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No more pain meds!

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  • No more pain meds!

    Found out today that my doc wants to ween me off my methadone that I have taken for 4 years because it is affecting the way my heart beats. It's called the QT interval and is the interval between beats. Methadone can make it too long which can lead to cardiac arrest. Mine is right on the border of being abnormal so he wants me to stop the methadone. I agree I would rather be in pain than be dead but this med helps me so much. Before I started on it and got my interstim I was in bed almost all the time and certainly at home all the time. I just can't fathom going back to that. I don't want to go back to that. I'm just in tears thinking about being in pain all the time again. I think I will be able to use short acting meds but they don't work very well for me.

    Thanks for listening. I just needed to vent to someone who knows.
    Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!

    DX: IC - November 2002 after hysterectomy
    Interstim implanted March 2006 - died May 2011
    Interstim replacement June 2011
    Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
    Docs: Pain management doc, urologist, family practice

  • #2
    Sorry this is happening to you.

    My are with you all. May you all find a way to peace and joy in your lives.


    • #3
      I'm sorry too. I hope they can find an alternative pain med for you.


      • #4
        I hope you are able to find a different medication that will work for you.

        Stay safe

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        • #5
          *hugs* fight for an alternative
          DX: IC, V, VV, PFD, Generalized Anxiety Disorder, PN (just chronic inflammation of the nerve, not an entrapment), Depression

          Current Treatments: Effexor XR, Gabapentin, Oral Valium, Methadone, Lidocaine, ice/heat packs, sometimes vaginal valium suppositories, Vicodin

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