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  • #1

    Anyone else have this experience?

    Why is it when you have an anxiety disorder and when frustrated and frightened and cry while in a doctors office, doctors don't take you seriously.

    My situations is very scary to me, I am needing to get off the Doxepin which I take for my bladder as I have become sensitized to it, and am scared as the pain that is to come will be about a 10.

    When I went in to see my new pcp and began sobbing because I am scared and frustraded at how long it is taking me to get in to see a pain specialist with all of the side effects I am having from the Doxepin, he got weird on me, and now I am worried that he thinks I am being a hypochondriac or blowing things out of proportion.

    This disease is real and very painful! And I have no idea how I'm going to survive the pain when it comes after being off of the Tricyclic. I hope the pain medicine doctor believes me and treats me with kindness and respect.
    And I hope I don't break down in tears because doctors don't seem to take to kindly to it.

    If I may ask, how do you handle your doctors appointments. Perhaps I just need to find a way to not cry somehow.
    Last edited by Tink22; 07-10-2011, 01:37 PM.
    Live Well
    Love Much
    Laugh Often!



    Diagnosed:
    Dec 2005
    Diagnosis:
    IC
    Cysto/Hydro:
    Dec 2005
    Other Conditions:
    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
    Meds for IC:
    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
    Alternative Treatments
    Physical therapy for 8 weeks, Acupuncture (just started).
    Other Meds:
    Skelaxin (as needed)
    Didn't work:
    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
    Tried:
    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),
    Tags: None
  • #2
    I know what you mean. I think they don't teach doctors in medical school that people who are in pain sometimes cry. I try very hard not to cry in medical offices, unless I'm really over-the-top sick AND I've known the doctor for awhile (they've seen me before, when I was not crying). It's ridiculous to have to do this, but I've found it necessary in order to be taken seriously.
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!

    Comment

    • #3
      I don't think they teach them either and I think they pigeon hole people like me with panic issues very badly. It is very sad. I will just have to somehow find a way to hold it together at the pain clinic appointment and cry after I leave. Not sure that I can but will have to try my hardest. :/
      Live Well
      Love Much
      Laugh Often!



      Diagnosed:
      Dec 2005
      Diagnosis:
      IC
      Cysto/Hydro:
      Dec 2005
      Other Conditions:
      Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
      Meds for IC:
      Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
      Alternative Treatments
      Physical therapy for 8 weeks, Acupuncture (just started).
      Other Meds:
      Skelaxin (as needed)
      Didn't work:
      Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
      Tried:
      Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

      Comment

      • #4
        Is there somebody who can go with you to offer some support? That might help a lot.


        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.         [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment

        • #5
          Hi Donna,

          I have taken someone for support into the office visit and into the room with me however I have begun to wonder if it makes me look like I am unable to handle my situation as and adult and makes me look like a child and might possible be hurting my case. I don't know.

          I am just starting to feel like I handled things improperly by crying and expressing that I am at my whits end, and now knowbody is taking me seriously, and I don't want to start this whole process over again with new docs as it takes at least a month to get into a pain specialist and I don't want to wait that long.

          I guess this has just been a really painful learning experience in how to deal with doctors in order to get things taken care of and taken seriously sadly.
          Live Well
          Love Much
          Laugh Often!



          Diagnosed:
          Dec 2005
          Diagnosis:
          IC
          Cysto/Hydro:
          Dec 2005
          Other Conditions:
          Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
          Meds for IC:
          Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
          Alternative Treatments
          Physical therapy for 8 weeks, Acupuncture (just started).
          Other Meds:
          Skelaxin (as needed)
          Didn't work:
          Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
          Tried:
          Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

          Comment

          • #6
            My mother will be taking to the pain specialist appointment, however we are thinking it might be best if she wait in the lobby, I don't know. :/
            Live Well
            Love Much
            Laugh Often!



            Diagnosed:
            Dec 2005
            Diagnosis:
            IC
            Cysto/Hydro:
            Dec 2005
            Other Conditions:
            Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
            Meds for IC:
            Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
            Alternative Treatments
            Physical therapy for 8 weeks, Acupuncture (just started).
            Other Meds:
            Skelaxin (as needed)
            Didn't work:
            Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
            Tried:
            Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

            Comment

            • #7
              Take some one to your app with you, it will give you moral support, and once you get upset you don't always remember to ask for the info you want.

              Take a list of questions, and write down the responses or get the person with you to write them down.

              If you find it difficult to say all what has been going on and how much it is effecting you life, write it all down, I ussally do it in point form, and read it out to the Dr. or get the person with you to read it out.

              More prepared you are for the app, the better it will go and the easier it will be on you, just sit down a head of time when you can think clearly and write everything down.

              I have a hard bound book that I take to all my app's, I write every thing in this one book.

              In the back of it I keep a record of all meds tried and reactions to them.

              You have valid concerns you just need to get them across to your Dr.

              Hugs MG
              My are with you all. May you all find a way to peace and joy in your lives.

              Comment

              • #8
                You're not alone. I have to try not to cry because I want them to take me seriously. I didn't used to have this problem, but the more desperate you get, the harder it gets.

                Have you had any negative experiences in taking someone with you?
                ~Star B.

                Conditions:
                Interstitial Cystitis
                Fibromyalgia
                Chronic Fatigue
                Endometriosis
                Neurally Mediated Syncopy

                Comment

                • #9
                  Thank you Mothergoose for the advice, I will do so. You have some good ideas.
                  Live Well
                  Love Much
                  Laugh Often!



                  Diagnosed:
                  Dec 2005
                  Diagnosis:
                  IC
                  Cysto/Hydro:
                  Dec 2005
                  Other Conditions:
                  Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                  Meds for IC:
                  Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                  Alternative Treatments
                  Physical therapy for 8 weeks, Acupuncture (just started).
                  Other Meds:
                  Skelaxin (as needed)
                  Didn't work:
                  Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                  Tried:
                  Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                  Comment

                  • #10
                    Hi Star B. The pain specialist I want to last month responded negatively. I also think my pcp thinks it's strange however has not said as much.

                    But I do think they think it is odd, that is the feeling I get.
                    Live Well
                    Love Much
                    Laugh Often!



                    Diagnosed:
                    Dec 2005
                    Diagnosis:
                    IC
                    Cysto/Hydro:
                    Dec 2005
                    Other Conditions:
                    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                    Meds for IC:
                    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                    Alternative Treatments
                    Physical therapy for 8 weeks, Acupuncture (just started).
                    Other Meds:
                    Skelaxin (as needed)
                    Didn't work:
                    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                    Tried:
                    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                    Comment

                    • #11
                      I found that in the beginning, having my mom with me seemed to cause negative reactions in my doctors. Even if she didn't say anything, it seemed to take away from my status as an adult (and I was 35!). I did better on my own. I also found that coming in with multi page symptom logs and records of what had happened in my rapid-onset IC seemed to upset my doctors. I think they thought I was looking for someone to sue. What seemed to work best is a single sheet of paper divided into 4 quadrants- quadrant 1=current symptoms, quadrant 2=what we tried already & outcomes, quadrant 3= my questions, quadrant 4=blank for me to take notes on what we decide. I would go in with 2 copies of this-one for me & one for them. My doctors usually appreciated it & it kept the appointment on track. I also never discuss my anxiety or panic issues with any doctor unless they need to know for some reason (like a medication I'm on). Hope that helps a little!
                      Good luck!
                      Kadi

                      -------------------------------------------------------------
                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      ------------------------------------------------------


                      New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
                      Source - Pinterest
                      "

                      Current treatments:
                      -IC diet
                      -Elavil 50mg at night
                      -Continuous use birth control pills (4-5 periods/year)
                      -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
                      -Pyridium if needed,
                      -Pain medicine at bedtime daily, as needed during the day several times per week
                      -Antibiotic when doing an instillation to prevent UTI
                      -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
                      -Dye Free Benadryl 50 mg at bedtime
                      -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
                      -Managing stress= VERY important!
                      -Fur therapy: Hugging the cat!

                      Comment

                      • #12
                        Dr.s and our crying/anxiety

                        Luckily for me, I've been seeing my pcp for several years.. He has been very compassionate. However, my uro. is another story..... can anyone say," ice cold slab of meat" I don't mean to be so blunt,but this guy didn't even get within 6 feet of me on our first visit. Like I had the plague.......
                        I have depression with anxiety an with an occasional panic attack. Well, so far I havn't crumbled at the uro.'s office. But If I do, they had better treat me nice or I may combust and give them a piece of my mind. ( which in fact is not as quick as it used to be.)
                        I say, be honest, cry if you need too, take your notes with questions and a friend too if you can.
                        You go girl,

                        Blessings,
                        Lizzie_71

                        Comment

                        • #13
                          Thank you Kadi and Lizzie, this has just been so difficult for me, my heart is just so sad that I can't seem to get the proper help that I need as I feel everyone seems to think I am just a hysterical patient and not a patient who is scared and at the end of my rope.

                          I'd hate to think that I will have to go off this medication and have no support from a pcp, uro or pain specialist as so far it seems none of them believe me that it is the medication. The thought terrifies me.
                          Live Well
                          Love Much
                          Laugh Often!



                          Diagnosed:
                          Dec 2005
                          Diagnosis:
                          IC
                          Cysto/Hydro:
                          Dec 2005
                          Other Conditions:
                          Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                          Meds for IC:
                          Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                          Alternative Treatments
                          Physical therapy for 8 weeks, Acupuncture (just started).
                          Other Meds:
                          Skelaxin (as needed)
                          Didn't work:
                          Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                          Tried:
                          Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                          Comment

                          • #14
                            Hi Kadi,

                            I have quarted my 1 sheet of paper as you suggested. I like how it looks, and that it gets across all of the information. Thank you.
                            Live Well
                            Love Much
                            Laugh Often!



                            Diagnosed:
                            Dec 2005
                            Diagnosis:
                            IC
                            Cysto/Hydro:
                            Dec 2005
                            Other Conditions:
                            Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                            Meds for IC:
                            Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                            Alternative Treatments
                            Physical therapy for 8 weeks, Acupuncture (just started).
                            Other Meds:
                            Skelaxin (as needed)
                            Didn't work:
                            Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                            Tried:
                            Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                            Comment

                            • #15
                              I also try to avoid addressing my panic disorder with doctors. I've found more often than not that they take the rest of my symptoms less seriously.
                              ~Star B.

                              Conditions:
                              Interstitial Cystitis
                              Fibromyalgia
                              Chronic Fatigue
                              Endometriosis
                              Neurally Mediated Syncopy

                              Comment

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