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Very Lost and Confused

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  • TexasHoney
    replied


    Hang In There

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  • vivsmom
    replied
    It gets better

    Jester race-
    I am so sorry that this has been so painful and awful for you. It's not fair and it really sucks, but you will find a way to feel better. Sounds like your shifts are really tough.

    The thing that helped me most when I started treatment was meditation twice a day everyday. Check guided medication or youtube or down load some from itunes. My therapist recommended 15 minutes each session. I wake up early before work to do it and medidate as soon as my daughter goes to bed.

    Peace,

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  • Teresa27
    replied
    I am so sorry, for your pain..... I know, I just finished 3 years of college, at 50, so I could work in the medical field but now, to sick to work.
    Hugs,
    Teresa27

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  • ICNDonna
    replied
    When I was first diagnosed, being catheterized was painful, but once I learned to relax it became easier. Instillations sometimes don't do much until after you've had several so I wouldn't give up on them yet. Are you on any medications, such as elmiron, for your IC? Elmiron can take six months or longer to become effective but it gives some ICers their lives back. You might also talk to your doctor about trying an antispasmodic (I take levsin SL) or maybe even low dose elavil to help with pain.

    I hope you feel better soon.


    Donna

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  • jester-race
    started a topic Very Lost and Confused

    Very Lost and Confused

    I have been in my flare for 2 1/2 months. I have horrible cramps all the time. The burning is most of the time managed by baking soda. My lower back is killing me. I have changed my diet completely, I only drink water, eat only a few foods and certainly no acidic things. I have had a hydrodistention and urethral dilation, which did absolutely nothing for me. I started taking Aloe Vera and Marshmallow Root which helped a little but nothing significant. Last week I had my first catheter instillation of Heparin, Lidocaine, and Sodium Bicarb. The instillation was incredibly painful, I cried the whole time. I felt worse after that I did before I had it done. So needless to say, it didn't help at all. I'm a nurse and work 13hr shifts on a surgical unit and I haven't been able to work at all. Each day I work on the floor kills me. The best I can do is rest at home with my heating pad. Ultram helps somewhat but when the pain is really bad, nothing can help it. I don't know what to do! I'm 23 years old and I have to come up with something to make this manageable. Please help!
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