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  • #1

    10th Annerversary

    Hi, this is my tenth year with IC and I am no better now than I was 10 years ago, at the moment I have BCG installations which give some relief but only for a short time.Have been in hospital 20 times in last 51/2 years.
    I am taking Oxycodone for pain, this helps but I am afraid I cannot see any future for me.
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    • #2
      Ronald welcome to the boards. I am so sorry that you are feeling so down. I have been dealing with ic since the early 80s and had remisson until 98 and then remisson until 2003. Now I am dealing with a raging uti and flare and just discouraged. There is hope and a future. You are not alone. You can have alife with ic. Please keep posting and let us knw how you are doing. Hang in there.There' shope.
      Hang in there , There is hope.
      There is hope. Prayer works.

      Love, Debbie

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        • #3
          Welcome, Ron! hi Sorry you are feeling so bad still... But I am glad you are here. Sometimes just being able to commiserate with others going through the same thing takes the edge off a little bit. Hope to see you around more.
          Kim

          Diagnosed August 2001

          Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

          Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

          I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

          *****************************

          “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

          “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

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            • #4
              I'm glad you found the IC Network. There's a lot of information and support here.

              There are many, many treatments available for IC --- I encourage you to read the information in the Patient Handbook. You'll find the link in the pull-down Browse Our Site menu at the top of this page.

              I hope one day soon you will find the treatment that works well for you.

              Sending healing thoughts,
              Donna
              Stay safe


              Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
              Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

              Have you checked the ICN Shop?
              Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

              Patient Help: http://www.ic-network.com/patientlinks.html

              Sub-types https://www.ic-network.com/five-pote...markably-well/

              Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

              AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

              I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.               [3MG]

              Anyone who says something is foolproof hasn't met a determined fool

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                • #5
                  Hi to Everyone, thanks for all the uplifting support, I have actually been registered for about 3 years but this is the first time I have posted, it looks like I will have to make more of an effort in the future. hi


                  Thanks,
                  Ron

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                    • #6
                      Hi to Everyone, thanks for all the uplifting support, I have actually been registered for about 3 years but this is my first post, I will just have to make more of an effort in the future. hi


                      Thanks Ron

                        Comment

                        • #7
                          Hi to Everyone,thanks for all the uplifting support,I have actually been a member for about 3 years but this is my first time I have posted on the site, it looks like I will have to make more of an effort in the future.


                          Thanks, hi

                          Ron

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