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Let's create a list of IC specialists in Canada?

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    playethic
    ICN Member

  • playethic
    replied
    IC support, in person, downtown Vancouver, 2011

    Hi
    I'm willing to be a connector/coordinator to get a Vancouver support group going. I contacted two Lower Mainland names mentioned in this forum, they are located in a city outside of Vancouver but don't currently meet as an in-person support group.
    I'm interested in meeting centrally, even somewhere nearabouts St. Paul's Hospital. We will need to brainstorm meeting space, and I'm willing to start putting out feelers about that if there is enough interest.
    If you are interested in meeting with other IC patient to discuss places to get/try treatment, solutions/remedies we've tried/had any successes with, local GPs sympathetic/knowledgeable about IC (I have an idea about this one), specialists, current local research trials, and to share experiences/successes/side effect of different narcotics/opiates, let me know. I'm interested in informal gatherings initially, and am keen to begin this in downtown Vancouver somewhere as soon as March 2011.
    Please connect if you are interested.
    Lisa
    Vancouver BC Canada

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  • Mothergoose
    ICN Member

  • Mothergoose
    replied
    Sorry this took me so long to reply to this, I haven't been on the computer much lately.

    Go to the IC ass web site given in a previous post and there is a contact us on it some where I email a person who very nicely responded to all my ?'s and sent me a list of all the Dr. that have register with them that they treat IC, there are I am sure other's who treat it but have not registared with them, so it does not have all dr for sure but it is a starting place.

    This person forgotten her name right now is very helpful with any info you need, I have even emailed her after speaking to uros and getting conflicting info, and she has given me the latest thoughts. I think sometime Dr. learn about it but then as ideas change they don't keep up with the new thinking, so they don't always know what is current. I realize they have lots to keep up with, so if IC is just part of their practice, they may not be current.

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  • canagirl
    ICN Member

  • canagirl
    replied
    It seems to be the same site as this, where could I find the list?

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  • Mothergoose
    ICN Member

  • Mothergoose
    replied
    I believe it is www.canadaic.com

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  • canagirl
    ICN Member

  • canagirl
    replied
    what is the address of that site?

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  • Mothergoose
    ICN Member

  • Mothergoose
    replied
    You can go to the IC ass web site and ask for a list of Dr. registered to treat IC in Canada. I found a very good one from this list.

    Leave a comment:

  • bluetou
    ICN Member

  • bluetou
    replied
    BRAEDELY...did you find a doctor in Halifax?

    Hey there...just wondering who you are seeing in Halifax?? I am seeing Dr. Norman.......but my appointment was so quick and out the door I did not have time to breath. I found myself not knowing what to ask (I know now, but at the time I had no clue)....he did all the talking...and just scheduled me for a bladder distention. I cancelled....and am due to go again in Feb...but again not sure if I am going...

    I never did get all the info I wanted from him....

    Who are you seeing? if there is someone else, Iw ould love to know.

    thx.
    peace
    blue

    Leave a comment:

  • canagirl
    ICN Member

  • canagirl
    replied
    Montreal: Dr. Keith Matthews at St. Mary's. He is a sweetheart.

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  • Mothergoose
    ICN Member

  • Mothergoose
    replied
    Hi after I saw him I felt i had not asked the ? I wanted to so I wrote them all down and explained why I was writing to him, I then called his office asked for his fax number, his receptionist said that he reads all his faxes. I have not heard back from him but I didn't expect too I just wanted him to know what concerned me before my next app next week. Maybe you could try that. If you don't have an app soon say you would like a responce.
    Mothergoose

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  • mcdoll
    ICN Member

  • mcdoll
    replied
    I'd be pretty happy if any of my doctors bothered to ask me a lot of questions. Mine just ask, 'so what's your main symptom'. At least by asking a lot of questions there's a better chance he can help you.

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  • bladder
    ICN Member

  • bladder
    replied
    I too felt that Dr. Teichman posed a lot of questions but I felt overwhelmed. I had my hydrodistention and he came in to the recovery room to tell me how it went. I was still doped out from the anesthetic. He asked if I had any questions and I was speachless. Then I got home and had a million questions.

    Leave a comment:

  • Mothergoose
    ICN Member

  • Mothergoose
    replied
    I am glad you found someone. or time shortage is universal throught BC. My Daughter was in emerg at Xmas, needed an ultrasound for extreme ab pain she finally got in the begin of March go figure. I am glad you found another Dr. I saw Dr. Teichman and I quite liked him he dosen't say much, or give you much time to ask what you want but next time I am going with a list of questions I want anwered and I am not leaving ti ll he address them. He spent his time asking a million questions, and listening to my answers, this took 45 mins so I am sure next time now that we have that out of the way and we a direction to go in I will get to ask ? too. It was not total his fault I was kinda over whelemed by all his question.
    Mothergoose

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  • curlette
    ICN Member

  • curlette
    replied
    First of all, sorry Jill, for forgetting the rules. I will be more tactful now.
    I switched from Dr. Teichman at St. Paul's to Dr. Poon, a Gyno/Urologist in North Vancouver. She has done several procedures on me, hydrodistensions, which seem to stretch my bladder and clean me out, temporarily relieves my symptoms. I've found I'm much more comfortable having a woman Dr. who can treat me for this and also understands what it's like to be a woman. There seems to be a real shortage of OR time for Uro's at Lion's Gate Hospital right now, and I can't have another procedure now until have been tested for Laytex allergies. But I needed my procedure yesterday!!!! Another day another dilemma!!

    Leave a comment:

  • missusg
    ICN Member

  • missusg
    replied
    is there anyone from New Brunswick?

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  • Mothergoose
    ICN Member

  • Mothergoose
    replied
    Does anyone of someone who treats PFD in Vancouver

    Hi my gp thinkd it would be a good idea for me to see a PT to get help with PFD. Maybe get taught how to help myself because I live so far away. Problem is I can't find anyone who know anything about PFD. Everyplace I have called says come in for an assessment and we will see if we can help you. some said oh yes we can help with retraining, comman assumption with PFD that you must be incontinent and need bladder retraining. I don't have time when I am at the coast to try nummorus people to find one that know what to do. Or take the chance they will make me worse.

    Anyways if anyone know someone who is trained and can helpin or around Vancouver.
    Thank you Mothergoose

    Leave a comment:

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