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how many pills are you prescribed, monthly?

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  • Scott McCrea
    replied
    Donna mentions ultram.

    I'm very happy she gets relief from it.

    It nearly drove me nuts.

    I began to hear auditory hallucinations (first time in my life this didn't invovle a certain ergot fungus compound). I also began to grow incredibly paranoid (ironically enough I actually WAS right about what I paranoid about).

    The drug literally threw me for a ringer.

    So, if it's helping you, God bless you. If haven't taken it, or you're having similar problems--including severe mood swings--STOP TAKING IT.

    And think long and hard, if you haven't taken it before, whether you should.

    The drug is chemically classed as an NSAID (i.e. like ibuprofen, Alevel, Orudis, etc), yet it binds with morphine receptors in the brain and brain stem.

    There have all been numerous anecdotal reports of addictions, severe addiction, to ultram. Class actions are being prepared against the drug's maker.

    this drug is being used by some docs--my diagnosing uro for example--as a panacea to avoid prescribing narcotics.

    Don't believe them; it's no such thing. It's a nightmare in a small white pill just waiting for some of you.

    If it works for, I'll say again, God bless you.

    If you're having any of the above issues or anything else has changed with you since you started taking it, STOP and ask for a REAL pain killer.


    PM

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  • Scott McCrea
    replied
    TO ALL TAKING NARCOTICS COMPOUNDED WITH TYLENOL--WHETHER PERCOCET OR VICODIN...

    There's a single-agent variety of oxycodon (NOT to be confused with Oxycontin which is time released!) called OxyIR 5mg; I'm sure you've guessed, but IR means "Immediate release." That way you got the 5-to 10mg of pain med that you need with any hepatic (liver) complications.

    I used to get 360 of these per month with a sig of 1-3 every three to four hours. Plys Oxycontin 40mg twice every eight hours.

    But if you're doing well on the low doseage, stick with it!

    Just one word about the OxyIR: they aren't routinely carried by pharmacies unless they deal with a lot of cancer patients. Sometimes hospital pharmacies or those real close to hospitals with have them.

    So, I would suggest that, two or three weeks BEFORE your appointment, fax a request to your pharmacist--after talking to him--to order them for you. If you're getting qty 120 10/325s, then 240 5mg OxyIRs won't be out of line. And, ask him to hold them for your.

    I spent over $13,000 at Walgreen's last year; they treat me VERY well, I can assure you. So, if you're bringing regular business, they should be happy to accomodate you.

    Just remember to order ahead of time so you don't get to the phamacy only to be told, "We can get these in a week." My way, they wait for you. The other way is like playing slots--odds are, you're gonna lose.

    Also, discuss with your Doctor--BEFORE LEAVING THE OFFICE--if he'll be willing to swap scripts if, for whatever reasons, you can't get the OxyIRs, if he's cool with writing your usual script. That way, if there's a problem you've already got it solved and simply have to drive it back to Dr's office and switch scripts; have done it myself a couple times.

    Also, beware HOW the script is written.

    It should look like this:


    OxyIR 5 mg
    #240 (?)
    Sig (optional, not all doctor's write this word): T-TTT* PO prn pain q 3-4 hrs.


    *The "T's" will have little dots on top of them; or he/she could write 1-3 in Indian numerals; this doesn't matter just as long as the number to be take is written.


    In English, this means: Take 1 tp 3 OxyIRs by mouth as need for pain every three to four hours.

    PO=by mouth; q = every; prn=as needed.

    Pain_Man

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  • Tami Stambaugh
    replied
    I hate that you have such a hard time with your insurance co. I guess I have been blessed because I haven't run into any problems with them not paying for meds. Just like today---I was out of my Loratab and have an app. tomorrow at 1:30---I called and told one of the nurses that I needed some called in just for today until my app. Anyway, my doctor was in surgery and the other nurse said that she would have to clear it with another doc. and she would call me back--when she called me back she told me that the other doctor wasn't comfortable calling something in and she would have to put in a call to my doctor (who was in surgery all day) to get it approved. Within 2hrs. she called me back and they had called in my meds. I don't know what I would do without him, he is truly a lifesaver. I have had a hectic day and had to dip ice cream for 3 1/2 hrs. at my daughter's basketball game for the cheerleaders tonight. I survived thanks to Dr. Gray. I wish everyone could find a great and dependable doctor like him. My heart goes out to all IC patients who have to go through hell and back to get some relief for this painful disease.

    Hugs to All!!!!!!!!

    Tami grouphug

    Leave a comment:


  • Solfish37
    replied
    Tami

    The correct spelling of the stuff is Avizna and yes it is oral 1x /day...just came out. My insurance will only pay for MS CONTIN no matter what. They think morphine is morphine is morphine, even if I have to take a 12 hour pill every 8 hours to relieve the pain. They wouldn't pay for Oxycontin either. They are on a formulary plan and say those other meds are prior approval but even if the doc calls and says this is very much needed by the patient and works better, they say, tough bananas. It was good....I felt much better and less sedated on it. If my pain gets much worse, they may have to move to patches 'cause I don't very many other options.

    Good luck.....

    Leave a comment:


  • alana rose
    replied
    My uro gives me anywhere between 40-100 empracet a month. Really, I believe it depends what kind of mood he is in. My gp doesn't think twice of giving me stronger pain meds-she always says that I need quality of life. My uro is against stronger pain meds, because it has a stigma behind it. Whatever, he doesn't have to life in pain 24/7. My gp is wonderful and suggested that I need to go to a new uro-because of my current uro's attitude. Anyway, my gp told me that she was going to put me on fentynl patches-since I have the guilt of taking numerous empracet a day. I've just had a dmso treatment and pain is still there, not as bad though. So, if and when, the terrible pain returns she will give me a prescription. alana

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  • Tami Stambaugh
    replied
    What is Avenza??? I have never heard of it. Is is new???????? You only have to take one a day?? How come your insurance won't pay??? What kind do you have????

    Tami

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  • Solfish37
    replied
    I take 30 mg of MS Contin 3 times per day, plus 5 mg of valium with the MS contin. I also take Atarax, Topamax, and someother "cocktail" stuff. They started me on vicoden. (the initial uro I had) That didn't touch the pain so aft er a weekend of pure hell in my house in July I saw my Reg. doc who RX'd the MS Contin 15 mg 2 times per day. it was ok but Iwas still in incredible pain so he messed with the morphine dosages while I got a new a uro who worked on other stuff. Insurance wouldn't pay for Oxycontin or Avezna ( I Loved the Avezna) the one pill every 24 hours. (Yes, I paid for 2 weeks to just see how it worked and it was wonderful but 90 bucks for 14 pills.) Docs keep messing with the pain stuff (tinkering I call it)

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  • marcy
    replied
    I wish I read this site earlier. I have been so guilt ridden with asking my uro for more that 30 percocets a month. Breaking the pills make them last longer but now that I've been on them for six months I need a stronger amount. On another board I asked whether or not I should be in pain management. Well after reading this site I'm making the call tomorrow. I'm so tired of worrying will he (my uro) fill my Rx this month or say I've had too many pills. I can't live like this. I'm sick of huring!! I'm going to make that call tomorrow. Thanks everyone!! kissing

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  • tcbc1989
    replied
    What a topic...it is amazing to talk to people that have such different reactions to different medications. I am a RN and was aware of the effect Tylenol had on the liver and was always concerned when giving patients pain meds with tylenol. My doctor just switiched me to Roxicodone which does not have tylenol in it. I am so thankful to have a urologist that is sympathetic to me about my pain. I had to sign a pain contract with him. I took it upon myself to keep a record of when I take my pain medication to see if there is a pattern or change. I take that to the uro when I go for my visits because I was so paranoid that they think I am abusing my pain medication...but of course i take it because i have IC!!! Why do i feel such guilt!!! tina frown

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  • Lara30
    replied
    I have to agree, people react so differently to meds that you never can tell. I started out on hydrocodone, then went to percs, after about 2 weeks they switched me to duragesic patches and I had one on for maybe about 4 days , ended up with such a severe migrane that I thought I was dying. I am now back on 10/325 hydrocodone , 160 a month, which works well for me and when it doesn't, they switch me back to percocets. Different things work for different people. It takes time working with your doctor to find what works for you and sometimes it's a combination of things but like the others here are warning you, be careful of the tylenol intake because it can be very dangerous.

    Leave a comment:


  • ICNDonna
    replied
    People react so differently to pain medications that it's impossible to predict how much relief an individual may get from a pain medication. For example, I can be in severe pain and a Vicodin will knock it within an hour. Ultram is also very effective for me. I understand that there are some who get no relief from the same medications that work very well for the next.

    I feel it's very important to work with your physician on pain control. And, if necessary, a pain center.

    Donna

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  • Biohazard
    replied
    hehe there are people here who probably couldnt get through one day on 30 percocet(well the percocet without the tylenol, you can kiss your liver goodbye if you took that much tylenol in one day lol)

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  • srwishert
    replied
    Ginny,
    The medication in the patch is absorbed through the skin and into your bloodstream, just as when you take a pill it is absorbed into the bloodstream through the stomach. People put patches in many different places for many different reasons.

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  • Ginny
    replied
    I have a question about the patch. Where on your body do you put it to get relief from the bladder?

    Ginny

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  • Scott McCrea
    replied
    First thing: I'm not a medical man. Nothing herein is medical advice. I only relate personal experiences for the benefits of others. I have had pharmacy training so I know a great deal about certain drugs, but again, consult your doctor before changing anything and always tell them all drugs legal and illegal you take.

    DanaW, I feel for you, I really do. You MUST find a Pain Doctor (get a referral from your uro, which shouldn't be a problem since most of them dont' like prescribing CII (e.g. Perkies, Dilaudid, Morphine, Duragesic patch)

    30 Perkies a month is a joke for an IC patient. Hell, it's an insult.

    As for those taking Viodin/Lorcet/Lortab, etc, you might as well be popping M&Ms or Smarties (admittedly better tasting). Vicodin is a "semi-synthetic codeine analogue." In non-scientific terms that means it does what codeine does with a different chemical formula.

    Vicodin's appropriate if you sprain your wrist at a softball game. 30 perkies would be appropriate if you gave birth or had a root canal. Maybe. But for chronic 24/7 pain? That's condeming you to torture. This doc should be reported to your State Med Board for malpratice.

    I took Oxycontin 20s, 40s, & 80s for several years. They never provided the wall to wall coverage I needed. I took Perky 10s until my Tylenol intake was getting dangerously high. Then I switched to single-agent oxycodone (not Oxycontin here) caps. That means no acetaminophen or ASA (asprin).

    DO NOT TAKE MORE THAN 4000 MGS OF TYLENOL A DAY. And don't take that for any extended period of time. Tylenol can be far worse for your liver than a hundred bottles of tequila. Just a dozen (at once) can put your on the Organ Donor's List. Many a silly little girl's attention "suicide" attempt with APAP has cost her her liver. I'm not saying never take Tylenol but its only appropriate for ccasional use; not treating chronic pain.

    Presently, I'm on the 100 microgram/hr Duragesic patch. BEST THING YET. It gives me a constant, steady flow of the drug and I don't have to remember to pop pills at regular intervals--which I never could; when you take enough legal dope on a daily basis to kill ten junkies, short term memory can get spotty. Because of this, I was getting spikes/troughs in my plasma levels which--as any narcotic dependent patient-- which does NOT mean addict --will tell you can be extremely unpleasant. I get a months supply.

    For breakthru I use hydromorphone or Dilaudid (it's first trade name). this is drug somewhat more powerful than heroin; indeed, it's a heroin analogue. {b}The Duragesic patch is 3000 (yes THREE THOUSAND) times stronger than Heroin so keeping them away from your kids (always, always, always, flush the old ones down the john) is imperative beacuse just a small amount could easily kill a small kid in mere moments.[/b] Some people think because its a patch it's not as dangerous as a pill. It's far more dangerous!

    Several derivatives of fentanyl--the drug in the patch--are used as general anasthetics. This drug has a powerful affect on the respiratory system, so if you use other "downers" make your doctor aware before slapping Patch No. 1 on. Like a firearm, narcotics will kill if not properly stored. ALWAYS WASH YOUR HANDS AFTER REMOVING OLD AND APPLYING NEW PATCH. With small kids, this is especially important--since we all know how ingenious they are at getting into stuff we don't want them to.

    Another excellent aspect is the very long 1/2 life (17-34 hours) which means if you forget to apply a patch for 12 hours--as I once did--you still get the benefits of the drug absorbing thru your skin. It's kind of a back up for misremembering the new patch.

    Finally, I also take Valium 10s to control my pelvic floor spasms (than you to Dr. Moldwin for that idea!!!) and this aids me greatly. Sometimes, I don't even need the breathrough meds, the Valium helps a lot by itself.

    Sorry this is so long.

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