I have pain every day. It ranges from a 6-10 on the pain scale. This has been going on for well over a year. My pain is worse in the morning. It feels like hot shards of glass poking around in my bladder and coming out my urethra. I also have severe bladder spasms that I feel into my back and down my legs.
My uro started me out on Percocet and Vicoden. When that wasn't controlling the pain he put me on Oxycontin. Then our insurance started refusing to pay for it! grrrr
So, I was put on MS Contin. Now our insurance pays for the generic Oxycontin.
I now take (generic) Oxycontin 80mg every 12 hours. Morphine Sulfate 10mg sublingual tablets as needed (up to one pill every hour), Vistaril 50mg at bedtime, Elavil 75mg at bedtime, Prelief before meals and Phenergan suppositories as needed for nausea.
I have tried the instills, Methadone, Elmiron, Neurontin and many other things... nothing has helped other than the narcotic pain pills.
My GP thinks that I need to increase my pain pill dose, however I am refusing to do so.
If and when the pain gets sooooo severe that I can't handle it I will reconsider.
It seems like my dosage now is extremely high, but I have been on them for a long time.
I should mention, I have had a second opinion for the University of Washington (Urology and the Pain Clinic). They feel the above treatment is all I can do at this time.
I do wish you well and hope that you can find something to ease your pain.
My uro started me out on Percocet and Vicoden. When that wasn't controlling the pain he put me on Oxycontin. Then our insurance started refusing to pay for it! grrrr
So, I was put on MS Contin. Now our insurance pays for the generic Oxycontin.
I now take (generic) Oxycontin 80mg every 12 hours. Morphine Sulfate 10mg sublingual tablets as needed (up to one pill every hour), Vistaril 50mg at bedtime, Elavil 75mg at bedtime, Prelief before meals and Phenergan suppositories as needed for nausea.
I have tried the instills, Methadone, Elmiron, Neurontin and many other things... nothing has helped other than the narcotic pain pills.
My GP thinks that I need to increase my pain pill dose, however I am refusing to do so.
If and when the pain gets sooooo severe that I can't handle it I will reconsider.
It seems like my dosage now is extremely high, but I have been on them for a long time.
I should mention, I have had a second opinion for the University of Washington (Urology and the Pain Clinic). They feel the above treatment is all I can do at this time.
I do wish you well and hope that you can find something to ease your pain.
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