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  • still waiting!

    Hi everyone! I have been anxiously waiting for the phone call from the pain clinic. This is going to be my first visit. (if they ever call me) Can you please tell me what to expect? Do they do a complete physical or more tests? Do they take over the prescribing of meds right away or do I still have to call my uro? I would really like to hear some of your stories. Thanks
    DanaW

    "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

  • #2
    what they did to me was i went in filled out alot of paper work talked to a rn then waited on the doctor and he asked a hundred question my uro had already faxed him my paper work and he changed my meds then.
    then we planned what to do the following week i went back for a nerve block i told him the pain meds was not working. so he changed them again but everytime he changed them i had to go into the office. banghead finally i gave up my uro takes better care of me and understand ic better then they did for me. I hope you go to a good pain clinic that understands ic and can help you more then this one did me.
    sending you hopes prayers for a better tomorrow
    Rhonda
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.





    I have IC, but IC doesn't have me anymore!

    Comment


    • #3
      thanks for repying. I am not so sure that they have ever treated an IC patient before. I am the "first" referrel from my Uro. That alone makes me nervous!! They are supposed to call me tom. with my first appt. Thanks!
      DanaW

      "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

      Comment


      • #4
        Hi Dana,

        Was wondering if they called you??

        Hugs and love,
        Jess
        Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

        Comment


        • #5
          My uro referred me to pain dr. whom I have seen 2x. First time lots of paperwork and changed meds. I had a reaction so I went back the next week and he changed meds again. I return tommorrow and will tell him the meds knock me out and i've been in a fog. at least with the valium and maxidone from urologist i could function and not sleep all the time. Also, changed antidepressants so last 3 wks. have been sleeping. Some days i didn't even shower which isn't like me at all.

          He said there are LOTS of treatments so i'm extremely anxious to see what's next. banghead

          Comment


          • #6
            update
            Last edited by Zipper; 06-20-2007, 06:15 AM. Reason: update

            Comment


            • #7
              Thanks for your replies. Jess, I still havent' heard from them! She told me last Friday that I would get a call on Monday. I really think that I am their first IC'er. Do you think that they can do a good job for me, if they have never treated someone with IC? I do know that the receptionist said that the Dr. would be looking over my charts last Friday. And, she said to me, "you have quite a history" . I wanted to say Well, yeah....that is why I coming to you people!! lol I am going to call tomorrow and find out what is taking so long. frown
              DanaW

              "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

              Comment


              • #8
                Does anyone have a good story to tell about their pain clinic??
                DanaW

                "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

                Comment


                • #9
                  Hi Dana,

                  I can tell you that it really all depends on the Dr that you go to. Dont be dissappointed if you dont like him/her dont give up either just keep seeing different pain drs and you will eventually find one that is good and understanding to your problem.
                  I have a very very long history myself have had 9 abdominal surgeries over a 10 yr period and boy as far as drs go nothing surprises my anymore....lol But i do have to say that I finally did find the best pain mgmt dr and I have been seeing her for 7 years and that was way before I was diagnosed with IC dont even think I had it until about 2 years ago. Anyways my point is that you have to remember your patient rights when you go in to have your consult. Dont be affraid to tell him how you really feel or how bad you really feel cause if you dont they will not be able to treat you properly.
                  Hang in there and I wish you much luck.:p
                  Pls, keep in touch and let us know how everything went we all really care very much Your not alone just keep remembering that.

                  Comment


                  • #10
                    Your doctor should send the clinic some notes on you and the pain clinic doctor should go over this and talk to your doctor and both of them together should decide what would be best to do to treat you.
                    sending you hugs and prayers for a better tomorrow.
                    Rhonda.

                    p.s
                    Please let us know when they call you. You may want to call them that is what i had to do.
                    Medicine taken daily or as needed:
                    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
                    2. MS.Cotin 100mg 3x daily
                    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
                    4. Fentanyl 100 mg Change every 48hrs.
                    5. Gentamicin 80mg install after each rescue treatment
                    5 Leviquin 500mg self start as needed.
                    6. Klonopin 1 or 2 daily as needed.
                    7. Prosed/DS as 1 every 6hrs as needed.





                    I have IC, but IC doesn't have me anymore!

                    Comment


                    • #11
                      Unreal!!

                      I really can't believe this one. The Pain Clinic told my Uro. that they can't help me! I was totally shocked! I knew that I was their first patient with IC but, to turn me away? I talked to my (wonderful) nurse about it yesterday and she was shocked too! So, she told me that my Uro. will do whatever is necessary to help me. So, I am scheduled to see them on Monday. I think they will prescribe Neurontin next. I also need to get my meds changed or something. I am having to take 2 Percs every 4 hours and it barely helps me anymore. And, I don't like taking all that Acetamin. I know it is bad on my liver. Has anyone been turned away from their pain clinic before??
                      DanaW

                      "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

                      Comment


                      • #12
                        Never been turned away but I have turned away a few of them myself. I have never really found one that helped me. Hope your experience is different next time around.

                        Ginny

                        Comment


                        • #13
                          Dawn,

                          I hear you but you know what if that pain clinic does not know anything about IC they will be wasting your time they would not treat you the best way for IC. I had a uro refuse me. A lot of docs do not want to deal with this disease!! I just left a clinic where they did not know about IC they told me I would have to learn to deal with the pain and don't be a crybaby I just left for a new one hopefully they will help. Demand pain med it is just not fair

                          Franya

                          Comment


                          • #14
                            That does make sense what you are saying. But, I guess I just thought they help with treating chronic pain. They are supposed to be experts at pain meds. I am going to visit my Uro. on Monday. I am going to try Neurtonin. Hope it helps. Thanks for the feedback
                            DanaW

                            "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

                            Comment


                            • #15
                              Pain Management

                              I think at this point in my life if someone called me a crybaby I would turn around and sue them. I am not in favor of suing and I have put up with a lot in my life but this is absolutely uncalled for.
                              I'm sorry you had to go through that. It is certainly untrue.

                              Ginny

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