Tweet
I am not sure where to post this so hopefully I'm in the right place. I have IC, vulvodynia, and pelvic floor dysfunction and have been doing semi okay for several years just with Elmiron and occasionally using a compounding cream and a valium suppository. Since July, I have had two bouts of diverticulitis, the first one with perforations and an abscess. The first episode was bad enough to land me in the hospital for almost a week and require me to have a temporary bag put in the drain the abscess. I've never really stopped hurting since the first one. My doctor said I need to have a Sigmoid Colectomy to remove the part of my colon which keeps getting infected. I'm not even scared about that. I'm scared because he is insisting that I have a catheter put in for the surgery and for the first day afterwards. I have had absolutely horrible experiences with them. I shake and cry at just the idea of them.
So here are my questions:
Has anyone ever had issues with not being able to empty into a catheter? I had one in for a couple of hours after a car accident and was in so much pain and crying because I really needed to pee. The nurse insisted that I didn't have to because I was on the catheter. I finally told them I would leave if they didn't take it out. They took it out and I asked for a bed pan and was told that I didn't need one since I had been on the catheter for so long. I insisted and then much to the surprise of the nurse and doctor half filled the bed pan, which for me is a lot of urine.
Even with a pediatric tube with lidocaine, I suffered for pain for two days after having a catheter put in for my c section. Is this normal for people with IC? Doctors look at me like I'm nuts.
When I had a hydrodistention done, I woke up with a bloody lip. They told me I was "difficult". I have had anesthesia before and after with no problems. This was the only time I was under with a catheter. The only thing I can think is that even when under, the pain is too great for me and I try to stop them. I cried for 4 days afterwards since it felt as though I was literally peeing glass out. Has anyone else had any type of experience like that?
Has anyone had a suprapubic catheter put in just for surgery and had it removed a day or so later? What did you think of it if you did? I'm wondering if it would help me.
Any help or suggestions would be greatly appreciated. I don't want to put off this surgery to the point where it becomes an emergency, but I'm so terrified of the catheter it's ridiculous.
So here are my questions:
Has anyone ever had issues with not being able to empty into a catheter? I had one in for a couple of hours after a car accident and was in so much pain and crying because I really needed to pee. The nurse insisted that I didn't have to because I was on the catheter. I finally told them I would leave if they didn't take it out. They took it out and I asked for a bed pan and was told that I didn't need one since I had been on the catheter for so long. I insisted and then much to the surprise of the nurse and doctor half filled the bed pan, which for me is a lot of urine.
Even with a pediatric tube with lidocaine, I suffered for pain for two days after having a catheter put in for my c section. Is this normal for people with IC? Doctors look at me like I'm nuts.
When I had a hydrodistention done, I woke up with a bloody lip. They told me I was "difficult". I have had anesthesia before and after with no problems. This was the only time I was under with a catheter. The only thing I can think is that even when under, the pain is too great for me and I try to stop them. I cried for 4 days afterwards since it felt as though I was literally peeing glass out. Has anyone else had any type of experience like that?
Has anyone had a suprapubic catheter put in just for surgery and had it removed a day or so later? What did you think of it if you did? I'm wondering if it would help me.
Any help or suggestions would be greatly appreciated. I don't want to put off this surgery to the point where it becomes an emergency, but I'm so terrified of the catheter it's ridiculous.
Comment