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  • #1

    Starting Opioid treatment soon - A few questions

    Sorry for so many posts lately, I am hoping to learn a bunch for all of you as this is all so new to me and quite a bit frightening.

    Finally got in to see the pain specialist and the idea is to start me on Suboxone/Buprenorphine patch which is an opioid. From doing my home work, I guess it is usually used to treat opioid addiction but also used for pain.


    I was hoping a few people could give me some positive infomation or experiences with starting on an opioid for IC, if there is such a thing.

    I have no idea what to expect.

    And also if it helps much with the pain. I'm also really hoping my personality doesn't change. I hope I will still be me.
    Live Well
    Love Much
    Laugh Often!



    Diagnosed:
    Dec 2005
    Diagnosis:
    IC
    Cysto/Hydro:
    Dec 2005
    Other Conditions:
    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
    Meds for IC:
    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
    Alternative Treatments
    Physical therapy for 8 weeks, Acupuncture (just started).
    Other Meds:
    Skelaxin (as needed)
    Didn't work:
    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
    Tried:
    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),
    Tags: None
  • #2
    You will still be you. You may get a little sleepy when you first start pain medications, but that should pass soon.

    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

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    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

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    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.     [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment

    • #3
      Thank you Donna,

      I'm glad to hear this. Sure don't want to be some strange version of myself.
      Live Well
      Love Much
      Laugh Often!



      Diagnosed:
      Dec 2005
      Diagnosis:
      IC
      Cysto/Hydro:
      Dec 2005
      Other Conditions:
      Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
      Meds for IC:
      Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
      Alternative Treatments
      Physical therapy for 8 weeks, Acupuncture (just started).
      Other Meds:
      Skelaxin (as needed)
      Didn't work:
      Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
      Tried:
      Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

      Comment

      • #4
        hey shamay i am on this patch (butrans) its similar to what u are describing ...it is an opiod but has saved my life. i can function on it (dont feel drugged up or sleepy like i was on percoset) and it doesnt cause me any side effects like constipation or anything else.. pm me if u want to talk!good luck hope it works for u. this form is considered less addictive i see a pain management doc.
        Newly IC diagnosed as of February 2011.

        Medications I'm on that seem to work:
        Zoloft- one once a day
        Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

        Failed Meds:
        Elmiron-after 4 months,digestive side effects got to be too much
        tramadol-allergic
        DMSO treatments(5-6)
        probiotics

        THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
        AROMATHERAPY-candles,incense
        Village Naturals Aches and Pains Peppermint Bath Salts
        Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

        ACUPUNCTURE/HERBS
        Significant pain relief so far.

        MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

        Add me on facebook Angela Hasic

        ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
        Lord, make me an instrument of your peace;
        where there is hatred, let me sow love;
        when there is injury, pardon;
        where there is doubt, faith;
        where there is despair, hope;
        where there is darkness, light;
        and where there is sadness, joy.
        Grant that I may not so much seek
        to be consoled as to console;
        to be understood, as to understand,
        to be loved as to love;
        for it is in giving that we receive,
        it is in pardoning that we are pardoned,
        and it is in dying [to ourselves] that we are born to eternal life.

        Comment

        • #5
          Hi Flowerangela,

          Thank you for the information, that is so so good to know. I sure hope my body does really well with this, I am keeping my fingers crossed and praying.

          I pm'd you a few questions. Or you can email me at [email protected] and we can chat that wasy.

          Thank you for your help.
          Live Well
          Love Much
          Laugh Often!



          Diagnosed:
          Dec 2005
          Diagnosis:
          IC
          Cysto/Hydro:
          Dec 2005
          Other Conditions:
          Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
          Meds for IC:
          Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
          Alternative Treatments
          Physical therapy for 8 weeks, Acupuncture (just started).
          Other Meds:
          Skelaxin (as needed)
          Didn't work:
          Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
          Tried:
          Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

          Comment

          • #6
            Suboxone/Buprenorphine patch

            I'm very interested in learning more about this. My pain doctor switched me from Percocet to Opana (a form of morphine)--but the dose is too low and don't know yet whether they'll raise it since they think I'm a drug dealer since I tested negative for the Percocet.

            It would be great not to not have to be constipated all the time.

            Is this something you can do for a long time? Because I've been in a flare for over three years and I don't have much faith in having a remission anytime soon.

            Thanks.

            Maxine

            Comment

            • #7
              Hi Maxine,

              I start in two weeks, so can't really give you any information just yet, other than my pain medication guy said I will have to be on it for a while, well over two months. So, I think it can be takin for some time, however don't know how long.

              Sorry I couldn't be of more help. I will let you know as I know if you'd like.

              Shamay
              Live Well
              Love Much
              Laugh Often!



              Diagnosed:
              Dec 2005
              Diagnosis:
              IC
              Cysto/Hydro:
              Dec 2005
              Other Conditions:
              Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
              Meds for IC:
              Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
              Alternative Treatments
              Physical therapy for 8 weeks, Acupuncture (just started).
              Other Meds:
              Skelaxin (as needed)
              Didn't work:
              Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
              Tried:
              Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

              Comment

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