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  • disability

    I am on disability in Canada. I was hospitalized for depression 3 times and finally diagnosed with IC, Fibromyalgia and Chronic Fatigue. The first attempt, I was told I had to appeal............I was sent to various drs. for assessment. Before I had my appeal ready, I was told they had reconsidered. I had a lot of input from my support system, drs., family, associations. One of the most helpful was The Interstitial Cystitis Association
    founder and president Vicki Ratner, MD
    their e-mail is and phone number 301-610-5300
    I hope this helps, you can e-mail me for more info, do not give up. All of my drs. were very supportive........bjm

  • #2
    thanks for the information i hope many find this helpful. grouphug
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.

    I have IC, but IC doesn't have me anymore!