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Dr's who refuse to prescribe medication?

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  • #16
    Re: Dr's who refuse to prescribe medication?

    A little over a week ago, I was in such mind-numbing, excruciating pain that my whole body was in a tremor. My lips and teeth were chattering and I couldn't even walk or stand. All I could do was scream in agony and pray for mercy. I truly believe it was the spinach, celery and Green Superfood in my green smoothie that caused it. This was a shock to me as it was all healthy stuff in the drink. From everything I'd seen on the internet, this was supposed to be a drink that did me good. WRONG!! It was like a triple whammy to my bladder. This was no flare. It was a full-fledged inferno. I was in so much pain that I was almost delirious. My husband called an ambulance and they took me to the hospital where they gave me fentanyl in an IV. After about 4 hours, my pain level had dropped from an eleven to a 4 and I was released to go home. My urologist had the ER physician prescribe me pain medication-- Pyridium (15 tablets) and Norco (10 tablets). I ended up having to take the pain meds for a few days longer as I could feel the pain rearing its ugly head and I certainly did NOT want a repeat of that horrid Sunday. I was running out of pain meds.

    By the middle of the week, I began thinking ahead. What if something I ate caused me that kind of pain again? What if it happened over the weekend like it did before? I can't take ibuprofren... it causes a flare. Ice, heat and Epsom salt baths didn't help for that kind of pain. I'd already tried that. So, if this happens again, what am I supposed to do... call another ambulance? So, I called my urologist and explained to the nurse that I was almost out of pain meds and scared spitless of the spot I'd be in if I had a reoccurance. I assured her that I would not abuse the meds and not take them for any little thing. I will only use them in case of a similar episode. The urologist apparently agreed because he called in another prescription but this time only for the Norco (10 pills), and not the Pyridium. I have them here at home on standby and will not take them unless I absolutely have to. Mind you, I've only seen this urologist once in person so I feel very fortunate that he listened to me. I feel better knowing I won't have to suffer like I did last weekend if it should happen again.

    "When you gotta go, you gotta go!"

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    • #17
      Re: Dr's who refuse to prescribe medication?

      Wow, I am so sorry you went through all that! That is just awful. I know when I first got IC I drank a big jar of pure cranberry juice thinking I had a UTI. OMG, all I can say is that I was in agony, pure agony. If felt like someone took a torch and stuck it up my bladder!!! I am so happy the ER gave you some pain meds. Usually they wont! They do not believe that IC required pain meds. How frickin stupid is that???? I still remember a urogyne( she was a lady too) tell me that she NEVER gives pain meds out for IC, ever. She said it was a rule of hers. She told me all people who have IC that take pain meds will eventually become drug addicts and end up rehab! I never went back to see her, what an idiot she was.

      I am just glad that the ER did help you. I do not understand most doctors. I myself am so sensitive to pain meds and all meds for that matter so I usually cannot take them. I have found my regular primary care doctor helps me more than a any urologist ever has. She gave me a script for some percocets ( like 30 pills) to take if I get desperate enough. She also gave me a script for tramadol which did help me years back, but it messed up my gut sooo bad I could not take it. That is an option you can ask your uro about. My doctor said with tramadol, you have to take it consistently and it will work very well for pain. I wish I did not have a reaction to it . Maybe your uro would prescribe it for you. It is not like a narcotic where it is so restricted. If your uro will not prescribe it, I would find yourself a good primary care doctor who is willing to listen to you. I find they are usually more willing to help with the pain issues than a urologist or specialist will....




      Originally posted by Bladderella View Post
      A little over a week ago, I was in such mind-numbing, excruciating pain that my whole body was in a tremor. My lips and teeth were chattering and I couldn't even walk or stand. All I could do was scream in agony and pray for mercy. I truly believe it was the spinach, celery and Green Superfood in my green smoothie that caused it. This was a shock to me as it was all healthy stuff in the drink. From everything I'd seen on the internet, this was supposed to be a drink that did me good. WRONG!! It was like a triple whammy to my bladder. This was no flare. It was a full-fledged inferno. I was in so much pain that I was almost delirious. My husband called an ambulance and they took me to the hospital where they gave me fentanyl in an IV. After about 4 hours, my pain level had dropped from an eleven to a 4 and I was released to go home. My urologist had the ER physician prescribe me pain medication-- Pyridium (15 tablets) and Norco (10 tablets). I ended up having to take the pain meds for a few days longer as I could feel the pain rearing its ugly head and I certainly did NOT want a repeat of that horrid Sunday. I was running out of pain meds.

      By the middle of the week, I began thinking ahead. What if something I ate caused me that kind of pain again? What if it happened over the weekend like it did before? I can't take ibuprofren... it causes a flare. Ice, heat and Epsom salt baths didn't help for that kind of pain. I'd already tried that. So, if this happens again, what am I supposed to do... call another ambulance? So, I called my urologist and explained to the nurse that I was almost out of pain meds and scared spitless of the spot I'd be in if I had a reoccurance. I assured her that I would not abuse the meds and not take them for any little thing. I will only use them in case of a similar episode. The urologist apparently agreed because he called in another prescription but this time only for the Norco (10 pills), and not the Pyridium. I have them here at home on standby and will not take them unless I absolutely have to. Mind you, I've only seen this urologist once in person so I feel very fortunate that he listened to me. I feel better knowing I won't have to suffer like I did last weekend if it should happen again.

      Comment


      • #18
        Re: Dr's who refuse to prescribe medication?

        About 2 years ago, my wife had shoulder surgery for a frozen shoulder. She had received a prescription for Tylenol 3 with Codeine. For grins during on of my flares, I took just 1. Within an hour, things started to fill better. With 2 hours, the pain was pretty much gone.

        So, last summer, after having completed my wife's bottle, I spoke with my Dr. about the possibility of getting a prescription for myself. I get 45 tablets at a time. Because Tylenol 3 with Codeine is addictive, I will only take it when my flare ups get REALLY bad. When it's really bad, I'll take 2 and that will usually get me through it. If not, I will take 1 or 2 more until things subsides.

        I do get refills about every 6 or 7 weeks. It's been a good backup for myself.

        As for AZO, I have found that it usually makes things worse for me.

        Good luck everyone

        Comment


        • #19
          Re: Dr's who refuse to prescribe medication?

          It's good that you have a doctor who is willing to work with you to help with pain control.


          Donna
          Stay safe


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