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  • Getting hooked on the narcotics?

    Ever since i've been taking the narcotic pain meds for my pain (percoset) ...my family is afraid i'm going to get "addicted" to these pills. theres not much else an icer can do for severe,almost everyday pain relief right?
    Newly IC diagnosed as of February 2011.

    Medications I'm on that seem to work:
    Zoloft- one once a day
    Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

    Failed Meds:
    Elmiron-after 4 months,digestive side effects got to be too much
    tramadol-allergic
    DMSO treatments(5-6)
    probiotics

    THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
    AROMATHERAPY-candles,incense
    Village Naturals Aches and Pains Peppermint Bath Salts
    Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

    ACUPUNCTURE/HERBS
    Significant pain relief so far.

    MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

    Add me on facebook Angela Hasic

    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Lord, make me an instrument of your peace;
    where there is hatred, let me sow love;
    when there is injury, pardon;
    where there is doubt, faith;
    where there is despair, hope;
    where there is darkness, light;
    and where there is sadness, joy.
    Grant that I may not so much seek
    to be consoled as to console;
    to be understood, as to understand,
    to be loved as to love;
    for it is in giving that we receive,
    it is in pardoning that we are pardoned,
    and it is in dying [to ourselves] that we are born to eternal life.

  • #2
    You may become dependent on your pain medications --- and you my need to work with your doctor to gradually wean away from them when they are no longer needed, but we have to do what we have to do to live a life. As long as you're working with your doctor and taking the meds as ordered, please don't worry.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I agree with Donna!

      Comment


      • #4
        I have to agree with Donna. This is what helps me keep going at work when I get a lot of pain.

        Comment


        • #5
          While I do not take narcotics regularly, I do take them when necessary and started out very afraid to do so. I talked extensively to my doctor and to a pharmacist about my concerns which made me feel much better. I would recommend doing the same. When I talked with them they both told me the same thing, one it is better for your body to take the narcotic than to take so much tylenol and advil and that as long as I am taking them as prescribed and for actual pain I should not worry at all. Again if you have concerns both of these people are great resources.

          Comment


          • #6
            thanks.
            Newly IC diagnosed as of February 2011.

            Medications I'm on that seem to work:
            Zoloft- one once a day
            Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

            Failed Meds:
            Elmiron-after 4 months,digestive side effects got to be too much
            tramadol-allergic
            DMSO treatments(5-6)
            probiotics

            THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
            AROMATHERAPY-candles,incense
            Village Naturals Aches and Pains Peppermint Bath Salts
            Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

            ACUPUNCTURE/HERBS
            Significant pain relief so far.

            MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

            Add me on facebook Angela Hasic

            ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
            Lord, make me an instrument of your peace;
            where there is hatred, let me sow love;
            when there is injury, pardon;
            where there is doubt, faith;
            where there is despair, hope;
            where there is darkness, light;
            and where there is sadness, joy.
            Grant that I may not so much seek
            to be consoled as to console;
            to be understood, as to understand,
            to be loved as to love;
            for it is in giving that we receive,
            it is in pardoning that we are pardoned,
            and it is in dying [to ourselves] that we are born to eternal life.

            Comment


            • #7
              Opiates, pain, addition & evidence

              Hi Angela

              I found the research pretty convincing that unless pain patients have a history of addictive behaviour, the risk is very low of them becoming addicted to opiates/narcotics.
              I found it really helpful to read & become informed about these studies, to help reassure about any addiction concerns. You might find it helpful too?

              There are also some biases - I thought this excerpt from one study was pretty insightful & surprisingly patient-centred!

              In certain circumstances drug-seeking behaviour may
              falsely appear to indicate the presence of addiction.
              Therapeutic dependence (Miotto et al., 1996; Portenoy,
              2004) may be present in chronic pain patients receiving
              adequate relief by opioids who are hoarding opioid
              analgesics to ensure that he or she continues to receive
              adequate pain control by ‘‘building up’’ a reserve of opi-
              oids (Compton et al., 1998). Such hoarding behaviour
              may also be found in other groups of patients, such as
              diabetics, who are dependent on insulin or in patients
              with angina, who obtain relief from nitro-glycerine.
              While ‘‘insulin-seeking’’ behaviour by diabetics may
              seem appropriate, opiate-seeking behaviour by pain
              patients are likely to be mislabelled as addictive.

              Pseudoaddiction is a related phenomenon and results
              also in ‘‘drug-seeking’’ behaviour (Weissman and Had-
              dox, 1989). Pseudoaddiction may occur in chronic pain
              patients, who are prescribed sub analgesic doses of opi-
              oids. These behaviours may include drug-seeking behav-
              iour, medication taken in larger amounts than
              prescribed, running out of medications prematurely,
              family concerns about the prescriptions, and withdrawal
              symptoms (Sees and Clark, 1993). These behaviours are
              not due to addiction, but reflect under-treatment of
              pain, and consequently adequate pain relief eliminates
              the abnormal behaviour.
              Here's the full link to that study - https://docs.google.com/viewer?url=h...i/P0607563.pdf

              This other study showed how medical residents' biases about opioid prescription for pain patients shifted one they received more education about the facts. Families can be re-educated too

              I also came across this eyebrow-raising thing. I had assumed that dr.'s who were opposed to prescribing opiate for patients suffering with pain were behind the times, that they just weren't up on the literature. But this is from 2009, and it's clinical guidelines for psychiatrists advising moving in the opposite direction. I think it's infuriating and insulting and dangerous -- it offers no suggestions for how patients are supposed to get through agony if they are denied painkillers. To me it seems that means they are implying the pain is somehow a choice. Very yikes. Thankfully much of the medical profession is progressive about pain. As some pain sites point out, veterinary students get more training about pain management than do medical students.

              Lisa
              Last edited by playethic; 03-02-2011, 06:04 PM. Reason: adding links
              ______
              Severe IC developed fairly quickly, autumn 2010.
              So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

              - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
              - Methadone 9 ml/day
              - Instillations:
              - 40ml Kenalog (steroid for inflammation) 2 x per
              week, along with rescue cocktail of heparin,
              lidocaine, sodium bicarbonate
              - 20ml Uracyst, monthly @ $100/per
              - Depo lupron injections for endometriosis, monthly @ $88/per

              Comment


              • #8
                flowerangela,

                According to my pain management doctor, patients that truly have chronic pain are not referred to as "addicts" but rather as "dependent" on the drug(s).

                There is WAY more that can be done for your pain then Percoset! Plus, Percs are cut with Tylenol, so if you are going to be on them long-term you should discuss the effect of the daily use of Tylenol on your liver and kidneys with your doctor.

                Good luck!
                -Jennifer
                jenjen05

                __________________

                25 years young. Diagnosed with IBS-C May 16, 2007. Diagnosed with moderate IC February 26, 2009. Severe anxiety and moderate depression since middle school.

                Current Meds: 60mg Oxycontin 3x daily (every 8 hours), 30mg Oxycodone 4x daily as needed, 350mg Soma as needed (twice a day), 10mg Valium Vaginal Suppositories as needed (after sex usually, what I call "the nuke" is two of these, and two oxycodone by mouth and one soma by mouth and I can usually prevent a flare if this is done RIGHT AFTER sex along with a cold pack right over my bladder), and Prelief as needed. Heparin 10,000 units installs as needed for rescue needs, usually makes it worse after about 8 hours for the next day or so but then the pain goes away for a few days at least. By following the IC diet I have lost 35lbs and I love the IC diet because it has made me a much healthier person!

                Past meds: 60mg Opana ER 9am and 80mg Opana ER at 9pm, 15mg Oxycodone as needed for breakthrough pain or flares, 350mg Soma as needed (twice a day usually). Hydrocodone 5/500 (two at night with 350mg Soma would get me 6 hours of sleep). Tramadol 50 mg (didn't touch my pain). Elavil 25mg (did nothing). Various installations made me worse every time. Cytotec (don't remember dosage, didn't work).

                Photo below is of myself and my Golden Retriever/German Shepherd/Chow, Daisy May.

                Message me if you'd like to be added to my Facebook!
                Skype- jennifer.jericho

                PLEASE read about antibiotic resistance. It is a growing problem, especially in the United States. We are running out of antibiotics that work effectively before scientists can develop new ones! http://www.fda.gov/oc/opacom/hottopics/anti_resist.html

                Comment


                • #9
                  I worry about this same issue ALL the time. But when I come on here I am always brought back to realit that we are ALL in pain. I am not seeking drugs, I am seeking pain relief. Yes your body gets physically addicted to the pain meds, it happens over long term use, however we arent out trying to "score" on street corners to get high. We are merely trying to control a chronic pain problem from this stupid disease!!! I go to see my uro in a few weeks & plan on asking him for a referral to a pain mgmt doc as my family feels the same way..they think I will become an "addict". When I try to explain that its my body that is addicted, not my brain they just dont get it. They think I should pop a tylenol & go about my day...sigh.
                  Karen
                  Currently Taking:
                  20 mg Celexa
                  fentanyl patch 12.5 mcg chgd every 3 days
                  morphine IR 15 MG, up to 3x daily
                  Xanax 1mg as needed (not taken daily)
                  900 MG Oxycarbizine (mood disorder)
                  300 MG Welbutrin
                  Tizanidine 4 mg up to 20 mg daily as need
                  Prevacid 30 mg
                  Ambien as needed

                  my heating pad is my best friend, use daily on my lower back & pelvic area
                  blessed to be able to receive massage & Amma , along with Avazzia therapy 3x weekly

                  Been diagnosed for 10 years now, consider myself pretty well versed in this disease & would love to help out with new IC sisters or brothers, feel free to message me.

                  Comment

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