doctor to offer you all some hope that there is someone out there that cares and will help. first of all in my last post, i told you that my uro had referred me to a pain clinic that i had been trying to get a hold of for weeks with no luck. well, it turns out that he had referred me to a clinical psychologist who does not have the ability to even write scripts. can you believe that? i totally agree that chronic pain needs to be attacked different ways (by learning how to deal with it as well as taking meds and physical therapy) but for him to refer me only to a psychologist really rubbed me the wrong way. I asked the doc when i finally spoke to them..."are you suggesting that my pain is all in my head?" of course not but narcotic pain meds were only detrimental and i needed to figure out another way of dealing with the pain. the uro did offer bladder stretching. where he would put me under general anesthesia once a month and stretch my bladder until it bled. sounds fun, sign me up!
    anyways, i went to another doc...i don't even know what number he is....but i love him. not once has he made me feel guilty about needing pain meds and he has actually done some research so he could better treat me. he first prescribed me my usual hydrocodone 10/500 4 times a day as needed but stressed to me that he really wanted to find a long lasting narcotic that would help. next visit he switched me to opana er. one every 12 hours. when that wasn't working he gave me the short acting opana to take for break through pain. i have never had luck with morphine products and called to tell him i was still in pain. he took me off of it (all over the phone) and put me back on the hydrocodone until i could get into the office to see him. then his staff called me the next week to see how i was feeling. we have discussed oxycontin and i think that is the next path we will go down when i see him this coming monday. he has also given me samples of cymbalta to help with fibromyalgia and the depression that accompanies chronic pain. i haven't started it yet. i am waiting to clear up a bladder and vaginal infection (yay!) and get my pain meds straightened out before throwing another drug on top of the mix. does anyone take cymbalta? if so, any luck or anything i need to be aware of?
    sorry this has gone on so long, but just wanted to offer the possibility of finding a compassionate doctor who wants to help. i have been through a long list of doctors, trying to find the right one, and a long list of medicines. right now, i feel like sometimes the only thing i can do is treat the pain because everything else i have tried to treat the ic has been unsucessful. if any of you live near wilmington, north carolina, i would be more than happy to pass along the name of this doctor because i know how hard it is trying to find one. best of luck to you all and i can't even explain how much i appreciate this site. i often feel like it is the only support that i have and that you all are the only ones who truely understand. thank you!

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  • Claredale
    replied
    Once I get through my doctor's nurse (she is young and very unaware of pain!), I have no problems getting pain meds from my doctor. I do go see him every month for follow-ups. I research every med that I hear about on here and other sites. I take my research to him and he actually listens to me. My doctor has several IC patients, so we are not "strange" to him. He is my 4th doctor. I would still be going to my previous one, but she is up in Knoxville now! She did recommend my current doctor and told me that he was very knowledgeable on IC.

    My problem is that I have the interstim implant, which really helps with my ferq/urg, but we no longer have a full time doctor in our area (I live in a large city!) that I can see to manage the care of my implant. My doctor's office has a doctor that comes in about once a month. I am afraid to get my settings changed since if they are off at all, I can't use my implant until he comes back the next month. When I had Dr. Ragi, there were times that I saw her 2 or 3 times in one week to get the settings just so.

    For anyone that has doctors that don't understand IC or don't believe that pain is related to IC, I truly pray that y'all can find a doctor that will be able to help you. As all of us know, we just want to live normal lives. It is not our goal to take pain meds to get a "buzz", but to continue with our lives! I can honestly say that I have never experienced a "buzz" by taking Lortab (not that I ever used drugs in my life!). If I am just stupid and don't know how a "buzz" feels, then I don't see what the big deal is for people to want to be an addict. All I do is take my meds, get ready for work, go to work and do the best I can at my job, then go home and get us much done in the way of house work and spending time with my family as my body will allow me to and then take the meds I need in order to get as much rest as I can so that I can get through another day. I really don't need much in the way of pain meds during the day, but when I do, I am so thankful that I have a doctor that understands!

    Hugs to all!
    Tracey

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