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  • Starting treatment with pain doctor tomorrow, I'm so scared.

    Tomorrow morning I have my second appointment with the pain doctor to start treatment. I will be being put on an opioid pain patch called buprenophine/butrans, and am so scared.

    I have never taken pain meds for more than a few days, and only have done so a few times. So being on something every day of the weeks is scaring me to death, especially a patch just seems to many things can go wrong with a patch.

    I developed a lot of really horrible side effects from the tricyclic antidepressant I've been taking for many years for my IC, as I became sensitized to it. I am scared of the side effects of the butrans and becoming physically dependant on it as well. And terrified of the withdrawls I'll have from the tricyclic, and worried that the patch wont even do anything for my pain.

    I really don't want to go up on the pain patch at home as I'm affraid of it tanking my blood pressure as it's already very low, and really don't want to tapper off of the tricyclic at home due to how nasty the withdrawls are for me.

    I've been having panic attacks and insomnia for days leading up to this appointment and have been doing nothing but sobbing, I am so terrified of what is to come.

    I don't know how I am going to handle this and bear all that is to come without breaking.

    I wish there was another way, and I wish this wasn't happening to me. I keep wishing this was all a bad dream.
    Live Well
    Love Much
    Laugh Often!




    Diagnosed:
    Dec 2005
    Diagnosis:
    IC
    Cysto/Hydro:
    Dec 2005
    Other Conditions:
    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
    Meds for IC:
    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
    Alternative Treatments
    Physical therapy for 8 weeks, Acupuncture (just started).
    Other Meds:
    Skelaxin (as needed)
    Didn't work:
    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
    Tried:
    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

  • #2
    pain doctor

    Originally posted by Shamay View Post
    Tomorrow morning I have my second appointment with the pain doctor to start treatment. I will be being put on an opioid pain patch called buprenophine/butrans, and am so scared.

    I have never taken pain meds for more than a few days, and only have done so a few times. So being on something every day of the weeks is scaring me to death, especially a patch just seems to many things can go wrong with a patch.

    I developed a lot of really horrible side effects from the tricyclic antidepressant I've been taking for many years for my IC, as I became sensitized to it. I am scared of the side effects of the butrans and becoming physically dependant on it as well. And terrified of the withdrawls I'll have from the tricyclic, and worried that the patch wont even do anything for my pain.

    I really don't want to go up on the pain patch at home as I'm affraid of it tanking my blood pressure as it's already very low, and really don't want to tapper off of the tricyclic at home due to how nasty the withdrawls are for me.

    I've been having panic attacks and insomnia for days leading up to this appointment and have been doing nothing but sobbing, I am so terrified of what is to come.

    I don't know how I am going to handle this and bear all that is to come without breaking.

    I wish there was another way, and I wish this wasn't happening to me. I keep wishing this was all a bad dream.

    Shamay,
    I'm so sorry you're having such a hard time.

    I was wondering if you've spoken with you pain doctor about your concerns about the patch and also about weaning off of your tricyclic. Perhaps he/she would have some suggestions for you.

    I wish I had a really good answer for you, but I'm sure you'll get lots more input here.

    Hugs,
    Laurie

    Comment


    • #3
      That would be stressful! I hope you can talk with your dr. about your concerns.
      I weaned off of Anafranil - which is a tricyclic anti-d-very slowly before I had my son about 10 years ago. As long as you wean off and take months, not weeks I think you should do ok. You might have alittle bit of nausea, but that is about it. Go in really small steps, I used a pill cutter and cut of 1/8 of pill for a week and then 2/8 of the pill the next week and so on and so on. Then once you are at zero, go an 1/8 one day and zero every other day the next for a week or so.
      Good luck and let us know how the appt goes..
      -Pammylynn Rose
      Wishing everyone a pain free bladder day!


      Painful symptoms start in May 2011
      Diagnosed with IC in Aug 2011

      MEDICATIONS
      Elmiron
      Axert (only for rare migraines)
      Strict IC diet
      Gluten/dairy/egg free diet


      Comment


      • #4
        Thank you Bubbe,

        I will talk to him tomorrow. I have a lot of questions heh.. I hope he doesn't get to to irritated.
        Live Well
        Love Much
        Laugh Often!




        Diagnosed:
        Dec 2005
        Diagnosis:
        IC
        Cysto/Hydro:
        Dec 2005
        Other Conditions:
        Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
        Meds for IC:
        Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
        Alternative Treatments
        Physical therapy for 8 weeks, Acupuncture (just started).
        Other Meds:
        Skelaxin (as needed)
        Didn't work:
        Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
        Tried:
        Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

        Comment


        • #5
          Pammylynn8,

          Thank you, it has been very stressful. I never know who I'm going to be from day to day right now, my moods and thoughts are not my own a lot of the time.

          I wish that my medication was a pill, although sadly it is a capsul so I cannot wean down like I would like to. It only goes by 10 milligrams so it is super hard and no fun to come down off of this stuff. And with me already being emotionally unsteady because of it, I am am worried. The last time I tried to go off of this stuff, I had insomnia, anxiety, nausea and mood swings. I really don't need that on top of everything. I don't know how I'm going to manage this and am pretty scared.

          Lesson learned, I will not take a medication for pain that comes in a capsule and cannot be compounded by a pharmacy evenly.
          Last edited by Tink22; 08-10-2011, 03:40 PM.
          Live Well
          Love Much
          Laugh Often!




          Diagnosed:
          Dec 2005
          Diagnosis:
          IC
          Cysto/Hydro:
          Dec 2005
          Other Conditions:
          Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
          Meds for IC:
          Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
          Alternative Treatments
          Physical therapy for 8 weeks, Acupuncture (just started).
          Other Meds:
          Skelaxin (as needed)
          Didn't work:
          Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
          Tried:
          Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

          Comment


          • #6
            Good luck tomorrow. Hopefully the pain specialist will be able to help you with your concerns regarding tapering off the tricyclic. I don 't do well on them either. They give me terrible side effects.

            Comment


            • #7
              Thank you earthlady,

              I sure hope he is able to help ease my worries and have some helpful solitions. I'm keeping my fingers crossed.
              Live Well
              Love Much
              Laugh Often!




              Diagnosed:
              Dec 2005
              Diagnosis:
              IC
              Cysto/Hydro:
              Dec 2005
              Other Conditions:
              Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
              Meds for IC:
              Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
              Alternative Treatments
              Physical therapy for 8 weeks, Acupuncture (just started).
              Other Meds:
              Skelaxin (as needed)
              Didn't work:
              Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
              Tried:
              Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

              Comment


              • #8
                Originally posted by Shamay View Post
                Pammylynn8,

                Thank you, it has been very stressful. I never know who I'm going to be from day to day right now, my moods and thoughts are not my own a lot of the time.

                I wish that my medication was a pill, although sadly it is a capsul so I cannot wean down like I would like to. It only goes by 10 milligrams so it is super hard and no fun to come down off of this stuff. And with me already being emotionally unsteady because of it, I am am worried. The last time I tried to go off of this stuff, I hadop of everything. I don't know how I'm going to manage this and am pretty scared.

                Lesson learned, I will not take a medication for pain that comes in a capsule and cannot be compounded by a pharmacy evenly.
                oh I forgot to tell you what I did with my capsule. You can buy empty shell gel caps at the store. here is a link:. Then you will cut open the original pill and take out a the corresponding amount and pour it into new capsule, seal and take that dose. That is what I did and it worked great. I hope this helps! You can go down as slow as you want like I mentioned above.
                -Pammylynn Rose
                Wishing everyone a pain free bladder day!


                Painful symptoms start in May 2011
                Diagnosed with IC in Aug 2011

                MEDICATIONS
                Elmiron
                Axert (only for rare migraines)
                Strict IC diet
                Gluten/dairy/egg free diet


                Comment


                • #9
                  Originally posted by Shamay View Post
                  Thank you earthlady,

                  I sure hope he is able to help ease my worries and have some helpful solitions. I'm keeping my fingers crossed.
                  fingers crossed for you!
                  -Pammylynn Rose
                  Wishing everyone a pain free bladder day!


                  Painful symptoms start in May 2011
                  Diagnosed with IC in Aug 2011

                  MEDICATIONS
                  Elmiron
                  Axert (only for rare migraines)
                  Strict IC diet
                  Gluten/dairy/egg free diet


                  Comment


                  • #10
                    pammylynn8,

                    Thank you for the information, as well as for the the crossed fingers, I really appreciate it.
                    Live Well
                    Love Much
                    Laugh Often!




                    Diagnosed:
                    Dec 2005
                    Diagnosis:
                    IC
                    Cysto/Hydro:
                    Dec 2005
                    Other Conditions:
                    Anxiety, Insomnia, Chronic Sinusitis, Bursitis of the hip, Chronic Fatigue Syndrome, PFD, Inflamitory Arthritis of the neck, Allergy to Yeast and Dairy
                    Meds for IC:
                    Prosed/DS as needed which works much better for me than Pyridium, Prelief, Coffee Tamer, Claritin 5mgs and sodium bicarb as needed.
                    Alternative Treatments
                    Physical therapy for 8 weeks, Acupuncture (just started).
                    Other Meds:
                    Skelaxin (as needed)
                    Didn't work:
                    Detrol LA (didn't help symptoms), Pyridium 200mg isn't working very well anymore.
                    Tried:
                    Elmiron (Major Dizziness), Hydrodistention (Greatly exacerbated IC symptoms), Urised (hard time breathing), Ditropan (bladder pain the next day), Rescue Instillations - Lidocane, sodium bicarb (all over body rash with itching),

                    Comment

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