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  • David White
    replied
    I know where some of the "YOUR AN ADDICT" comes from and how awful it can hurt

    The little beady eyed doctor in the emergency room in a small town where I lived stood in front of me one night and said "What is IC?" and I think you need to go home and take SOME TYLENOL and quit pill seeking. This was told to me one night about 11:00 P.M. the first year I was diagnosed with IC. All I could do was cry.

    The mean, cold pharmacist in the small town where the drug crime is high that throws your Oxycontin at you when you get it filled. This was done to me also.

    Once before I was diagnosed I had a lot of blood in my urine and incredible pain, I went to a doctor who came out and told me that I was "PILL SEEKING"

    Thank god I finished law school and got the hell out of the small town of Selmer, Tennessee.

    Now that I have a good urologist and a law degree I dare the bastards to try and make me feel guilty ever again because I have a disease. But at one time, I felt guilty because I was sick and needed pain meds.

    How awful!!!

    Leave a comment:


  • Krowe5656
    replied
    Julie:
    I know exactly what you mean! will this doc be educated about ic or will i have to fill 'em in? will the doc listen to me and be willing to learn what i know? i too am so tired of the battle. i wish i only had to see a doc once a year for a physical not once or more a week. i would give up all the pain meds in the world for a life free from docs and pain. this is what i don't understand about docs who treat people in pain like druggies. i mean, do they honestly think we enjoy having to live like this? don't they understand we would rather be camping, skiing, biking doing the things we love? not to mention what it would be like to take a shower w/out pain or do the laundry or dishes. right? gosh you realy hit a spot w/me. it's just that i know just how you feel. it's so frustrating that so many docs/people don't understand or get it at all. take care and hang in there! you're not alone. Lv. Kara

    Leave a comment:


  • Krowe5656
    replied
    To All:
    i read everyones post. what a bunch of wonderful post! it's been one of the best threads i've ever read. what an important subject. it's for certain a political one. it's too bad that it's become so political. when did doctors stop being allowed to be doctors? i recall when i would have to go to the ER and the 1st thing they did was treat my pain and make me comfortable. now, if someone goes to the ER for pain, they run every test in world and only if they can find a reason or proof of the pain will they consider giving something for pain. it seems a lot of docs have become just as afraid of addiction as many pain patients. ignorance isn't bliss. so, god bless you (again) pain_man for a wonderful post! you seem to always know just what to say. have you considered writing a guide for the IC patient? i think if you wrote it, it would be a great success. my hat's off to you! oh, and what a wonderful wife you have! everyone else: ditto w/the post you all placed as well. take care all. Lv. Kara

    Leave a comment:


  • jeanniebug
    replied
    I was just sitting here today wondering if my taking hydrocodone was ok, if I am physically addicted. I was surfing the net and getting myself all worked up when I hopped back onto the IC website and saw these posts. My wonderful new urologist who I am eternally grateful to have found in my new location, (after going through about 8 unsympathetic robot urologists in Chicago) has agreed to prescribe me 15 hydrocodone tabs at a time (500 mg each) for my severe flare ups. Well due to a recent back injury for which I'm currently in physical therapy, I've been given more hydrocodone than usual. My urologist is aware of it all. I've been cutting the pill in half and taking 250 mg to 500 mg ONCE per day, whereas the prescription bottle says take 1-2 whole tablets every 6 hours. I've been on the 250 mg per day for about 2 months now, and I was all worried about it. I only take the half a pill around bedtime, it helps me sleep and takes the edge off the "rawness" I feel in my bladder at the end of the day. Sometimes I take it in the middle of the day it just depends. I am not working right now due to pain problems, and I am relieved to see that I am probably not addicted..maybe dependent as you all have said..but I don't think I'm addicted. I don't feel the need to "up" the dose and do skip a day here and there, and I'm not in it for the "high". My urologist told me flat out that he did not think I should just sit there and suffer, he believes in this IC pain and feels pain meds should be used for chronic pain. I even tried to argue with him I have an addictive personality (i.e. cigarettes, drinking alcohol pre-IC diagnosis of course) and probably shouldn't take the hydrocodone. He said most people who take pain meds for chronic pain don't get addicted. Even after he said all that, I decided to worry about it out of the blue today. So thank you pain man and everyone else who posted. Sometimes I have to remind myself that I didn't ask for this IC, and quality of life on a daily basis is something I deserve.

    Leave a comment:


  • CharAnn74
    replied
    My uro thinks the exact say way pain man.....thank god.

    :woohoo:


    He manages all my pain meds, and as long as I do not get them anywhere else he will continue too, and I have never gone without since I have been with him.He is a lifesaver.My first uro would not give me anything at all, in fact told me my IC pain was from IBS?!?!?!

    He also wrote some things about chronic pain and pain meds.Something along the lines of :That if someone is in chronic pain and does not get the medication they need to control the pain, they will appear to be a "junkie" to a doctor, as they are nervous, and desperate cause they do not have the meds to control their pain.

    I know I had my reg doc thinking that at first, since my uro would not give me pain meds.She was on me about finding a pain clinic and what not, telling me no more pain meds from her.I was desperate, I was hurting.

    Now that I have what I need, I always have more than what I take on a daily basis, and I never run out of the script before it is time.And I am alot more calmer, and happier knowing I have the pain meds.
    Last edited by CharAnn74; 08-06-2004, 04:37 PM.

    Leave a comment:


  • MissMary
    replied
    Hi Guys hi I have an appointment on thurs with a pain management doctor. I am excited at the prospect of a better life and I'm also nervous. What if this doctor doesn't understand ic and pain it causes ? So, I'm a hoping and a praying that relief truly is in sight !

    Leave a comment:


  • Scott McCrea
    replied
    Excellent post Yankee Candle in response to Julie's doctor woes.

    I completely agree with you. A lot of doctors think getting thru Med School endows them with godhood.

    Wrong!

    We are so on the same page. You have to demand--albeit with however much diplomacy the situation requires, you can't be a boor or a loud mouth--what you need. First prove that you need it; then find the doc who "get's it." It can be a tough row--I went thru two pain docs before I finally found my ortho! He's also a practicioner of Chinese medicine and alternative medicines as well. (For those of you in Rio Linda, this means he's Chinese as well.)

    They true, righteous docs are out there; it just takes some looking, not unlike the search for a spouse, to find them: sometimes it's luck, sometimes it's knowing the right people, sometimes it's happy accident.

    By whatever method, you can get the care you need--if you've got the insurance/money.

    Take care!

    Leave a comment:


  • whip06
    replied
    After reading all of you posts I wish you all had the same primary as I do. He is totally wonderful and supportive. He understands pain and the need for medication. He actually "yells" at me for not taking what I need to. Being an RN I certainly understand about addiction and this was one of my major concerns. My MD assures me I will not become addicted with the type of pain I am experiencing, but will benefit from these meds. He says "that's what they are there for, take them when you need to." I have also seen a pain specialist and he totally agreed with my primary.

    Wishing all of you days as pain-free as possible. Take those meds when you need them!

    Jeanne D.

    Leave a comment:


  • Pisces228
    replied
    Quick reply, as I'm at work.

    Good for you, Marcy! I'm so glad you're taking charge of your pain. Although I AM concerned that you still refer to having an "addition." Remember, it's not addiction. At worst you may become physically DEPENDENT, which is a physiological thing. But NOT addicted. Addiction is a mental state of mind more than anything. "Dependent" is not a bad thing if pain medication HELPS you to live a more normal, FULFILLING life. My husband functions at a MUCH higher level on pain medication than off of it. It truly helps him and, in turn, helps US as a couple and a family. Remember: it's about LIVING WELL, not just EXISTING.

    Leave a comment:


  • YankeeCandle224
    replied
    Julie,

    I can't believe your doctor. He of all people should understand the amount of pain you are in.

    I understand totally the feeling of finding yet another doctor, telling the whole story of your illness to them, and wondering what they will think, or do.

    I wrote somewhere that the hippocratic oath says "FIRST, do no harm", by not treating your pain he is causing you harm. You may call and mention that to his nurse. You have to be bold, and stand up and say "LOOK, I am a human being here, THIS is my problem trying to find a pain mgmt doc, and I need YOUR help til I see the new doctor.

    I have had so many doctors try and back me into a corner. I let them to begin with because I was so sick from the fibro/cfs, and my plethora of medical problems that I was too afraid to stand up for myself and much too sick to fight it out.

    I wish you the very best, but HATE to hear that anyone, ANYONE is in unnecessary pain. It ****** me off frankly.

    I got very lucky with my pain doc, he was referred to me by my orthopedist, who was checking my back to see if I needed surgery. He knew I was in a great deal of pain that was not being attended to and told me of this pain mgmt doc. I was afraid, just like you, one more doctor, sigh!

    But, it turned out great, and though it may take time to find the right combo of doctors, it is well worth the fight. It's your body, you deserve to be treated like a human, and the medical community often treats us worse than animals. I LOVE animals and have a mini zoo, but if they are in pain, they get meds, right on the spot. It's unbelievable.

    If you ever need to talk to learn how to talk to a new doctor or to find another if necessary, pm me, and I'd be glad to help.

    I said somewhere else that I was a self proclaimed doctor finder lol and can really help you to help yourself.

    Take care, know you are not alone as I have been where you are many times.

    Hugs, Sandy

    Leave a comment:


  • Vicki Brown
    replied
    ps....I am not addicted to any pills. I have always been aware that could happen so have been very careful. Every appt. w/ uro we discussed because he doesn't want me to either. I was just surprised he wouldn't refill.

    Say a little prayer the pain dr. helps.
    Julie cussing banghead

    Leave a comment:


  • Vicki Brown
    replied
    I have a 3 month check up appt. w/ my uro. next week. He had only given me enough pain meds, valium and maxidon for 2 months and told me to see a pain dr. Well, I dragged my feet because I am nervous about seeing another dr., will he understand ic and will his treatment work for me.
    Yesterday I called my uro. to get a refill on the above pain meds. and nurse called me back and said dr. told you to see a pain dr. so he won't refill those meds. Appt. w/ pain dr. is next week, I had made the appt. but this pain dr. has a long waiting list. 3month check up w/ uro. is also next week.

    You know, the last thing I want is more drs. I wish I could just wake up one morning and be healthy and thin!!!!!!!!!!!!!!!!

    To make matters worse, my back went out on me yesterday. This happens every once in a while and gradually goes away. If any of you have had your back go out you know what I'm talking about. Anything can cause it, this time I bent over just a little bit to put my wet hair in a towel after stepping out of the shower.

    Thank you all for listening!
    Julie banghead banghead banghead banghead

    Leave a comment:


  • marcy
    replied
    Hi Pain Man and Mrs. Pain Man. I just hung up the phone with a pain clinic. I have an app't next Monday afternoon. Now all I have to hope is that Humana gets my referral pronto. They are usually so slow. But I'm hoping. Thanks for all your help. Have a great day.
    M in Georgia kissing

    Leave a comment:


  • marcy
    replied
    Thanks for answering Pisces 228. I was diagnosed 6 years ago and I'm waiting to have InterStim done. I did make a call this am to a pain clinc and am waiting for them to call me back. My urologist has been helpful but I get the feeling he feels uncomfortable writing more than 30 pills a months. I do understand his concern, but I'm more worried about me. I'm sorry for your husband's pain. My husband can certainly relate to what you are going thru. Like you, my husband is very supportive and loving toward me an my addicition. I don't know how I would handle all this pain if it wasn't for him. You sound like the same type of person. IC patient's appreciate all the understanding and care we get. So thank you for taking the time to write me back. Now all I'm waiting for is a return call. I hope you and your husband, and all IC people have a wonderful day, or at least, a better day.
    M in Georgia hi

    Leave a comment:


  • Scott McCrea
    replied
    As for the post quoted by our Candle (whose flame I hope lasts many, many, many more nights; in contrast to Edna St. Vincent Millay)...

    I feel bad for Veteran User. Some people just aren't going to understand. "You're taking Percocet! You're a junkie!"

    And this attitude is fed by media hype and government propaganda.

    To the poster who was worried about being "political" on the "War" on Drugs, don't be.

    Opposition to the war on drugs is bipartisan. I'm a staunchly conservative Republican who has to turn Left to see Ronald Reagan. William Buckley, the founder of our movement, has publicly advocated ending prohibition for more than a decade.

    Many Liberals are also coming to a similar conclusion.

    The War on Drugs helps only cops, drug dealers and politicians and corrupts the first and the last.

    But it also hurts pain patients who get lumped into the category of "drug addict" when they are nothing of the sort.

    I have also noticed the fashion among celebrities (most recently spouted by a certain singer with some serious issues and white glove) to blame their "injuries" for their addictions.

    There's about zero evidence to support this. Unless you have Elvis doctor (which you can't since he lost his license years ago), you've little chance of your doctor getting you addicted.

    Still, the media waits with breathless anticipation for the next drug scare. They whip up the hysteria machine not realizing (or, in many cases, caring) the stress they put on pain patients who now have to worry,

    "Will they take my medicine away? Will they make it harder to get?"

    Unfortunately, Veteran User, your pain pills aren't just your business. The Feds have records of every controlled substance (and all opiods are Controlled or Scheduled drugs under the "Controlled Substances Act of 1970"); your state police, or, if it exists, your state DEA, has records of every prescription.

    There is no more privacy. If you truly new the number of people who can see your medical records, they could fill a small stadium.

    But you are right, dead on, about one thing: keep negative people out of your life. It's hard enough not to be dragged down yourself; you don't need help with it.

    God bless you all.


    ***********************

    Usual disclaimer: I am not a doctor or a

    pharmacist. Nothing I write is intended

    as medical advice; nor should it be taken

    as a substitute for qualified advice. I

    am only writing from my personal

    experiences in the hopes that they can

    help others.

    You should ALWAYS consult your docs

    before changing anything about your

    treatment regimen or taking any new

    drugs--including over the counter ones.

    Leave a comment:

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