Announcement

Collapse
No announcement yet.

Managing your pain

Collapse
This topic is closed.
X
This is a sticky topic.
X
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Managing your pain

    I encourage anyone with pain management issues to read the section on Pain and Flares in the Patient Handbook. The information found there will help you understand and deal with pain and pain medications. I also suggest reading the information on pain management in Dr. Robert Moldwin's book, "The Interstitial Cystitis Survival Guide," as well as the other references in the listing below.

    From the Patient Handbook:

    Living with IC - Pain & Flares
    "Do you have a pain management plan? Ask for help if you need it. You have the right not to suffer."
    Jill Osborne on Pain Mgt and IC**
    Your Rights and Responsibilities
    Types of Pain & the Pain of IC
    Measuring Pain
    Myths & Issues of Narcotic Pain Meds
    Pain Treatments
    Coping with Flares
    Pain Center Guidelines
    Dr. Dan Brookoff On IC & Chronic Pain-Oct. 1997 (short version)
    Dr. Dan Brookoff On IC & Chronic Pain-Oct. 1997 (full lecture transcript)
    Pain Resources
    Recommended Readings
    Understanding Pain
    Books on Pain Care

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

  • #2
    EXCITED! Just had first appt. with Pain Management

    Hi Everyone,

    I finally had my pain management appt.! Yah! Dr. prescribed Fentanyl patch and Vicodin ES for break through pain.

    Question:....I am a bit nervous to put that first patch on......Can anyone tell me what to expect? Will I get drowsy right away? Do you drive while you have it on? Dr. said to be careful and see how it affects me. I am so happy to have him as my new Dr..... but a bit scared too ya know?

    Also I go in July 9th for injection into my tailbone area. Anyone had this and if so did it work? How did you feel afterwards? Sore?.....Relief?

    Thanks to all who have posted and sent me Private messages in the past. I feel like this may be a godsend and what will finally keep me out of pain


    Jilly

    Comment


    • #3
      Glad you were happy with yr pain Dr. I have had pain patches before but different from the one you have been given, so carnt help too much sorry. I think it depends on the type of meds you are use to & the strength of the patch. I didn't have any probs with feeling yuk! but as they say everyones different.

      Comment


      • #4
        Pain management???

        My DR is making me my first app. with pain DR. It's taking me ahile to get around to this as I am going to have to travel a bit to get there but at the stage now now have to try anything.
        Anyway just wondering if any of you could help me out with what a pain managment DR does? I know it may be different here in Australia but any bit of any idea would be a help.
        Thanks Heaps
        Andrea

        Comment


        • #5
          pain management

          Hi...

          Anyone out there know of any good pain management docs in Arizona?(Phoenix). I was diagnosed with IC about 6 years ago, and am currently taking Elmiron and Pyridium. On a good day, I only urinate 25 times, on a bad one, 50. I am up at least 2 times at night, if not more. The worst times for me are during my period. That is the time I have the most pain, and even external pain. It can get pretty bad. Most other days, I have pelvic pain and pressure, but I can deal with that most of the time. My doctor does not like to prescribe pain medications, so I am thinking of switching. I have also heard a lot about Elavil and Atarx, meds that were never offered to me. I called yesterday to ask about those, and have not heard back. Any suggestions?
          Glad to find the board, my friends and husband have a hard time understanding this (husband thinks I just need to "drink less water").
          Most of the time I don't even say anything to him anymore if I am having problems because I don't like to complain. Oh, and does anyone else also have problems with chronic joint pain??

          Thanks!

          Comment


          • #6
            Thanks Donna.
            Lisa
            Current meds:Elavil, Lortab as needed, Vivelle dot hormone patch 0.1mg, estrace cream, lidocaine ointment, pepcid
            Diagnosis: IC in 1999 , IBS, Pelvic floor dysfunction, vulvodynia, vestibulitis, chronic low back pain, scoliosis, hunners ulcers on bladder, hysterectomy 2/08, fibro 3/08, sciataca

            Comment


            • #7
              Have you checked out the Mayo Clinic? They have specialists in everything!! Good luck
              Hugs,
              Curlette

              Drugs I use now:
              HM Contin 12mg twice daily
              2 mg Dilaudid for breakthrough pain
              Temazepam for sleep
              CES orally

              Drugs I have used in the past:
              Elmiron
              Elavil
              Gabapentin
              Vagifem
              Lomotil
              Ativan
              Buscopan
              Demerol
              Flexeril
              Way too many to list!!!!!

              Medical History:
              Have had L4 laminectomy, L4,5 & S1 discectomies, cholecystectomy, appendectomy, gall bladder removed, nasal surgery for accute sinusitis, severe,endometriosis resulting in a total hysterectomy. Also diagnosed with IC, IBS, severe spinal stenosis, severe osteo-arthritis, I wear hearing aids in both ears due to an earlier "abusive marriage". I have Hepatitis C Type 1b, have had this for over 3 decades, this has affected my liver and immune system. Had a blood tranfusion when I was in the Middle East and we think that I got the Hep C at that time.They buy the "blood" there, and as it was so many years ago, they didn't even know the disease existed.I have lost over 60 lbs since my botched hysterectomy where they had to go in again and remove 4 feet of my colon where they had mistakenly stapled it through. I've shrunk from 5'9 to 5'6 because of the osteoporosis. When they first diagnosed me with IC, they found out that my bladder is only 40% the size of a normal bladder, which explains why I have to pee so often, even aside from the IC! I Have had two hydrodistentions, so far, but will need more on a regular basis. We all need to have faith that they will find a cure soon.
              I believe that if we can reduce our stress, learn better ways to cope, we may have a better chance of dealing with this!!!

              Comment


              • #8
                Jleblanc,

                Did you ever get any names for Pain Drs. in Arizona? We are planning on moving there in late Aug. or early Sept. and I will be needing new Drs.

                Thanks!

                Comment


                • #9
                  Urologists in Az

                  Hi jillyg5661,

                  I did not specifically find a pain doc, but I did find a great urologist willing to actually acknowledge and treat my pain. She has also offered my some treatments that I was never offered before. May I email you her name?

                  Comment


                  • #10
                    Pain Management with new family

                    OK friends, this is a weird one.

                    I'm newly married with now 3 step children. My step daughter is turning 11 today and we are supposed to be taking her out for dinner, but I'm in intense pain. I really need to go home and take some medication and go to bed. How do I get the family to understand?

                    Thank you,

                    Wendy


                    Comment


                    • #11
                      When you're on your period, try wearing pads instead of tampons. I'm only 24 and was diagnosed with IC when I was 20. I stopped using tampons about a year ago and have noticed wearing pads instead helps A LOT! Yes, pads suck, but I'd wear a diaper if it kept me from getting a flare up!

                      Originally posted by jleblanc View Post
                      Hi...

                      Anyone out there know of any good pain management docs in Arizona?(Phoenix). I was diagnosed with IC about 6 years ago, and am currently taking Elmiron and Pyridium. On a good day, I only urinate 25 times, on a bad one, 50. I am up at least 2 times at night, if not more. The worst times for me are during my period. That is the time I have the most pain, and even external pain. It can get pretty bad. Most other days, I have pelvic pain and pressure, but I can deal with that most of the time. My doctor does not like to prescribe pain medications, so I am thinking of switching. I have also heard a lot about Elavil and Atarx, meds that were never offered to me. I called yesterday to ask about those, and have not heard back. Any suggestions?
                      Glad to find the board, my friends and husband have a hard time understanding this (husband thinks I just need to "drink less water").
                      Most of the time I don't even say anything to him anymore if I am having problems because I don't like to complain. Oh, and does anyone else also have problems with chronic joint pain??

                      Thanks!

                      Comment


                      • #12
                        Pain Management Appt

                        I had my first pain management appointment this week, and I am SO glad I went this route! My uro decided to send me. For the first time in a LONG time, I don't feel like I am taking large amounts of pain meds (I was assured I was not). My new pain doc left my dosages as is for now, just increased the neurontin I am on. Hope I get used to the daytime dosage, because I can't stay awake right now-good thing I am a stay at home mom! When I asked her how much was "too much" she said it varies depending on the individual. What I am getting at is that no one made me feel guilty, or like a drug addict...this is what they do-they help people in pain to have a better quality of life. I take a long acting pain med with meds for breakthrough, and not once did anyone in the office make me feel guilty (unlike some of the nurses in my uro's office), or make me feel like I was taking too much. They are just there to help. I am so relieved. They will NEVER let you run out of meds...they will never leave you hanging. So if you have constant pain like I do, do yourself a favor and find a good pain management practice!

                        Comment


                        • #13
                          Patient Handbook

                          ICNDonna,

                          How or where do I access the Patient Handbook you mentioned? Thanks, SusF

                          Comment


                          • #14
                            Hello Sus
                            You'll find a link to the patient handbook below in my signature

                            Comment


                            • #15
                              meds for pain

                              I have a new uro who prescibed "Gelnique" to alleviate spasm. I had a huge flare after 3 applications. Has anyone tried this med?

                              Comment

                              Working...
                              X