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  • #1

    Pain Medication Question - As I've never taken it.

    Hello,

    I was wondering, for those of you on pain medication, how does it help with the pain?

    Does it drone you out so you just don't care about the pain, or does it acutally dull the pain?


    I've never really taken pain medication for IC. So have no idea how it works.
    Live Well
    Love Much
    Laugh Often!



    Diagnosed:
    Dec 2005
    Diagnosis:
    IC
    Cysto/Hydro:
    Dec 2005
    Other Conditions:
    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
    Meds for IC:
    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
    Alternative Treatments
    Physical therapy for 8 weeks, Acupuncture (just started).
    Other Meds:
    Skelaxin (as needed)
    Didn't work:
    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
    Tried:
    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),
    Tags: None
  • #2
    I normally don't take pain meds because they make me hyper, I did just have a procedure and was given pain meds to take, I noticed my bladder pain was gone for about 4 to 6 hours, however I use Tiger Balm patches most of the time.
    IC diagnosis 3 weeks ago.
    Vesicare 10 mg once daily
    IBS and Gerd-Zegerid
    IC diet
    Elmiron 100 mg three daily
    Hydroxyzine 25 mg at night
    Amitriptyline 10mg at night
    Diovan 60/12.5 daily
    Topral 50 mg daily
    Zoloft 100 mg at night
    Klonopin .5 twice daily

    Comment

    • #3
      Pain management research has proven that pain meds don't take all the pain away. Pain will decrease about 40 percent. If your pain scale is at a 10, it should be at a 6 after the pain meds kick in. I've been on pain meds for severe IC for 6 years and this is very accurate. Pain meds take the edge off and the meds help reduce some of the anxiety that accompanies severe pain. As a side note, I see a pain management doctor every month.
      DX w/ IC in 2002. Received disability for IC in 04. Have severe IC. Hunner uclers, high frequency, moderate arthritis in lower back, severe Pelvic floor dysfunction. Anxiety due to changing amounts of pain meds. Hips misalignment (left leg 1/2" shorter).
      Past treatments: dmso and heparin instillations-in severe pain 24 hours afer emptying, hydrodistensions very painful because of ulcers, interstim twice--both failed due to infections at battery sight. PTNS-didn't reduce frequency. Botox jan 09 in bladder and pelvic floor and steroids placed on uclers. Burning pain 3 weeks after procedure but helped 30% with frequency and 50% with pain and spasms. Botox june 09 in bladder only and steriods injection into ulcers. Not as painful afterwards, put had to bear down to urinate which caused severe tightening of pelvic floor. Helped again with freq and pain. Tried physical therapy past 4 years. Has helped over time. On a regular basis I get deep tisssue massages, acupuncture and see a chiropractor. Had 3 caudal nerve blocks. Slightly improved PFD. Had Sacral nerve streriod injections on boh sides of buttocks. Helped with lower back pain, hip and buttock pain. Pudental nerve block 9-13-09. Severe pain 2 days following. No help with PFD. Steroid injections April 2010. Helped relieve some of the pain and frequency. Pelvic floor lidocaine injections May, August 2010. Noticeable relief of trigger point pain. Steroid injection into hunner ulcer August 2010. Very helpful.

      Current meds: percoset, ambien, trazedone, klonopin, flexeril and norethindrone (to control endometriosis). Probiotics and a high fiber/low sugar diet helps help with constipation.
      Meds that didn't work or had adverse side effects: elmiron, elavil, lyrica and several others.
      On a daily basis I walk 2-5 miles, pray and meditate. All of this gives me tremendous strength and energy in both my mind and body.

      Comment

      • #4
        Thank you greeneyes for the feedback.

        And thank you marycat2007 for the information. That really helped me get a good idea of to expect.
        Live Well
        Love Much
        Laugh Often!



        Diagnosed:
        Dec 2005
        Diagnosis:
        IC
        Cysto/Hydro:
        Dec 2005
        Other Conditions:
        Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
        Meds for IC:
        Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
        Alternative Treatments
        Physical therapy for 8 weeks, Acupuncture (just started).
        Other Meds:
        Skelaxin (as needed)
        Didn't work:
        Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
        Tried:
        Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

        Comment

        • #5
          Pain meds also help greatly with my urgency and frequency. When I have that pain that feels like a bladder infection, the only temporary relief I get is from urinating. However, pain meds reduce that pain and thus less frequency.
          DX w/ IC in 2002. Received disability for IC in 04. Have severe IC. Hunner uclers, high frequency, moderate arthritis in lower back, severe Pelvic floor dysfunction. Anxiety due to changing amounts of pain meds. Hips misalignment (left leg 1/2" shorter).
          Past treatments: dmso and heparin instillations-in severe pain 24 hours afer emptying, hydrodistensions very painful because of ulcers, interstim twice--both failed due to infections at battery sight. PTNS-didn't reduce frequency. Botox jan 09 in bladder and pelvic floor and steroids placed on uclers. Burning pain 3 weeks after procedure but helped 30% with frequency and 50% with pain and spasms. Botox june 09 in bladder only and steriods injection into ulcers. Not as painful afterwards, put had to bear down to urinate which caused severe tightening of pelvic floor. Helped again with freq and pain. Tried physical therapy past 4 years. Has helped over time. On a regular basis I get deep tisssue massages, acupuncture and see a chiropractor. Had 3 caudal nerve blocks. Slightly improved PFD. Had Sacral nerve streriod injections on boh sides of buttocks. Helped with lower back pain, hip and buttock pain. Pudental nerve block 9-13-09. Severe pain 2 days following. No help with PFD. Steroid injections April 2010. Helped relieve some of the pain and frequency. Pelvic floor lidocaine injections May, August 2010. Noticeable relief of trigger point pain. Steroid injection into hunner ulcer August 2010. Very helpful.

          Current meds: percoset, ambien, trazedone, klonopin, flexeril and norethindrone (to control endometriosis). Probiotics and a high fiber/low sugar diet helps help with constipation.
          Meds that didn't work or had adverse side effects: elmiron, elavil, lyrica and several others.
          On a daily basis I walk 2-5 miles, pray and meditate. All of this gives me tremendous strength and energy in both my mind and body.

          Comment

          • #6
            Thank you, so good to know, I was worried I was going to have a lot of frequency and urgency once I go on them.
            Live Well
            Love Much
            Laugh Often!



            Diagnosed:
            Dec 2005
            Diagnosis:
            IC
            Cysto/Hydro:
            Dec 2005
            Other Conditions:
            Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
            Meds for IC:
            Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
            Alternative Treatments
            Physical therapy for 8 weeks, Acupuncture (just started).
            Other Meds:
            Skelaxin (as needed)
            Didn't work:
            Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
            Tried:
            Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

            Comment

            • #7
              The pain meds I have taken do significantly ease the pain. I have only taken them for short periods, usually following a surgery or injury, but I find the right pain meds will take away all of my pain until the pain med wears off. I have had two very painful post op surgeries in the last year and a half (in January 2010 I had a cervical disc removed and a spinal fusion; in April of this year shoulder surgery) --- the pain meds I was given after the surgeries got rid of the pain so I was comfortable.

              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

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              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

              Comment

              • #8
                Thank you Donna. I sure hope I get lucky with the first thing the pain doc is wanting to try, and that my pain is tolerable. I sure am frightened though. This is all new to me. :/
                Live Well
                Love Much
                Laugh Often!



                Diagnosed:
                Dec 2005
                Diagnosis:
                IC
                Cysto/Hydro:
                Dec 2005
                Other Conditions:
                Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                Meds for IC:
                Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                Alternative Treatments
                Physical therapy for 8 weeks, Acupuncture (just started).
                Other Meds:
                Skelaxin (as needed)
                Didn't work:
                Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                Tried:
                Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                Comment

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