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  • #1

    Pain Doctor in Seattle, please help?

    Does anyone know of a good pain doctor that will treat IC in Seattle?


    All other treatments have failed and I am having an allergic reaction to the medication I am taking to aleviate my IC and need to get off of it asap.

    Can anyone help, I am getting desperate!
    Live Well
    Love Much
    Laugh Often!



    Diagnosed:
    Dec 2005
    Diagnosis:
    IC
    Cysto/Hydro:
    Dec 2005
    Other Conditions:
    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
    Meds for IC:
    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
    Alternative Treatments
    Physical therapy for 8 weeks, Acupuncture (just started).
    Other Meds:
    Skelaxin (as needed)
    Didn't work:
    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
    Tried:
    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),
    Tags: None
    • #2
      good and bad

      My uros at the UW in Seattle wrote a prescrip to go a pain clinic - but then I just happened to get examined for the MAPP study by a doc who said she was just leaving this pain clinic and that no one else there understood pelvic pain and I would be doing myself a disservice by going. So I didn't go. Now I just think maybe I should have gone but just avoided doing anything invasive. She did me disservice. I suppose any doc you see could recommend a pain clinic and help you get there. They should at least do that. You deserve to get out of pain! When I flare I take valium and prosed, but last flare was bad and nothing helped too much, but time just passed and it is over a bit. Where are your doctors in Seattle? PV
      I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

        Comment

        • #3
          Thank you for responding. I just made an appointment with the UW, however the appointment isn't until July 5th! I don't think I should wait that long given my symptoms... I tried to explain the urgency of it all, but know body seems to care.
          Live Well
          Love Much
          Laugh Often!



          Diagnosed:
          Dec 2005
          Diagnosis:
          IC
          Cysto/Hydro:
          Dec 2005
          Other Conditions:
          Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
          Meds for IC:
          Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
          Alternative Treatments
          Physical therapy for 8 weeks, Acupuncture (just started).
          Other Meds:
          Skelaxin (as needed)
          Didn't work:
          Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
          Tried:
          Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

            Comment

            • #4
              Did you try making appointment with the uro nurse (Jean)? She is very good and can prescribe a lot. She usually is available in days, not months.
              I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.

                Comment

                • #5
                  No I didn't as I wanted to talk to the actual Uro and no her nurse. I never seem to get things accomplished if I see a nurse. Can the nurse write out a referral to the pain clinic?
                  Live Well
                  Love Much
                  Laugh Often!



                  Diagnosed:
                  Dec 2005
                  Diagnosis:
                  IC
                  Cysto/Hydro:
                  Dec 2005
                  Other Conditions:
                  Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                  Meds for IC:
                  Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                  Alternative Treatments
                  Physical therapy for 8 weeks, Acupuncture (just started).
                  Other Meds:
                  Skelaxin (as needed)
                  Didn't work:
                  Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                  Tried:
                  Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                    Comment

                    • #6
                      Hi purpleviolet,

                      What kinds of things can she prescibe? Just curious.
                      Live Well
                      Love Much
                      Laugh Often!



                      Diagnosed:
                      Dec 2005
                      Diagnosis:
                      IC
                      Cysto/Hydro:
                      Dec 2005
                      Other Conditions:
                      Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                      Meds for IC:
                      Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                      Alternative Treatments
                      Physical therapy for 8 weeks, Acupuncture (just started).
                      Other Meds:
                      Skelaxin (as needed)
                      Didn't work:
                      Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                      Tried:
                      Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                        Comment

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