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  • Help!!!

    Hi, I was just told about this site and am so pleased to find some support. No-one understands what I've been going through with my symptoms. I have become anti-social because of IC and Fibromyalgia. It prevents me from committing to things. I feel more and more depressed and when I have flare ups I just want to quit but I have a 12yr old son at home to take care of. He gets fed up with me having to lay down and being too tired or in pain. It's difficult for him to understand. [img]confused.gif[/img]

  • #2
    Hi Judyanne, sorry to hear about your struggles! I hear what you're going through and it is very hard to find people who understand throughout your day to day routine. There was a point at which I thought I had fibromyalgia and IBS, but it turned out to be symptoms of Elmiron after taking it for five years. I hope you're not on too much of a medicine-soup because all that junk pumped into your system can really make things worse sometimes. I'll be thinking of you and praying for restful days and I hope you can find time to be quiet with yourself and just take one step at a time.
    "Yours is the face the world turns to me."


    • #3

      You will find tons of support here! This is where I found my peace of mind 4 years ago. If there is anything we can help you out with don't hesitate to ask.

      Best Wishes,

      Kara <img src="graemlins/blink.gif" border="0" alt="[blink]" />
      "Never take, I don't know how to help you as an answer."

      [email protected]



      • #4
        Thanks for your support. I'm not on any medication as yet other than antidepressants and I had all these nasty symptoms well before I started them. I will find out a little more on Friday after my cystology results. [img]frown.gif[/img]


        • #5
          Dear Judyanne,

          I'm sorry about how you are feeling. When ic first cropped up for me, I too just withdrew from a lot of my activities. It was hard on my ten year old. Do you live in Perth?
          Have you been able to get in touch with a support group they even have one? I know they do in Adelaide and Melbourne (yeh, just a hop, skip, and a jump away). However, Helen O'Connell, who is with the Royal Melbourne Hospital Univeristy of Melbourne 39 3479911, might be instrumental in knowing of a general IC support group/network in Aust., and thus, one closer to you. She's listed on this website as being involved with IC treatment. Try to hang in there. Hopefully some meds. (once prescribed) will help you feel better. I know there is a little bit of frustration about Aust. (and other countries) having different meds. than those being used (and referred to)here. From my understanding (since I'm originally from Adelaide), Aust. is even less knowledgable about IC (don't know about fibro.) than they are here in the USA. Perhaps the lifestyle there makes it less condusive for such disorders - take care.


          • #6
            Hi Judyanne....

            Whatever you not give up. You will find tons of support here and we are all the same and understand exactly where you are coming from [img]wink.gif[/img]
            Let us know how your cysto went.
            Greetings from the US to all of you from down under <img src="graemlins/hi.gif" border="0" alt="[hi]" />

            Christine <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />
            I promise not to laugh... if you promise not to cry

            Christine .....The GERMAN GIRL ( who can't spell )


            • #7
              Hi ...don't give up...I have a 12 year old daughter and a 13 year old son...I can imagine what you are going through...I just found this site and hope to find comfort here too. Tina <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />


              • #8
                Hi Judyanne,
                Welcome to the board. I love it here. You'll find tons of help and support. The women on here are great [img]smile.gif[/img]
                I'm sorry you haven't been feeling well lately. I have had IC for 2 years now and also have Fibro. I haven't been diagnosed with it properly but, I've diagnosed myself.
                I hope that you feel better soon and can get some rest. *HUGS* <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" />


                • #9
                  Hi Judyanne,
                  You are much stronger than you think you are! I am struggling with this disease right now as well, but I know that something is going to help us. So many people that were in the pain we are in have gotten sooooooooo much better. It is hard to believe sometimes, but it is a fact!!!! There are so many treatments listed on this site...something has to work!!!Good luck!!!!!
                  ((((((((Hugs)))))))) <img src="graemlins/grouphug.gif" border="0" alt="[grouphug]" /> <img src="graemlins/kissing.gif" border="0" alt="[kissing]" />
                  Melanie R.
                  "God carries us through the times that we feel the lowest"~unknown