Announcement

Collapse
No announcement yet.

Anyone else have this experience?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Tink22
    replied
    I did feel better and I walked away feeling good about everything.

    I will get a note book, good idea. I'll be starting a new medication soon and should really start the note book before then.

    Thank you so much for you help.

    Leave a comment:


  • Mothergoose
    replied
    Glad this helpped you and things went better for you, you at least come away feeling like it was not a total waste of time.

    If you have a list then you don't walk out and realize you didn't ask what ever, I find it gives me better use of my time with the Dr. When they usally seemed to be pressed for time.

    I would suggest you get a note book just for this purpose, I write notes of what the Dr.s answers are or directions given to me.

    I write down rx written and how many pills it is written for and how many times a day and when I am to take the medication, this way I don't have to call back to the Dr. to clarifie instructions, sometimes when I pick up my rx the directions are not the same as the Dr. has told me, or they pharmacy has subsituted the medication, or changed the directions. I find if I have it written and can check it when I pick up my rx, sometimes pharmacies make mistakes, if I have it written down then I am not secound guessing myself.

    I also keep a list in the back of the book of meds tried and side effects if they helpped or not.

    Between Dr. visists I will make notes of new or different symptoms, sometimes by the time we get to see the Dr. something else is more pressing in my mind, this jogs my memory.

    I then have all my medical info in one place, and it is a running history. I can look back for patterns etc.

    MG

    Leave a comment:


  • Tink22
    replied
    Hi Kadi,

    I took my 1 piece of paper in with me to the pain doctor yesterday, it want over well! Thank you so much. And I went in alone and didn't cry. Things went a lot smoother. Thank you to everyone for your advice.

    Leave a comment:


  • Tink22
    replied
    Star B.

    I am definatly not going to addresss my panic disorder anymore unless I have to either.

    Leave a comment:


  • Tink22
    replied
    Hi Star B.

    I agree they do, and I think it is very sad!

    Leave a comment:


  • Star B.
    replied
    I also try to avoid addressing my panic disorder with doctors. I've found more often than not that they take the rest of my symptoms less seriously.

    Leave a comment:


  • Tink22
    replied
    Hi Kadi,

    I have quarted my 1 sheet of paper as you suggested. I like how it looks, and that it gets across all of the information. Thank you.

    Leave a comment:


  • Tink22
    replied
    Thank you Kadi and Lizzie, this has just been so difficult for me, my heart is just so sad that I can't seem to get the proper help that I need as I feel everyone seems to think I am just a hysterical patient and not a patient who is scared and at the end of my rope.

    I'd hate to think that I will have to go off this medication and have no support from a pcp, uro or pain specialist as so far it seems none of them believe me that it is the medication. The thought terrifies me.

    Leave a comment:


  • lizzie_71
    replied
    Dr.s and our crying/anxiety

    Luckily for me, I've been seeing my pcp for several years.. He has been very compassionate. However, my uro. is another story..... can anyone say," ice cold slab of meat" I don't mean to be so blunt,but this guy didn't even get within 6 feet of me on our first visit. Like I had the plague.......
    I have depression with anxiety an with an occasional panic attack. Well, so far I havn't crumbled at the uro.'s office. But If I do, they had better treat me nice or I may combust and give them a piece of my mind. ( which in fact is not as quick as it used to be.)
    I say, be honest, cry if you need too, take your notes with questions and a friend too if you can.
    You go girl,

    Blessings,
    Lizzie_71

    Leave a comment:


  • kadi
    replied
    I found that in the beginning, having my mom with me seemed to cause negative reactions in my doctors. Even if she didn't say anything, it seemed to take away from my status as an adult (and I was 35!). I did better on my own. I also found that coming in with multi page symptom logs and records of what had happened in my rapid-onset IC seemed to upset my doctors. I think they thought I was looking for someone to sue. What seemed to work best is a single sheet of paper divided into 4 quadrants- quadrant 1=current symptoms, quadrant 2=what we tried already & outcomes, quadrant 3= my questions, quadrant 4=blank for me to take notes on what we decide. I would go in with 2 copies of this-one for me & one for them. My doctors usually appreciated it & it kept the appointment on track. I also never discuss my anxiety or panic issues with any doctor unless they need to know for some reason (like a medication I'm on). Hope that helps a little!
    Good luck!

    Leave a comment:


  • Tink22
    replied
    Hi Star B. The pain specialist I want to last month responded negatively. I also think my pcp thinks it's strange however has not said as much.

    But I do think they think it is odd, that is the feeling I get.

    Leave a comment:


  • Tink22
    replied
    Thank you Mothergoose for the advice, I will do so. You have some good ideas.

    Leave a comment:


  • Star B.
    replied
    You're not alone. I have to try not to cry because I want them to take me seriously. I didn't used to have this problem, but the more desperate you get, the harder it gets.

    Have you had any negative experiences in taking someone with you?

    Leave a comment:


  • Mothergoose
    replied
    Take some one to your app with you, it will give you moral support, and once you get upset you don't always remember to ask for the info you want.

    Take a list of questions, and write down the responses or get the person with you to write them down.

    If you find it difficult to say all what has been going on and how much it is effecting you life, write it all down, I ussally do it in point form, and read it out to the Dr. or get the person with you to read it out.

    More prepared you are for the app, the better it will go and the easier it will be on you, just sit down a head of time when you can think clearly and write everything down.

    I have a hard bound book that I take to all my app's, I write every thing in this one book.

    In the back of it I keep a record of all meds tried and reactions to them.

    You have valid concerns you just need to get them across to your Dr.

    Hugs MG

    Leave a comment:


  • Tink22
    replied
    My mother will be taking to the pain specialist appointment, however we are thinking it might be best if she wait in the lobby, I don't know. :/

    Leave a comment:

Working...
X