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  • #1

    Severe strong urges during/just waking up.

    Ever since I've been back from the ER monday night, I have near constant bladder pain, but it seems to get worse while I'm sleeping. I went to bed last night around midnight and woke-up 20 minutes ago or so and my bladder is killing me.

    It feels like I need to urinate so badly even though my bladder is empty, I think.. My catheter is draining, but the pain is going away.. If it doesn't go away by 8am, I'm thinking about going to the ER..

    Does anyone else have this problem after wakeing up from a sleep?..
    Tags: None
    • #2
      grouphug grouphug grouphug sounds like you may have a uti or just flaring. Just let us know how you make out sweetie. I am flaring also with groin pain and not fun at all. gentle hugs and healing thoughts coming your way. Hope you feel better soon.
      Hang in there , There is hope.
      There is hope. Prayer works.

      Love, Debbie

        Comment

        • #3
          My best suggestion would be a trip to ER --- it could very well be an infection from having a catheter. I hope you're able to get rid of it soon.

          Warm healing thoughts,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.           [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

            Comment

            • #4
              When I went to ER last saturday, they said I had a trace of infection and gave me Levaquin, which caused my catheter to clog, but I did finish the five days worth, but the medicine just seem to make the pain more constant while I was taking it..

              I have to wait till Tuesday before seeing my Doctor. The ER here isn't very helpful at all, they think everyone is there because they're drug addicts. They look at me like I'm a pusher just because I know what my desease is and tell them about it. meh

                Comment

                • #5
                  There is little else that makes me angrier than docs/ERs that act as if we are drug seekers simply because we are knowledgable of our bodies and our disease. For cryin out loud, can't anyone have legitimate pain anymore???grrrrrr I am sorry to vent, but Coyote, I hate the way you are being treated, and I feel so sorry that you are in so much pain. I hope you are feeling better soon grouphug
                  Wishing you the best, today, tomorrow, and always! Sheri G

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                    • #6
                      Coyote,
                      I always wake up with that feeling, I mean that is what wakes me up, then I go and usually it is dribbles. I am having another cysto with hydro on 12-29 to see if anything new is going on, I just finished my 12 weeks of elmiron bladder instills, and don't feel like anything is different, so here I am. I hope we can both find some relief, it is so discouraging to be treated badly like you were at the ER, it makes me think, "what if that person had a red hot poker put down there on them, then they would know how we feel". Sorry to be so rude, but I just wish people would try and understand what we are going through, and if they can't just don't say anything to us!!! Hope you get some relief soon, prayers and hugs to you. grouphug grouphug .
                      Kandy
                      Always try to do the right thing; it will astonish some people and gratify the rest- Mark Twain



                      DX: IC-2003, Systemic Lupus w/secondary Sjogren's-2009, Total Hysterectomy with BSO-2005, IBS-forever it seems, Renal Tubular Acidosis, Vitamin D deficiency-2008, Vulvar Vestibulitis-2002, Pudendal Neuralgia-2008
                      I also try and manage depression/anxiety, Migraines, Too many kidney stones to count-starting in 1991 to the present
                      I had my 1st urethral surgery at age 4, have had urethral syndrome from then on.
                      Failed treatments: Elmiron both instilled and oral caused severe increase in liver enzymes
                      Elavil and Ditropan-severe bladder retention
                      Currently on pain mgmt, lidocaine gel topically also gives some relief after initial 2-4 min burning when applied.
                      Prior treatment included pelvic floor therapy and TENS unit, both of which I still do as needed.

                        Comment

                        • #7
                          Coyote,

                          Maybe levaquin wasn't the right antibiotic, I hate to know you are in pain. I also know how the ER can be when you have to keep going back and back they begin to think your either a drug addict or a hypochondriac(sp). I would definately see my uro or my GP, there has to be something they can do. My prayers are with you.

                          Success

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                            • #8
                              Coyote, you really should have had a culture done to be certain you are on the appropriate antibiotic. Levaquin is one of the broad spectrum antibiotics and is frequently given to begin with while waiting for the culture results. I just hope when you see your doctor on Tuesday, you will get some relief.

                              Sending healing thoughts,
                              Donna
                              Stay safe


                              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                              Have you checked the ICN Shop?
                              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                              Patient Help: http://www.ic-network.com/patientlinks.html

                              Sub-types https://www.ic-network.com/five-pote...markably-well/

                              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                               [3MG]

                              Anyone who says something is foolproof hasn't met a determined fool

                                Comment

                                • #9
                                  You should always finsih your antibotics no matter what. I am on cipro and I don't think the cipro helped my uti. It helped and now it is back full force. I need to get another culture done and I can call and see if the urine grew anything. sometiimes my urine doesn't grow anything and it is the ic acting up. but I did have a small uti a week before Christmas when I saw the uro then. Please let us know how you are doing. gentle hugs and healing thoughts. grouphug grouphug
                                  Hang in there , There is hope.
                                  There is hope. Prayer works.

                                  Love, Debbie

                                    Comment

                                    • #10
                                      I have been having morning IC pain a lot recently....for me I think it is because bladder is most acidic since I haven't eaten for atleast 8 hours (the whole time I slept) so lots of stomach acid but nothing in the stomach. Calcium has been helping me.


                                      I pray for you always and hope you find the answers you need. grouphug hi
                                      Faith, Hope, and Love,
                                      Katrina

                                      I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

                                      IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                                      or find me on facebook http://www.facebook.com/kat671?ref=profile
                                      Be the Miracle! & Pay it Forward!
                                      [email protected] please contact me...I am here to help!

                                        Comment

                                        • #11
                                          Had less pain this morning since I slept sitting on couch. Instead of laying down, I had back/head rested upon the arm of the couch and took off a cushion so the bottom half of my legs could bend.

                                          Thankfully, this little idea worked and gave me a better nights sleep, bladder pain was moderate, unlike the last few days in which is was almost severe.

                                            Comment

                                            • #12
                                              I always hurt severly in the mornings when I first wake and after I do pee, I have spasms for anywhere from 20 minutes to an hour. I take a pain pill as soon as I wake and try to hold it as long as I can until the meds kick in but the Lortab isnt strong enough.

                                              Im sorry for the way the ER treated you... I too have felt as if they thought I was a drug-seeker cause I knew what was wrong with me... its a shame that docs treat us this way.

                                              I hope you find some relief soon... please keep us posted.

                                              grouphug
                                              Morgan
                                              Morgan Stone

                                                Comment

                                                • #13
                                                  I went to the ER several months ago for severe pain. I wanted to make sure I didnt have an infection, they did a urine and a culture and everything was ok so it was just the old IC flaring up. The ER doctor looked at me like I was nuts when I told him that I already had pain meds and had already taken pain meds before I came and would just have to take more and do my other "comfort measures" to try to get some relief. He was floored that I wasnt there for pain meds. He didnt have any idea what IC was and left for a long period of time to do some reading on the disease. He treated me very professionally and compationately. Now if I asked for pain meds I dont know how it would have been. Those of us that need pain meds and have to take them are lucky to find doctors who will prescribe narcotic pain medicines to us. I would not be half way functional without them. I am sorry for your bad experience in the ER, it is all a too common experience. People just dont understand what we are going through and I feel that there are alot of others like us that are out there in terrible pain and undiagnosed. Hoping you have pain free days. Susan

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