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  • Methadone

    Hi

    I'm four days in to my experiment with shifting from morphine (M-Eslon) to Methadone. Someone asked that I update on how it has gone.

    For me, I think it's a pretty significant success.

    Quick BG - I had mild IC in 2008, had fulguration (cauterizing of the scarring in my bladder). That improved things for me significantly. Starting mid-August 2010 I had repeated what I thought were UTI's - like 5 or 6 of them in about 2 or 3 months. Along with that, a mild discomfort in my pelvis very gradually was increasing and increasing and by Oct it crossed from constant discomfort to constant pain. By mid-October it had reached severe pain, and by Nov. 1 I was in Emergency. I was pretty much in that pit of physical-agony-begging-for-medical-help-morphine-fog hell from then up until the 3rd week of February.

    Besides opium/belladonna (I noticed no effect; first urologist said that was one of the three markers that led him to say current pain was not IC), I have been on a number of morphine-based opiates including Oxycocet, Oxycodone, Oxycontin, Hydromorphone, and M-Eslon. All of them have helped dramatically with the pain, but severe somnolence went along with that -- making me too stoned to stay awake all day, work or even figure doses with a clear head. Switching between those different meds. has always been the goal to find something that would make me less dopey, less Raggedy-Anne / Rip van Winkle-ish, and actually able to work.

    I believe with the Methadone that I may have found that. My head is far, far clearer. I feel way safer taking doses because my thinking is just much less fuzzy. I don't spend all day (with the exception of medical appointments and the occasional evening visitor) sleeping.

    I've gone from being in bed all day, to not being in bed except at night. That's pretty dramatic.

    So I'm only four days in, things could change, but that's where it's at so far.

    Tomorrow I'm back at the hospital for the third day in a row of instillations (Uracyst yesterday, heparin/lidocaine/sodium bicarbonate again tomorrow). In the afternoon I'm at a different hospital to meet with the internist / pharmacologist about the methadone. I have lots of questions for him. I can update if anyone wants more info about the morphine / methadone switch, otherwise I'll just see how it goes.

    I should add that both my GP and the pharmacologist said that opiates and maybe especially methadone are really really individual -- vast differences in how people respond. So my experience with this switch being successful may not be the same for others. What I will say though is that I was so spooked about everything the dr's were saying to me about methadone (and that I was reading) that I held off trying the methadone for some time. Be wise, and take the drug and instructions seriously, but don't wait to try it like I did.

    Lisa
    Last edited by playethic; 03-03-2011, 03:13 PM. Reason: I had posted it with the end cut off. I added the missing sentences at the end.
    ______
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per

  • #2
    I'm glad you have found something that is working for you.

    Hugs,
    Donna
    Stay safe


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