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  • udate on night sweets and chills!

    I saw my IC doctor today and explained to him about my hot flashes and waking up in sweats and chills. He said that even though I have had a hysterectomy this could still happen but them he said but you had a complete one. He said that usually women who keep one ovary go through this at some point and time at different ages. He also said it could be with drawls from my pain med. since I take my last dose around 7 or 8 everynight and go 12 to 14 hrs without taking them. Since I take Hydrocodone it isn't long lastin and that could be it too. He also took blood to check my estrogen levela and my thyroid. I just love him he is thorough. I am hoping that it is my estrogen level and they can fix it. If not the I guess I am becoming more physcially dependent on the pain meds. Oh Well, time will tell in a couple of weeks. I guess if it comes down to me getting up to pee at night I guess I will have to take a pill. Just another thought I sceduled my inner-stem surgery March.1 I went on and did this so they get the insurance rolling. It takes anywhere from 4-6 wks. to get it approved. That is my next step and hopefully cut back some pain meds. I will post this on the inner-stem message borad tomorrow. I am nervous and scared but they are having great results with the women in the clinic I go too!!!!!!!!! Wish me luck and keep me in everone's thoughts and prayers.
    [email protected]

  • #2
    Well, I just tried something. It is almost Midnight where I live so I thought I would take another Hydrocodene since I had already taken my ambien. Maybe my night and morning sweats won't be as bad throughout the night?????? I will keep you posted on how my night went in the morning!!! Good night Tami
    [email protected]

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    • #3
      I hope you get a wonderful night's sleep.

      Warm hugs,
      Donna
      Stay safe

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Hi Tami
        Hope you get a good nights sleep. Please let us know how it goes, I have had the night sweats, etc. before, and chalked it up to menopause, I am 39 today.
        Take Care,
        Kandy
        Always try to do the right thing; it will astonish some people and gratify the rest- Mark Twain



        DX: IC-2003, Systemic Lupus w/secondary Sjogren's-2009, Total Hysterectomy with BSO-2005, IBS-forever it seems, Renal Tubular Acidosis, Vitamin D deficiency-2008, Vulvar Vestibulitis-2002, Pudendal Neuralgia-2008
        I also try and manage depression/anxiety, Migraines, Too many kidney stones to count-starting in 1991 to the present
        I had my 1st urethral surgery at age 4, have had urethral syndrome from then on.
        Failed treatments: Elmiron both instilled and oral caused severe increase in liver enzymes
        Elavil and Ditropan-severe bladder retention
        Currently on pain mgmt, lidocaine gel topically also gives some relief after initial 2-4 min burning when applied.
        Prior treatment included pelvic floor therapy and TENS unit, both of which I still do as needed.

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        • #5
          Hi Tami! hi Hope you are well rested and dry as a bone this morning! Just a word on the interstim...Please know that I do not have interstim, but have read alot about it. From what I have read and been told, it does not help with pain, rather is more for the urgency/frequency issues. Now I may be 100% wrong, but that is what I understood to be true, so please check it out before you put yourself thru surgery! Best wishes grouphug
          Wishing you the best, today, tomorrow, and always! Sheri G

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          • #6
            Hi Tami.....hope you had a good night sleep! I know after my complete hysterectomy I had terrible night sweats and the doctor did blood work on me and found that I was not absorbing the oral or the patch form of estrogen he was givng me. So now I have to give myself a delestrogen shot every month! I am 40 now. I also have an Interstim device implanted to treat my urinary retention problem. Definately a success for me but it does not address the IC pain issue. I just had surgery last week to fix prolapsed urethra/bladder . I was in the hospital for 4 days. This surgery set off the most painful IC flare i have ever had in my entire life (i have had IC for 9 years). The uro doctor has given my Roxicodone to take every 3 - 4 hours for pain. It is the same as Percocet without the Tylenol to save my liver.
            I wish you luck with the Interstim surgery but remember it is not for pain. Some people do not understand that....If you need to talk I would be willing to listen! Tina C.

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            • #7
              Well just to update all of you----I did not sleep any the night I took extra pain med along with an ambien it did not work----I was up all night long. Then next night my niece had her baby so there went another night without sleep. I am very tired and achy today. Thanks a bunch for all the helpful thoughts. It is so nice to know people know and understand. I do know that the inner-stem is not for pain but alot of people have had great results with pain relief with the inner-stem. My doc. has explained to me that it is not approved for pain control but that by controlling the spasms and urgency that several people have had quite a relef of their pain symptons also. He also stated that is does not make the pain go away and that you probably will still have to take pain meds. maybe not as much. He also stated that everybody is different. He has given me several names of patients that have had good results that I can call. I just haven't done it yet. I also bought me a new matress, I had my first night's sleep on it last night. I am hoping that it will help with some of the discomfort that I have with my muscles during the night.!!! I hope everyone is doing well!!! Thanks again for everything!!!!!!!!! angel kissing
              [email protected]

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              • #8
                Hi Tami! hi Just wanted to take a quick sec and thank you for your post about the interstim and pain relief. What your doc told you makes a ton of sense, and I hope so very much that it works exactly that way for you. Agagin, thanks for cvlearing it up....who knows, maybe some day I will consider one! All the best, hugs, Sheri
                Wishing you the best, today, tomorrow, and always! Sheri G

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                • #9
                  Thanks Sheri----I have done a quite of bit of researh on the inner-stem. I will continue to do so for the next month. I have discovered more good than bad. I also went to an inner-stem conference with a Medrodonic Representitive who would be the one working one on one with my doctor. That was very informative and helpful. My doctor also said I could change my mind even if it was the morning of the surgery. I am going to read the message board on inner-stem therapy to see what else people have to say. I will keep you posted. Also I will probably be asking alot of questions in that site so look for my posts!!!!! Thanks!!!!!!!

                  Tami
                  [email protected]

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                  • #10
                    I realize everyone is different but I never had any sleep from ambien. After trying several other sleep aids I have been taking xanax for sleep for years and all my drs. know. I don't know what I'd do without it. I take it ONLY for sleep. As an IC patient with the classical other illnesses, ibs, migraines, fibro, chronic fatigue I also take several other medications including antidepressants. Bear in mind the antidepressants and xanax are prescribed by my mental health provider who's been treating me for 6 years and is very well educated in these meds. My uro is wonderful and we all work together. Just so you know, 12 years ago I had a complete hysterectomy. It took lots of experimenting with hrt to find the one that works best for me. Now that I'm entering perio-menopause new meds are needed by my gyno.

                    good luck and keep me posted. banghead kissing

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