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  • Can vitamins contribute to flares

    Hi All,

    I'm trying to determine what could be causing some recent flares. I take vitamin d, fish oil, magnesium and a b-complex each day. For now I stopped taking the vitamins because I'm wondering if there is a slight possibility any of them could contribute to bladder issues.

    If anyone has had experiences with taking vitamins and wish to share, I'd greatly appreciate it. I really hate to stop taking them but it's worth exploring here.
    Frances

    Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

    Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

    Other conditions: Migraines, allergies, mild IBS.


    "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

  • #2
    I take vitamin D with no problem; other vitamins can be a problem for me.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      I think that the vitamins may have been contributing to my discomfort. I would never have imagined this situation.

      Hopefully some others will share their experiences. I read a couple threads about vitamins but there was not too much info.
      Frances

      Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

      Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

      Other conditions: Migraines, allergies, mild IBS.


      "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

      Comment


      • #4
        On the list my doctor gave me, it said not to take vitamin B as it is very bothersome to the bladder.
        Cindi


        Gelnique for frequency/urgency - works great
        Macrobid after sex
        Prilosec, continuous birth control pills
        synthroid .088mg, mucinex-d, restasis

        Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

        Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

        IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
        AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
        AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
        Great treatment flowchart on page 19 of the pdf

        Comment


        • #5
          I have problems with magnesium and B-12.

          Comment


          • #6
            What does one do when their Doctor tells them they are VERY low in Vit. "B" ? If it bothers the bladder that is a problem. Yet the lack of enough of "B" can also cause major problems! A no win situation. Bummer! Hugs, Ziggy

            Comment


            • #7
              If a vitamin B deficiency is a health problem for you, I suggest you at least give it a try. If it causes a flare, then you may need to look at getting enough from foods --- not easy if you have a deficiency, but possible.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
              [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment


              • #8
                I wonder if vitamin B shots would not bother your bladder since they wouldn't have to go through your digestive system (assuming taking them orally does). Worth asking your doctor about. You definitely don't want to be low on B.
                Cindi


                Gelnique for frequency/urgency - works great
                Macrobid after sex
                Prilosec, continuous birth control pills
                synthroid .088mg, mucinex-d, restasis

                Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

                Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

                IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
                AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
                AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
                Great treatment flowchart on page 19 of the pdf

                Comment


                • #9
                  I suggest you to visit a physician who may guide you in the exact manner as to which all vitamins you could consume when you are on certain medication. Nutritional supplements are essential for body and are found to be lot more useful when they are consumed in prescribed doses under expert's supervision.

                  Comment


                  • #10
                    I am so sensitive to any vitamins, I can't take a thing. That said, I also have low B-12 so I get injections, right now 2x a month, normally 1x a month. I had a nurse show me how to do them, so I self-inject rather than a trip to the dr. office every month. Lord knows I'm there enough for other stuff, anyways!

                    I've also tried the vitamin waters, mineral enhanced waters like dasani and I have the same troubles - immediate flare.
                    Conditions:
                    IBS 4/04; IC 8/05; Vitamin B-12 Deficiency 7/06; Asthma 9/06; Citrus, MSG, Sulfate/Sulfite, Nitrate/Nitrite, Sodium Benzoate Allergy diagnosed 9/06; Fibromyalgia 6/07; Pelvic Floor disfunction 2007; Hysterectomy 10/08; Fallopian Tube Cyst removed 5/10; Chronic Diarrhea since 12/10 ; Ulcerative Colitis 4/12

                    Medications
                    Elmiron 3x day
                    Trazadone at bedtime
                    Tramadol as needed for pain
                    Monthly B-12 injections
                    Continuous Birth Control (even though I had a hyst, to control cysts)
                    heating pad, hot epsom salt baths, strict IC diet
                    Interstim implant 9/11
                    Ulcerative Colitis Meds - Remicade, Azathioprine, Lialda, prednisone several times a year

                    Failed Bladder Treatments
                    Lyrica, Elavil, Detrol, Detrol LA, Ditropan, Sanctura, Flomax, Prelief, Pyridium & Urelle (allergic!), Lidoderm patches, long term antibiotics - Macrobid and others, instillations (ouch!), CystaQ, pelvic floor therapy, fulguration, bladder injections, bladder stretching

                    Comment


                    • #11
                      Re: Can vitamins contribute to flares

                      I have Vitamin D3 deficiency, but all vitamins I've tried greatly irritate bladder. I thought one brand in tablet rather than capsule might not irritate, but it also caused IC flare and loads of pain. Any suggestions?
                      Thank you.

                      Comment


                      • #12
                        Re: Can vitamins contribute to flares

                        Originally posted by cosk1971 View Post
                        I have Vitamin D3 deficiency, but all vitamins I've tried greatly irritate bladder. I thought one brand in tablet rather than capsule might not irritate, but it also caused IC flare and loads of pain. Any suggestions?
                        Thank you.
                        You might try some things like eggs, beef liver, and milk fortified with Vitamin D.

                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment


                        • #13
                          Re: Can vitamins contribute to flares

                          I have trouble with vitamins in both capsule and pill form but I do better with liquid vitamins. Have you tried liquid Vit D?

                          Comment


                          • #14
                            Re: Can vitamins contribute to flares

                            Hi there. I've had a rough week. I have yet to be diagnosed with IC ... trying to still pinpoint my symptoms. The dr said either IC or pelvic floor. Well, the other day I decided to start taking D3 3000 a day since I am defiecent and thought this might help my symptoms. Well, not sure if related or not but I started having heart palpitations and out of the blue inability to finish voiding! One morning I woke up and my steam just stopped and after I had stabbing pains and burning of the vulva. It's like my stream would flutter and I couldn't keep going ...then a small pins and needles feeling right above pubic bone. I NEVER had this severe of symptoms. I thought UTI, did a at home test strip and all that showed was leukocytes, nitrates negative...but I presume it could be from external bacteria. My symptoms have gotten somewhat better however I still can tell there is some hesitancy at the END of my urine stream. Could this be due to the vitamin D? I have heard that vitamin is suppose to help! Another weird thing, during all of that I wasn't experiencing my usual symptoms... and I actually prayed to God that I rather have my old symptoms than this spasm feeling.

                            Long story short is stopping of the stream urethral spasms or bladder spasms? Never in my life experienced that before. I also started doing the squatty potty and stretching my legs during all this so maybe it was too many things at once.

                            So bummed.. but trying to stay positive.

                            Comment


                            • #15
                              Re: Can vitamins contribute to flares

                              Originally posted by Wholt5 View Post
                              Hi there. I've had a rough week. I have yet to be diagnosed with IC ... trying to still pinpoint my symptoms. The dr said either IC or pelvic floor. Well, the other day I decided to start taking D3 3000 a day since I am defiecent and thought this might help my symptoms. Well, not sure if related or not but I started having heart palpitations and out of the blue inability to finish voiding! One morning I woke up and my steam just stopped and after I had stabbing pains and burning of the vulva. It's like my stream would flutter and I couldn't keep going ...then a small pins and needles feeling right above pubic bone. I NEVER had this severe of symptoms. I thought UTI, did a at home test strip and all that showed was leukocytes, nitrates negative...but I presume it could be from external bacteria. My symptoms have gotten somewhat better however I still can tell there is some hesitancy at the END of my urine stream. Could this be due to the vitamin D? I have heard that vitamin is suppose to help! Another weird thing, during all of that I wasn't experiencing my usual symptoms... and I actually prayed to God that I rather have my old symptoms than this spasm feeling.

                              Long story short is stopping of the stream urethral spasms or bladder spasms? Never in my life experienced that before. I also started doing the squatty potty and stretching my legs during all this so maybe it was too many things at once.

                              So bummed.. but trying to stay positive.
                              It sounds like you need to contact your urologist for some help.


                              Donna
                              Stay safe


                              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                              Have you checked the ICN Shop?
                              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                              Patient Help: http://www.ic-network.com/patientlinks.html

                              Sub-types https://www.ic-network.com/five-pote...markably-well/

                              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                              [3MG]

                              Anyone who says something is foolproof hasn't met a determined fool

                              Comment

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