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  • Everyday pain

    Hello,

    I don't mean to be rude but you guys are posting under the wrong thread. You should be posting under the tite Social Security and not under Pain Management.

    Marsi4

    Comment


    • Marsi, my apologies for going off the subject, as you can see a couple of us got sidetracked by SS issues along with pain (as we all know Social Security is a Pain) So...we shall keep it confined to pain. My pain is spread all over my pelvis, back to my rear, up to pubic area and on my pelvis floor. Sometimes my pain goes through my entire intestinal system...Ok..stay on subject well enuf?
      I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

      Medications I CURRENTLY take:
      90 mgs Ms contin (45 mgs Am/PM)
      Percocet as needed
      Topomax 100mg day
      Ambien 10 mg bed
      desipramine 25 mgs




      If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
      Albert Einstein

      Comment


      • Constant Pain & Religious Comments Don't Mix

        I was in constant pain and urgency for 3 1/2 years without a break, yes the right med combo finally helped, which is great, but IC still disables me. My attitude was extremely positive and depression didn't get in the way at all, but those things didn't decrease the pain one little bit because in the end it was the meds and quiting work to take the strain off my body that brought about the change to make things half way bearable.

        If attitude could cure even 30% of severe IC we would all be in Attitude Conferences. I know God is with me, but He didn't "put" IC on me because it is an evil wicked destructive disease. It is time to keep religion in the appropriate section -- please everyone! There is a section provided on this board for those purposes.

        ads

        Originally posted by Sheryle
        I'm so very grateful to say I don't have debilitating pain every day. At one time (3 years ago) I did have constant pain for almost a year. ...

        ...Attitude has so much to do with this disease. I don't mean to sound preachy but we have to understand that the Lord said He wouldn't put more on us than we can bear. We can use the suffering as a platform to understand those who are worse off than we and to have compassion...

        Prayerful blessings!

        Comment


        • I'm sorry for getting off subject. I'm new to the chats and have had a little trouble figuring out how/where to post. My pain is daily. I have several things "wrong with me", so my pain may be different. It aches in my abdomen like I've been pummeled by a very big person. My stomach is nauseated and has muscle fatigue. My right leg has a constant "charley horse" feel from my toes to my flank.. I have nerve damage from an Interstim unit being broken in an accident. It had to be removed--but the left one still works

          My pain specialist has me doing Bio-feedback and six 10/325 Norco and two Dilated a day.
          Last edited by ICNDonna; 10-14-2006, 02:22 AM.

          Comment


          • KissingKT...it's really ok...we do try to keep subjects separated but just by the nature of the disease, it does overlap. And religion is such a part of peoples life I think that folks truly do attribute that to any healing, if so, that helps in their pain relief. But yeah, some of us are bigger talkers than others....(hey, my life has become dull ) I tell you what...I got one sore pelvic floor this week. Yeeouch. Have had to take extra Oxycodone...

            Take care....
            I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

            Medications I CURRENTLY take:
            90 mgs Ms contin (45 mgs Am/PM)
            Percocet as needed
            Topomax 100mg day
            Ambien 10 mg bed
            desipramine 25 mgs




            If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
            Albert Einstein

            Comment


            • I seem to have low achy back pain that comes and goes, usually intensifies before bad flare.

              I have pain EVERY DAY. The pain that is debilitating it in my bladder region and seems to radiate all the way through my urethrea. I also feel LOTS of pain surrounding vagina, and urethrea (ie the walls or muscle I guess) If I wipe too hard or even be touched in surrounding area, when hurting bad, it makes it worse. Of course walking seems to "shake it all and hurt it too) Bladder feels like stabbing, back ache dull, urerethrea it burns or just peeing razor blades.

              Everyday, sometimes before or after pain, I try to urinate and in some point of stream it is like an open wound with salt. U know. Tense me up and it momentarily stops til I relaxe and "push it on out" This only makes pain come back some time afterwards varying.

              Best I quess I can describe, it has taken me 6 years to get dx so maybe I haven't done good job describing. Nothing helps believe me, not yet I have been given anything strong enough. I eat tynelol pm like candy 100 of em "might" last me week. At this point in the pain, I don't care about long term effects. I just want some relief really don't know how much longer I can keep living in pain. I can't hide it in my face anymore. It has gotten worse because no treatment until now.

              I do know that If I were paralyzed waist (above bladder) down, I wouldn't feel any different. Thank God I go to Dr tommorrow to set up cysto/hydro (suppossed to be with sedation). I don't care anymore, just stop it please, do what u have to do. Don't get me wrong, I love sex (hadn't had it in alomost 3 years though, no lie) I would forever give it up to be able to be a "somewhat normal" mommy to my kids. Well enough for now.

              Angie

              Comment


              • I really don't think we should be pointing out to each other if we are on the wrong posts or not. It doesn't bother me at all if someone gets off subject for a while, if it is something they want to say. I guess I'm very open minded and don't let that sillyness bother me the way it does some people. Yes, I know these posts are for certain subjects, problems, etc., but come on we are all here for support, please stop pointing these things out to people. You're being ridiculous. If you are not religious that's fine, deal with it. I'm not buddhist, or anything else but if someone makes a comment about it I certainly don't want to beat them up about it. Lets be nice.
                Karen

                Comment


                • Racergirl;I'm sorry about what's happening. Have you tried at all ice packs between your legs for short term relief and asking your doc for a referral to special PT who does Pelvic Floor Therapy? It basically is a more intense Kegal work out. It helps and it sounds like it would help you.
                  I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                  Medications I CURRENTLY take:
                  90 mgs Ms contin (45 mgs Am/PM)
                  Percocet as needed
                  Topomax 100mg day
                  Ambien 10 mg bed
                  desipramine 25 mgs




                  If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                  Albert Einstein

                  Comment


                  • Does anyone feel like they are carrying a basketball in their belly? I have pain everyday as well mostly severe burning and what feels like pain in my urethra. I also have this horrible pressure like I have a basketball sitting on my bladder. It's horrible. I do get a lot of relief from the pressure when I lay down, but who can spend their life in bed. I would be happy to do so if I weren't alone and didn't have a bum bladder. ;-)

                    Comment


                    • basketball belly....

                      Yeah...I have that feeling....course, it could be the cheesecake and vanilla icecream I, oh so love. Seriously though...I know what you are talking about, I think. Sometimes I have that sensation when my bowel is, well, backed up with no place to go (so, more of a Softball) When I finally can go, I lose that sensation but walking around with it, I feel very bloated and uncomfortable. (Not the "rush to bathroom cause I gotta go poopy" sensation but just, Ugh...like the commercial that shows the turtle plodding along...trying to make an analogy to constipation.)It puts alot of pressure on my pelvic floor and my bladder.

                      Ah...a place to discuss my poop. what fun and I don't even know what you all look like. Probl. better that way...ha, ha, ha

                      Tracey
                      I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                      Medications I CURRENTLY take:
                      90 mgs Ms contin (45 mgs Am/PM)
                      Percocet as needed
                      Topomax 100mg day
                      Ambien 10 mg bed
                      desipramine 25 mgs




                      If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                      Albert Einstein

                      Comment


                      • That hoarding the pain meds is a big deal for me too. I take Loratab 10, B&O Supp and Val Supp, Soma, Lunesta. There are times that some of the meds just don't work and there are am. One time my doctor put me on Loratab 7.5 (30) for 2 weeks. Has anybody tried to break one into a third??? I actually was calling and crying on the phone to my URO's office. I have an appt tomorrow, so I guess I am going to finally go on the longer acting drugs. I don't know why I am scared of them except for one time a doctor gave me Morphine for 1 time a day. Buy 2 or 3 the next day I was way up on the pain scale. I am so glad to learn on these boards that I am not the only one that hoards the pills. Sometimes when I am just hurting a little, I think just wait a little longer. When I hear the pharmacy clerk say that it wont be ready for a few days, I just sit there and cry. My husband does realize my pain, but can't figure out why I run out. It's because the doctor doesn't give me enough for my pain...

                        Comment


                        • Oh...I so love going to the pharmacy with my MORPHINE ER script that I take 120mgs BID and them saying "Gee, I'm sorry, we are out and we won't get anymore until Monday" and it's Friday. I Stare for a very long time and I'm sure make the clerk a wee bit uncomformtable and say "start calling some other branches...Do you understand I have been on this medication for 3 1/2 YEARS and will be violently ill if you don't get them for me?" They can't get to the phone fast enough. I'm a gentle and kind, quiet person by nature but when something A) occurs with my kids or B) My IC treatment I get nasty. I've actually gone in in the middle of a withdrawal episode. I can't remember why I was out, but they know me and I got a 2 days emergency supply just by how Iooked.

                          Tracey
                          I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

                          Medications I CURRENTLY take:
                          90 mgs Ms contin (45 mgs Am/PM)
                          Percocet as needed
                          Topomax 100mg day
                          Ambien 10 mg bed
                          desipramine 25 mgs




                          If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
                          Albert Einstein

                          Comment


                          • I know exatacly how you guys feel... Ive been there and done that... The terrible pains I had every day sunddenly vanished. The chronic yeast and uti's also vanished.. I praise god every day. Don't give up stay strong fight this diesase like a warrior there is hope....
                            Angela aka sleepyangel30

                            Comment


                            • I live by those 2 rules as well Tracey. I go back to the doctor today. I guess I will finally start taking the stronger pain med as long as I have some breakthrough pain as well! I know the directions say take every 4 to 6 hours. But the Loratab doesn't last even for the 4 hours, so how am I supposedto make 60 pills last for a month.

                              Comment


                              • makinit, yeah i have tried everything. last couple of months i have seemed to go down hill fast with constant flares, and just complete horrible pain and worn out feeling. it seem irratracable at times. last few days, i am having to strain. i feel like i just want to lay down and give up. that dr better give me something after he "see's what's going on" next wed. it won't be a pretty site. i can't take this stupid pain anymore. painic attacks have been awful, zanax helps but meds need to be increased, .5 aint cutting it.

                                Comment

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