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LESS PAIN by doing EXERCISE! It works!

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  • LESS PAIN by doing EXERCISE! It works!

    I had a complete mental and physical breakdown in December. I couldn't handle the pain or instills 2x week. I stopped the instills. I was completely depressed about the chronic pain and being on a wait list for over a year to see a pain specialist. In January I did a 360. I joined two support groups at mental health to help me through the depression/anxiety of IC. Secondly, I joined a fitness challenge put on by my city. Yes...exercise! My program involves healthy eating plan, water intake, walking/running, water aerobics/swimming and circuit training. It is only two times a week for an hour each time. I am close to a washroom and my instructors know my condition. I am proud to say that I have pushed myself and exercised even thought I am in pain every day. Instead of sitting and watching my son practice hockey (on cold hard benches) I walk the running track and view him from above. I have even gotten to the point of running half the time. I am in less pain and have more energy. I have met some wonderful people in my groups that are struggling with their own chronic illnesses. Together we have a goal of walking. I urge people to try and exercise and work from something small and easy. My doctors are amazed and give me so much credit for my improvement. They say it is my "therapy" and I must continue because they can see the benefits. If I do flare...and yes I still do...I just take it easy and remember it to will pass. PM me if you want more details...I have been suffering with IC for a long time. My next goal is getting my diet under control...oh those cravings for IC unfriendly foods!
    Interstitial Cystitis: Elmiron and Hydroxyzine
    Depression/Anxiety: Remeron, Cipralex and Clonazepam

    *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
    * 2 hydrodistentions :

    * currently on "Nabilone" for pain management

    Taken the following:
    Gabapentin no relief but could tolerate it
    Lyricano relief but could tolerate it
    Cymbalta severe depression/anxiety etc.
    Topamax severe nausea and weight loss
    Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

    What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

    Other conditions...
    Vulvadynia (amytriptaline cream - no longer using to to irritation)
    Severe IBS
    Chronic Sinus pain (nasal rinse as need)
    Migraines
    Lower back and sacroiliac joint disfunction

    Allergies: Erythromycin, scents and detergents

  • #2
    That is great to hear. I, like you, couldn't stand the instills, stopped and started acupuncture and yoga. I even got private yoga help for breathing and relaxation. It has all helped so much. I can't wait until it gets warmer and I can get outside and really exercise. Great news! Thanks for sharing.
    treatment:
    -I follow the IC diet to the letter
    -acupuncture and chinese herbs
    -Prelief
    -UTA
    -instillations as needed
    -beginning yoga and specialized yoga for breathing and relaxation
    -Wellbutrin
    -Klonopin


    main symptoms: pain and burning

    Comment


    • #3
      exercise for pain

      Bladder,
      That's so inspiring. Really, not just being nice here.
      I think your post might be just what I needed to get me off my ample butt and out doing something, even if it's just baby steps.
      Thanks!

      Pennyjo,
      What type of yoga do you do? I would love to try, but it always looks so, well,painful!
      Laurie

      Comment


      • #4
        Laurie,
        I never liked yoga before, EVER. But I found a very beginning class that has mostly people over 50 in it and it's great! She knows we want it to be very basic, so she sticks to it. It's the first time I have ever liked yoga and I love this class and teacher. She works a lot on breathing and balance and strength, not tangling yourself up. I think that's the trick to find just the right teacher for you.
        treatment:
        -I follow the IC diet to the letter
        -acupuncture and chinese herbs
        -Prelief
        -UTA
        -instillations as needed
        -beginning yoga and specialized yoga for breathing and relaxation
        -Wellbutrin
        -Klonopin


        main symptoms: pain and burning

        Comment


        • #5
          exercise and pain

          Originally posted by penneyjo View Post
          Laurie,
          I never liked yoga before, EVER. But I found a very beginning class that has mostly people over 50 in it and it's great! She knows we want it to be very basic, so she sticks to it. It's the first time I have ever liked yoga and I love this class and teacher. She works a lot on breathing and balance and strength, not tangling yourself up. I think that's the trick to find just the right teacher for you.

          Hmm. Perhaps I will check out some classes in my area, (northern Va.) and see if I can find something like what you're doing. Sounds great!
          Laurie

          Comment


          • #6
            I exercise 4 days a week. I either walk on my treadmill or I walk outside weather permitting. I don't know if it helps or not but I figure walking or other activities help to strengthen our internal muscles including stomach and pelvis area. Muscle tone you would think would be helpful but I haven't seen much about it really.
            Cindi


            Gelnique for frequency/urgency - works great
            Macrobid after sex
            Prilosec, continuous birth control pills
            synthroid .088mg, mucinex-d, restasis

            Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

            Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

            IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
            AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
            AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
            Great treatment flowchart on page 19 of the pdf

            Comment


            • #7
              That's very cool, bladder! I know what you mean about the having more energy, it's almost like a 'high'! It also really helps with attitude I think. I also know what you mean about those cravings for IC unfriendly foods! UGH!

              When I'm having a flare (a rare event now) I don't exercise as it only seems to make my flares last longer. But otherwise I exercise six days a week, three days weight training/ three aerobics. Recently I replaced my aerobics routine with spending those afternoons volunteering as a dog walker at the local shelter. If anyone is looking to take up walking, I have to recommend seeing if your local shelter will let you take a dog or two (or 3, 4, 5 etc ) along. -A win/win situation.
              "The happiest people don't necessarily have the best of everything; they just make the best of everything they have."

              Comment


              • #8
                I've found that when I walk a couple miles a day and lift weights 2-3 times a week I have much less bladder pain and frequency. I was afraid the weight lifting would trigger a flare but it has seemed to help me alot.

                Comment


                • #9
                  exercise and pain

                  Originally posted by cec311 View Post
                  I've found that when I walk a couple miles a day and lift weights 2-3 times a week I have much less bladder pain and frequency. I was afraid the weight lifting would trigger a flare but it has seemed to help me alot.
                  Hi,
                  That is so interesting. Like you, I have been afraid to exercise because of flares.
                  If you don't mind my asking, were you doing the same activities before IC?
                  Thanks,
                  Laurie

                  Comment


                  • #10
                    My bladders been quite bothersome all day, I took an alkalizer in the hopes it may help, (didn't really) and debated putting off my walk. Well I'm glad I talked myself into going as it has helped. I think being out of breath is what distracted me from the pain. Sometimes it does make it worse, but like today it can help too. It's the only form of exercise I really like to do. I was out for about an hour. Not bad It's a good reminder that the rest of me needs attention too.

                    Comment

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