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Let's create a list of IC specialists in Canada?

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  • #31
    I know what you mean I had a Dr. tell me repeatly my symptoms, I would say no, he would ignore me and write down that I said it. He decided what was wrong before he saw me and need my symptoms to match his diagnoses. I have had Dr. say if I was not willing to do what they want then they would do nothing for me. I would find a new Dr.
    I think the IC Dr. I am going to see at the end of april is going to want me to try Elmiron, I am not really opposed to it but I have had a migrine for the last 3 1/2 years non stop real bad, when I got on this iste I read that lots a people use Clonozapam for IC, I have been using this to help with sleep, bur Dr. kept saying no more than once every three days, so that is what I did. I always felt headache was from lack of sleep. After reading this here I tried taking everynight and after a week no more headache. Dr. said this was okay but they do not want me to increase dose. Okay to stay on one pill a day but not more, so heres hopeing 1 does it, it is so nice to not ahve a constant headache. Most drug if they have a side effect of headache or urine retention, then I get that but intolerable for me. I will go see him and see what he has to say, maybe I can use this drug in instills instead of a pill. I will go with an open mind but I am deathly afraid to do anything that will cause a headache.
    Mothergoose
    My are with you all. May you all find a way to peace and joy in your lives.

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    • #32
      I really feel for you about the headaches, I used to get horrible migraines, and even when I didn't have a migraine I usually still had a headache. When I started novo-methacin to try to help my ic it triggered nasty migraines that I hadn't had in years. For me it was in the morning. I wouldn't be able to move it hurt so bad, and since the pills didn't seem to be helping my ic I quit after 3 days. I really understand horrible headaches, then you add a dysfunctional bladder on top of that, it's really not pleasant. The thing with clonozepam is it's a benzo and is very addictive, like my ativans. That's why they don't want you to take too many because the withdrawal afterwards is not pleasant. But god does it help relax! I hope you'll have better luck soon.

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      • #33
        uro app

        I saw Dr. teichman last week I knew from here he needs to work on bed sidemanner. My app went okay, he agree with last uro it's IC. He is doing an ultrs sound and a cysto in May. He wasn't very chatty, he asked loads of question. I came away realizing I never got to ask the things I want to know, and about thing I think that are not related to IC. When I got home I wrote everything I was unable ask and faxed them to him, his recetionist says he does read his faxes. I just wanted him to know if he thinks it is more than IC and wants to do any tests, I want them set up for the sametime I go for cysto cause I have to travel so far.
        My are with you all. May you all find a way to peace and joy in your lives.

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        • #34
          Does anyone of someone who treats PFD in Vancouver

          Hi my gp thinkd it would be a good idea for me to see a PT to get help with PFD. Maybe get taught how to help myself because I live so far away. Problem is I can't find anyone who know anything about PFD. Everyplace I have called says come in for an assessment and we will see if we can help you. some said oh yes we can help with retraining, comman assumption with PFD that you must be incontinent and need bladder retraining. I don't have time when I am at the coast to try nummorus people to find one that know what to do. Or take the chance they will make me worse.

          Anyways if anyone know someone who is trained and can helpin or around Vancouver.
          Thank you Mothergoose
          My are with you all. May you all find a way to peace and joy in your lives.

          Comment


          • #35
            is there anyone from New Brunswick?

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            • #36
              First of all, sorry Jill, for forgetting the rules. I will be more tactful now.
              I switched from Dr. Teichman at St. Paul's to Dr. Poon, a Gyno/Urologist in North Vancouver. She has done several procedures on me, hydrodistensions, which seem to stretch my bladder and clean me out, temporarily relieves my symptoms. I've found I'm much more comfortable having a woman Dr. who can treat me for this and also understands what it's like to be a woman. There seems to be a real shortage of OR time for Uro's at Lion's Gate Hospital right now, and I can't have another procedure now until have been tested for Laytex allergies. But I needed my procedure yesterday!!!! Another day another dilemma!!
              Hugs,
              Curlette

              Drugs I use now:
              HM Contin 12mg twice daily
              2 mg Dilaudid for breakthrough pain
              Temazepam for sleep
              CES orally

              Drugs I have used in the past:
              Elmiron
              Elavil
              Gabapentin
              Vagifem
              Lomotil
              Ativan
              Buscopan
              Demerol
              Flexeril
              Way too many to list!!!!!

              Medical History:
              Have had L4 laminectomy, L4,5 & S1 discectomies, cholecystectomy, appendectomy, gall bladder removed, nasal surgery for accute sinusitis, severe,endometriosis resulting in a total hysterectomy. Also diagnosed with IC, IBS, severe spinal stenosis, severe osteo-arthritis, I wear hearing aids in both ears due to an earlier "abusive marriage". I have Hepatitis C Type 1b, have had this for over 3 decades, this has affected my liver and immune system. Had a blood tranfusion when I was in the Middle East and we think that I got the Hep C at that time.They buy the "blood" there, and as it was so many years ago, they didn't even know the disease existed.I have lost over 60 lbs since my botched hysterectomy where they had to go in again and remove 4 feet of my colon where they had mistakenly stapled it through. I've shrunk from 5'9 to 5'6 because of the osteoporosis. When they first diagnosed me with IC, they found out that my bladder is only 40% the size of a normal bladder, which explains why I have to pee so often, even aside from the IC! I Have had two hydrodistentions, so far, but will need more on a regular basis. We all need to have faith that they will find a cure soon.
              I believe that if we can reduce our stress, learn better ways to cope, we may have a better chance of dealing with this!!!

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              • #37
                I am glad you found someone. or time shortage is universal throught BC. My Daughter was in emerg at Xmas, needed an ultrasound for extreme ab pain she finally got in the begin of March go figure. I am glad you found another Dr. I saw Dr. Teichman and I quite liked him he dosen't say much, or give you much time to ask what you want but next time I am going with a list of questions I want anwered and I am not leaving ti ll he address them. He spent his time asking a million questions, and listening to my answers, this took 45 mins so I am sure next time now that we have that out of the way and we a direction to go in I will get to ask ? too. It was not total his fault I was kinda over whelemed by all his question.
                Mothergoose
                My are with you all. May you all find a way to peace and joy in your lives.

                Comment


                • #38
                  I too felt that Dr. Teichman posed a lot of questions but I felt overwhelmed. I had my hydrodistention and he came in to the recovery room to tell me how it went. I was still doped out from the anesthetic. He asked if I had any questions and I was speachless. Then I got home and had a million questions.
                  Interstitial Cystitis: Elmiron and Hydroxyzine
                  Depression/Anxiety: Remeron, Cipralex and Clonazepam

                  *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
                  * 2 hydrodistentions :

                  * currently on "Nabilone" for pain management

                  Taken the following:
                  Gabapentin no relief but could tolerate it
                  Lyricano relief but could tolerate it
                  Cymbalta severe depression/anxiety etc.
                  Topamax severe nausea and weight loss
                  Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

                  What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

                  Other conditions...
                  Vulvadynia (amytriptaline cream - no longer using to to irritation)
                  Severe IBS
                  Chronic Sinus pain (nasal rinse as need)
                  Migraines
                  Lower back and sacroiliac joint disfunction

                  Allergies: Erythromycin, scents and detergents

                  Comment


                  • #39
                    I'd be pretty happy if any of my doctors bothered to ask me a lot of questions. Mine just ask, 'so what's your main symptom'. At least by asking a lot of questions there's a better chance he can help you.

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                    • #40
                      Hi after I saw him I felt i had not asked the ? I wanted to so I wrote them all down and explained why I was writing to him, I then called his office asked for his fax number, his receptionist said that he reads all his faxes. I have not heard back from him but I didn't expect too I just wanted him to know what concerned me before my next app next week. Maybe you could try that. If you don't have an app soon say you would like a responce.
                      Mothergoose
                      My are with you all. May you all find a way to peace and joy in your lives.

                      Comment


                      • #41
                        Montreal: Dr. Keith Matthews at St. Mary's. He is a sweetheart.

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                        • #42
                          BRAEDELY...did you find a doctor in Halifax?

                          Hey there...just wondering who you are seeing in Halifax?? I am seeing Dr. Norman.......but my appointment was so quick and out the door I did not have time to breath. I found myself not knowing what to ask (I know now, but at the time I had no clue)....he did all the talking...and just scheduled me for a bladder distention. I cancelled....and am due to go again in Feb...but again not sure if I am going...

                          I never did get all the info I wanted from him....

                          Who are you seeing? if there is someone else, Iw ould love to know.

                          thx.
                          peace
                          blue

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                          • #43
                            You can go to the IC ass web site and ask for a list of Dr. registered to treat IC in Canada. I found a very good one from this list.
                            My are with you all. May you all find a way to peace and joy in your lives.

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                            • #44
                              what is the address of that site?

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                              • #45
                                I believe it is www.canadaic.com
                                My are with you all. May you all find a way to peace and joy in your lives.

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