need help

[carrolltonia]

I have had ic for 15 years tried all the great meds. Have had 30 or more dsmo treatments. I have had interstim surgery 2 years ago. 6 Bladder distentions. I am at the point none of this stuff does not work. I have pain medications. What happens now I am in pain all the time and when it is bad I cant even walk. What do I do now? If anyone knows what I can do please let me know so I can talk to my Dr about it. I am 38 and on disabilty and at the end of my ropes. I talked to my nurse and she said there is really nothing else.



meds I am on
jintel for hormon therapy
gabapenton 1200 mg 3 times a day
flexeril 10mg three times a day
nitrofuranton 100 mg
oxybutyn 10mg
hydroxyzine 10mg
hydrocodone
was on proced but medicare wont pay for it

[nineteenwinters]

Have you tried the IC diet? That seems to help a lot of people especially those who can't take/get the drugs.

[ICNDonna]

Have you tried elmiron? Some people find that helps significantly.

Donna

[carrolltonia]

elmiron, and ic diet

Hi thank you for your replys,but unfortunetly I have tried elmiron and ic diet.

[Pammylynn8]

I have found herbal teas have helped me quite a bit. I think part of it just mental. but it does make me slow down when I drink them.. and my symptoms get a lot less. Also I do relaxation techniques during the day. If relaxation can help my mind and other parts relax I know it can relax my bladder.I am experimenting with that. You might want to try starting bio feedback and other alternative treatments. they could really help!