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argh, Im so sleepy but I hurt.

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  • #1

    argh, Im so sleepy but I hurt.

    Last few days I've had problems getting sleep. Seems like no matter how sleepy I get, I can't get much sleep if any due to pains.

    Everytime I stand up or walk around or lay down in a bed or excercise the bowels, I start getting constant moderate urges to urinate. Wearing a catheter, I didn't have that problem until that last catheter I had clogged up and bladder expanded alot and I went through so much pain.

    Argh, so sleepy.. Gonna have to call Dr. Kent about this tomorrow.. I hope he can do something, because this is driving me crazy. Both the pain and the lack of sleep.. In the last 48 hours, I've slept maybe 3 or 4 hours. Not exactly good, grrrrr.

    I took a Lortab around 1:30AM and it's taking effect, but I just can't get so sleep. Instead, I still feel like I gotta urinate and I feel like I need to throw up, grrr..

    Hope everyone else is having better luck sleeping, because my luck has run out for now, grrrr.. cyas/tgc.
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  • #2
    Coyote,

    Your not alone, I'm still up to. It's 4am and I can't go to sleep. Everytime I try to lay down I feel like my heart is gonna pound out of my chest. I have a history of anxiety and panic attacks, I'm immune to valium. Hoping it will go away. Tomorrow is my only day off work and I don't want to sleep all day. Hope you get to sleep soon.

    Success

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    • #3
      Hope you two found some relief last night. kissing
      Kim

      Diagnosed August 2001

      Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

      Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

      I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

      *****************************

      “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

      “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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      • #4
        I had a bad night last night also, couldn't get to sleep but finally did slee. I have today off and now I can rest today. Hope you both are feelinb better and will be alle to get some sleep. I may go back to bed after breakfast. Sometimse I will fall alseep on the couch. grouphug grouphug
        Hang in there , There is hope.
        There is hope. Prayer works.

        Love, Debbie

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        • #5
          Must have been the night. I was not having bladder problems but a virus of some kind. Had a croupy cough and sore throat. Slept sitting up in a recliner in our living room.

          Hope you are both doing better.

          Jolene
          Jolene

          "Life is what happens when you are making other plans" John Lennon

          IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

          Information for Patients can be found here.
          http://www.ic-network.com/patientlinks.html


          Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




          Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

          "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

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          • #6
            I haven't slept much at all the last 3 nights. You would think after 4 hours of sleep in 3 days you would just fall over...lol I have no idea how I keep going. I think I'm at the point where I am TOO tired to sleep, is that even possible? lol Maybe we need to count something more relaxing than sheep.


            Kelli
            IC Angel: Proudly supporting the Children and the Elderly with IC.


            E-Mail: [email protected]

            http://www.myspace.com/lilmiss200595


            Revelation 21:4
            "And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."

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            • #7
              I hear that! You get to the point of exhaustion and cannot sleep. I've been having a week like that, until hubby went to work on the graveyard shift one night and I sprawled out and slept like a baby. lmao baby

              Are you on any sleep meds, Coyote? That might help with the pain, and get you to sleep as well.
              Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!

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              • #8
                I totally can relate to nausea with pain meds. We haven't found one yet that doesn't cause nausea for me. The only way I can take a pain medication is to take an anti-emetic with it.

                I hope you feel better very soon. I know this has been a very frustrating time for you.

                Warm healing thoughts,
                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

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                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.                 [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

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                • #9
                  Hi,
                  Hope you are all doing better. I do have a pill I can take at night for sleep, if I need it. It also seems to help the "spasms" I feel-as I usually get up 6-10 times feeling like I need to urinate, and of course it is drip, drip, drip... before I actually do go to sleep, even with the medicine.
                  Sending warm sleepy thoughts...
                  Kan
                  Always try to do the right thing; it will astonish some people and gratify the rest- Mark Twain



                  DX: IC-2003, Systemic Lupus w/secondary Sjogren's-2009, Total Hysterectomy with BSO-2005, IBS-forever it seems, Renal Tubular Acidosis, Vitamin D deficiency-2008, Vulvar Vestibulitis-2002, Pudendal Neuralgia-2008
                  I also try and manage depression/anxiety, Migraines, Too many kidney stones to count-starting in 1991 to the present
                  I had my 1st urethral surgery at age 4, have had urethral syndrome from then on.
                  Failed treatments: Elmiron both instilled and oral caused severe increase in liver enzymes
                  Elavil and Ditropan-severe bladder retention
                  Currently on pain mgmt, lidocaine gel topically also gives some relief after initial 2-4 min burning when applied.
                  Prior treatment included pelvic floor therapy and TENS unit, both of which I still do as needed.

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                  • #10
                    I've gotten sleep off and on today, I think the most I got was maybe a few hours..

                    Still having bladder pain. Feeling like I need to urinate, and I'm having a sore throat now with my nausea. Really getting tired of this so I scheduled to see my Doctor again Tuesday, because by than, I'll probably be ready to kill myself if I can't get any actual sleep by than, grrr.

                    I got sleep my sitting on couch and laying head to side on a pillow. Everytime I lay down in a bed, my catheter stops draining, dunno why. If I'm not in a sitting position, than gravity doesn't drain me, grrr. Didn't used to be a big problem.

                    Anyways, hopefully you all are getting better sleep than I am. I think the reason why my pain is getting worse, besides bladder pain, is because I may be catching a cold. That'd explain the occasional sneezing, coughing, and constant sore throat.

                    cyas/tgc

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                    • #11
                      Hey everyone, sounds like you all are going through a rough time right now, not being able to sleep can be exhausting and I feel for you all. Hope that you can get some badly needed zzzs soon. Hugs for all Iris. hi grouphug
                      Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.

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                      • #12
                        I feel for ya buddy...there is nothing worse than being sleep deprived, unless mabe being sleep deprived and in pain. Is it at all possible that the cath is somewhat clogged again, since you have to get in certain positions for it to drain...Do you irrigate it out yourself? Maybe you could try that. Otherwise, I would ask for stronger pain meds, and perhaps either a sleeping pill for at nite, or an antianxiety like xanax or ativan...that will keep your stress level down, and make you sleepy. I hope this cycle ends for you soon....seems to have been a rough one. You take care, and be well. Remember---there is always the ER if you can't wait til Monday. grouphug hi
                        Wishing you the best, today, tomorrow, and always! Sheri G

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                        • #13
                          Wow! It seems like there are a lot of us that can't sleep. But I am a night owl anyway. I usually don't fall asleep 'til about 3am or later. It is 12:47am and here I am typing. I like to write so that is usually what I am doing 'til then. Well I do hope that everyone finds some relief for their sleepness nights. Coyote if you have a recliner try sleeping on that. Maybe sleeping with your upper body somewhat elevated will help your cath drain. And maybe then you could get some sleep. grouphug kissing

                          Cali
                          Cali

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                          • #14
                            I have Lortab, which makes me very tired, but I just can't sleep because of pain.

                            Catheter isn't clogged, I think the reason is either a UTI that hasn't gone away maybe or maybe its because when I lay back, my catheter is sorta level, there's no gravity to make the urine flow from bladder to bag like when I stand or sit. Or maybe the muscles aren't as able unless I'm sitting. I dunno.

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                            • #15
                              Try taking Tylenol PM. It works really well. I have taken it for years, because of my FM. Good Luck
                              DanaW

                              "Don't quit when the tide is lowest, For it's just about to turn; Don't quit over doubts and questions, For there's something you may learn."

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