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Out of the blue flare up!

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  • Out of the blue flare up!

    Help! My IC has been in remission for about 6 months or so and all of a sudden I am having issues again. It feels like a temporary flare up, but it's been almost a week with no relief. Prior to this, I was eating everything (well almost, no citric fruits and no alcoholic beverages) and have been fine up to this point. I read somewhere that paint fumes can bring on a flare up. Has anyone had this experience? How long are the flareups supposed to last? I am on 4 Elmiron per day and it's been doing wonders for me, until now. What is going on with me? Am I starting from scratch here and have to build back up like when I first started on the Elmiron?

  • #2
    Have you thought maybe it's an infection? Might be worth a check. And I maybe back to the basics on the diet. I hope you're feeling better soon.
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Being VERY still while lying down with legs elevated


    • #3
      My suggestion is get back on the diet.

      Stay safe

      Elmiron Eye Disease Information Center -
      Elmiron Eye Disease Fact Sheet (Downloadable) -

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help:


      Diet list:

      AUA Guidelines:

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

      Anyone who says something is foolproof hasn't met a determined fool


      • #4
        Thanks ladies. I am going to try both and hopefully get back to normal soon.