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  • Dr's who refuse to prescribe medication?

    I have now dealt with a pain specialist who wants to do ongoing epidurals or nerve blocks, but will not prescribe pain medication. My uro/gyn is also trying to talk me into an Interstem device. No one has even tried me on any pain medication. Does this make sense to anyone else? I'm trying to understand.

    I realize the risks of pain medicine, but it seems to be the logical next step instead of an invasive procedure. Any advice would be greatly appreciated.
    ~Star B.

    Conditions:
    Interstitial Cystitis
    Fibromyalgia
    Chronic Fatigue
    Endometriosis
    Neurally Mediated Syncopy

  • #2
    I just started going to a new pain management doctor and he took me off of pain meds because pain meds are not for IC on an continuous basis. He will give me a prescription for them when I need them for surgeries/procedures. He put me on neurontin and cymbalta.

    Comment


    • #3
      I don't need them on a continuous basis. I just need them for when the pain is at its worst.

      I think I'm more confused now. I've read on this board about people taking pain medication for IC pain. Am I wrong that doctors do prescribe pain medication for this?

      I've tried Cymbalta and several other similar drugs (Elavil, etc), but these don't work for me.
      ~Star B.

      Conditions:
      Interstitial Cystitis
      Fibromyalgia
      Chronic Fatigue
      Endometriosis
      Neurally Mediated Syncopy

      Comment


      • #4
        I think if I were you, I would at least look into seeing a different pain management doctor for a second opinion. You don't necessarily need to change doctors, but it can help to hear that second thought.

        Donna
        Stay safe


        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

        Have you checked the ICN Shop?
        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

        Patient Help: http://www.ic-network.com/patientlinks.html

        Sub-types https://www.ic-network.com/five-pote...markably-well/

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        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
        [3MG]

        Anyone who says something is foolproof hasn't met a determined fool

        Comment


        • #5
          My dr. prescribes pain meds but monitors the usage. I think they would rather try other medications first like Neurontin or Elavil etc. to see if this reduces the pain so that narcotics aren't needed. There seems to be different kinds of pain specialists, and some would much rather do a procedure that may help the pain in lieu of medication. What do you do in the meantime though for pain-right? I sometimes wonder if any of them have ever been in extreme pain themselves and have any idea what it feels like. A second opinion might be a good idea if it's possible.

          Comment


          • #6
            I would also suggest talking to another pain Dr. about it. You will feel better having another opinion.
            Jolene

            "Life is what happens when you are making other plans" John Lennon

            IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

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            http://www.ic-network.com/patientlinks.html


            Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




            Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

            "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

            Comment


            • #7
              Hi , I know how confusing this all is ! Alot of us have been in the same exact position as you and just as confused ! It took me years to just get diagnosed and so I automatically assumed that considering IM in severe pain that narcotics would be the next logical step BUT unfortunately not all doctors think this way . If a doctor tells you that IC is not treated w narcotic pain meds continuous or otherwise , then they typically do not have a good understanding of IC . I have seen some of the most recommended IC docs( on here and otherwise ) and they all agree that narcotics are a definite usable line of defense in patients . Now they are different types of pain management , and as stupid as it seems some do not prescribe pain meds ( which boggles my mind ) The most frustrating thing is all the time you waste making an appt and hoping this next one will help me , I just have to get to the next appt , the next doctor and then they wind up being harmful ( by upsetting you ) or useless to listen or help . It is frowned upon to ask on the phone whether this doctor prescribes pain medication , the best way to find out is too ask referring doctors specifically , does this office provide pain medications for patients who warrant them ? ( you could technically give it a shot when calling a pain m. office, if you word it that way , I have found some success in phone convo's when asked " if found warranted " I guess it gives them a sense of security in case they choose not to treat ? who knows ? sometimes I think the medical community is whacky as hell ! ) I know it is so very hard to hang in , I take continuous as well as break through pain meds and still I have days where the pain is just not tolerable , althougth I have a heck of a lot more functional days now then I ever did when I didnt take pain meds ! See if you can have whatever doctor referred you to write you out a recommendation to take w you as too why they think you need them . Be very specific yourself , explain how the pain interferes w your quality of life and specifically what activities . Tell them you just want some sembalance of your life back . I wish you the best of luck , if you have any questions please feel free to ask me through this post or PM me .
              ((( hugs)))


              Lauren

              Comment


              • #8
                Thanks crkshnks79. That's exactly how I've been looking at it. And the thing is, I don't even need constant pain relief. I can handle a certain amount of pain and discomfort, but then there are the really bad days that are hard to get through. Thanks for the suggestion on calling the pain clinics. I'm still working myself up to try again. The last visit kind of took it out of me.
                ~Star B.

                Conditions:
                Interstitial Cystitis
                Fibromyalgia
                Chronic Fatigue
                Endometriosis
                Neurally Mediated Syncopy

                Comment


                • #9
                  I definatly had the same problem before i was diagnosed the doctors wouldnt give me anything so once i was diagnosed i went back to my same doctors and they were ok with giving me pain meds but unfortunitly the non narcotic pain pill tramadol wasnt strong enough so im having to take two at a time which they make stronger ones but how do you go at a doctor with your information that a pain pill isnt strong enough there just gonna look at you like your an addict im in the beginning stages of knowing i have this disease and i am in pain everyday i wake up three times a night to go to the bathroom the longer i wait to go the more i hurt i take peridium on a regular basis which i was told after long time use can cause damage but if i dont take it i am going to the bathroom without urinating my bladder is not comfortable in any way without having pain medication and peridium

                  Comment


                  • #10
                    Just a hint....I would try to find a pain management dr who is not also an anesthesiologist. In my experience, I have found that anesthesiologists are more eager to try a procedure (nerve block, ablation, etc.), than rx meds. They may a lot more money from procedures than they make off monthly visits to write scripts.

                    Not all ICers respond to the same meds and same course of treatment. Some respond very well to narcotics, some do not. Finding a treatment plan that works for you, your body, and your lifestyle takes time and patience. You need to find a dr who will let you explore options to find a treatment plant that works for you....whether that be meds, injections and/or blocks.

                    Comment


                    • #11
                      Jen is absolutely right about different patients , different regimens . Like she said , you need a doc that will work with you to figure out works whatever it maybe and the only way to find out is to find a doc who is willing to explore all the possibilities . I found a new primary doctor after I won my disability case ( based on just my IC) because my old one was useless , they ALWAYS wanted me to go to a specialist for even the simplest of things . Once I found a new primary I approached her on the first visit about her handling my pain until I could find adequate pain management , and she was ok w it ( which is rare on a first visit , I really think the fact that I was disabled from this disease went a long way w her ) anyway she was willing at first to help me w low doses and what I would call " spot control" having a few pain meds to get me through the worst of what I could not handle , which sounds like thats what you need . I eventually had to go to see a pain m because she felt uncomfortable about giving me anything higher then 5mg percocet and only 20 a month , my flares usually outlast that by days and sometimes weeks . Anyway , moral of the story lol , sorry I babble ! Maybe your primary could handle the pain once in awhile ? and I cant remember if you said your uro or primary referred you ? but if it wasnt the primary , give them a whirl and see what they say , at the very least they should help find you someone who can treat you . I understand what you mean by picking yourself back up , dont give up , I found myself feeling the very same way so often . Like I guess this is my life and its as good as its going to get ( I still feel that way sometimes ) BUT I found it helped me to get angry on the inside ! dont go to an office and be angry , that wont work , just keep it to stoke your inner determination to get you through . And trust yourself and your body , do not let a doctor or family or friends tell you that its not that bad , or you being too dramatic . YOU know your body more then even the best doctor , keep that in mind . Also a bit of advice doctors seem more willing to compromise if you are open to different treatments , if you say that you dont want to try anything but yet want meds , they most likely wont help you . I have had some pretty hardcore treatments , but at that point I was in such constant severe pain that I was willing to try ANYTHING to see if it helped and yes some of the more scarier treatments did help like pudenal nerve blocks which is NOT an IC treatment but consisted of 3 vaginal needles , 3 times a week . They helped give me some of my life back even though they made me scream while I was getting them . You shouldnt have to do anything you dont want too , just try to stay open minded and compromise and the doctors usually are more helpful that way . I am sorry you have to go through this frustration , it can be overwhelming but it is possible to get through . (((hugs)))


                      Lauren

                      Comment


                      • #12
                        My first Uro was like that. He also wanted to do my cystoscopy with full bladder test with a numbing agent only. I went out and found another who I am with today. For me its odd. While I have very little pain and horrid frequency taking pain medication helps control the frequency. But if you feel you need pain meds I would suggest trying another Uro. You should have the right to pain meds if you need them. I am on Nucynta which has a lesser chance of addiction as it doesn't go to the brain like Vicodin does. Perhaps you could mention to them you'd like to try it for a week and see how it goes? If it were me and my Uro said no without any explanation of why not I would hunt for a new Uro.

                        Comment


                        • #13
                          Physicians are granted privileges based on their education and specialties --- if a physician prescribes what their licensing agency considers "too many" pain medications --- or does procedures for which he/she does not have privileges --- the physician can be reprimanded, and can even lose the license to practice medicine.

                          Most doctors don't make referrals or refuse to prescribe pain medications because they don't care --- they do it because they do care --- and they want their patients to have the best care possible --- and they want to keep helping people.

                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment


                          • #14
                            Re: Dr's who refuse to prescribe medication?

                            "I just started going to a new pain management doctor and he took me off of pain meds because pain meds are not for IC on an continuous basis."

                            Your doctor is wrong. Some IC sufferers only get meaningful pain relief by taking pain meds on a continuous basis.

                            Comment


                            • #15
                              Re: Dr's who refuse to prescribe medication?

                              I am finding it a bit difficult to reconcile the point of caring with refusal to prescribe pain meds, I take pain meds everyday to function, problem for me right now is what to give me when flaring, my uro suggested bladder removal like Donna said they fear for their licences not that all options have been EXHAUSTED and without any doubt bladder removal is not an option for me and because I said so my gp does not want to see me anymore, I live 500km away from my uro and he is mostly in the states that's where his family is, he is old, experienced, wants to retire but worries about patients like me imagine and he comes back to Zimbabwe,because there is noone else like him,

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