Announcement

Collapse
No announcement yet.

Looking for Canadian kindred spirits

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Looking for Canadian kindred spirits

    I am a newly diagnosed Canadian living in the Greater Toronto area. It has been a long haul for me waiting for referrals and diagnosis, and my current issue is trying to find a urologist who specializes in IC. My urologist is sweet and his assistant is wonderful, but he wants me to see someone else and for now I am not getting any treatments and I am playing the waiting game. He did a cystoscopy without distention on me and did not find ulcers or obvious damage (correct me if I am wrong but that is not the gold standard for diagnosis anymore) , so was reluctant to diagnose me. A year later he finally conceded that I have IC. So, the referral game began. A month after diagnosis my urologist's assistant has been turned down by a doctor in St. Catherine's and (not accepting new patients) and is now working on another one in Toronto. If that one falls through I guess she is going to try Dr. Nickel in Kingston. It could take up to a year to see anyone if I am lucky enough to get on a waiting list. Long gone are the days when I would have scoffed at driving 3.5 hours to see a doctor. No problem. I would crawl on my knees to get there now! i am actually considering flying to New York City to see a specialist there. My best friend lives there so for air fare and a few hundred dollars, I can at least get a consult with someone and maybe get a plan for treatment. It is so frustrating. For now I am trying to stick to the diet and see if that helps.
    CindyLu
    ICN Member
    Last edited by CindyLu; 06-10-2008, 05:22 AM.
    CindyLu

    Current medications:

    Elmiron 100mg 3x day
    Vesicare 10mg 1x day
    Elavil 10mg 1x day
    Estring

  • #2
    Hi Cindy,

    I know of a Uro that specializes in IC and right now as soon as I saw your post, his name just went out of my mind.... please give me a couple of minutes and I'll find his name for you.

    Take care
    Kim

    Comment


    • #3
      Hi Cindy,

      I found it... the Dr's name is Jeffrey Charendoff... here's the link to the College of Physician's and Surgeon's website... http://www.cpso.on.ca/Doctor_Search/...eRefNo=0038784

      Also, you might want to try Dr. Leslie Carr.

      Good Luck,
      Kim

      Comment


      • #4
        Kim. Thanks for your reply. My local urologist tried Dr. Carr and she turned me down. The usual thing in Ontario, ie. not accepting new patients.

        Dr. Charendoff is on my list too. My urologist thought that he was just kind of a regular urologist like himself, but his name keeps cropping up in the IC world, so I will phone my urologist's assistant and give her that name to try too. It says he is accepting new patients on the College of Physicians website.

        Thanks for your support. I simply cannot wait to get a doctor. I am trying to avoid flying to the US to get some help.

        Cindy
        CindyLu

        Current medications:

        Elmiron 100mg 3x day
        Vesicare 10mg 1x day
        Elavil 10mg 1x day
        Estring

        Comment


        • #5
          Hi Cindy

          Glad I can be of help. I didn't realize that Dr. Carr was turning down patients. I do know she ran the pelvic health clinic at Women's College Hospital back a few years ago, but they had to close it down due to lack of funding. The Board of Directors simply would not support the clinic- a lot of Dr's went to bat for the clinic. I also think it was a political thing going on... not much was said.

          Talk to you later,
          Kim

          Comment


          • #6
            Hi Cindy: Yes Dr. Carr is no longer seeing IC patients. Try Dr. Herschorn at Sunnybrooke. He is seeing IC patients and is very up on the latest treatments.

            Comment


            • #7
              Thank you so much for the information. I will look into that.
              CindyLu

              Current medications:

              Elmiron 100mg 3x day
              Vesicare 10mg 1x day
              Elavil 10mg 1x day
              Estring

              Comment


              • #8
                Hi Cindy,

                Dr. Herschorn's first name is Sender, I beleive. My Uro left the business and I need to find a new one.... I just might also look into Dr. Hershorn myself...

                Happy Monday


                Kim

                Comment


                • #9
                  Yes. It is Sender. I looked it up on the College of Physician's site. He isn't accepting new patients, but I have him on my list of Dr.s to try if the one my doctor is currently looking into doesn't work out. My current urologist who is looking for more of an expert on IC for me isn't exactly rushing into getting the necessary paper work done and when I spoke to his assistant she said my referral has been sitting on his desk (for weeks now) waiting for his signature. How frustrating is that? While I burn and give up all the foods I love, not to mention wine, the paperwork sits there. So I am trying to be patient and not feel like a victim of the medical system....hard not too when I am already feeling like a victim of this frustrating illness. Thanks for your help Kim.
                  CindyLu

                  Current medications:

                  Elmiron 100mg 3x day
                  Vesicare 10mg 1x day
                  Elavil 10mg 1x day
                  Estring

                  Comment


                  • #10
                    Wow. What a nightmare. It is so frustrating to be sick and not able to find someone to care for you. I am calling my urologist's office tomorrow to hound them about my referral, and I emailed my family doctor abut my problem getting a specialist, and he is having his office work on it for me as well. So, fingers crossed everyone.

                    It is a uniquely Canadian perspective on medical care, and all systems have their down side I guess. All I know is that if I could pay someone close to home to deal with my case, I would gladly do it. It will be interesting to see how long it takes me to get in to see a specialist once I find one to actually take me. Probably 8 months.

                    My question is, if you are a urologist, why can't you treat IC? Give me a break...
                    CindyLu

                    Current medications:

                    Elmiron 100mg 3x day
                    Vesicare 10mg 1x day
                    Elavil 10mg 1x day
                    Estring

                    Comment


                    • #11
                      I am sorry it is taking you so long to get an appointment. My MIL is in St Catharines and she is having similar problems with the neurologists there. Apparently there are only 4 in all of the Niagara region. They think she has MS but everything has taken forever to process. She has been waiting many many months. My husband told her that we have like 8-10 just in one of the small towns near us not to mention all of them in the city. I know because my husband had a seizure and they got him a consult the next day with his new doctor by putting him in the hospital per the GP and then calling to refer him. My SIL had "elective" surgery on her lung to repair damage that was causing her lung to continually colapse. She waited 4 days in the hospital with a tube in her lung because it was considered elective. I think it is nice that it is free, but having to wait so long for a consult or surgery is ridiculous. I really hope you get to see a doctor soon!

                      Krisi

                      Comment


                      • #12
                        I finally managed to get an appointment with a urologist in Toronto. I gave up on waiting for my current urologist who wasn't "comfortable" with IC and asked my GP to get me a referral. I waited 8 weeks for nothing, because my GP got me an appointment 2 days after I asked him, and it is a miracle in Canada, but my appointment is on July 10th. I couldn't believe it. So, I have a doctor now. Let's hope he can do something for me. I am having quite a bad week for flares. I am so over gritting my teeth and tolerating the pain.
                        CindyLu

                        Current medications:

                        Elmiron 100mg 3x day
                        Vesicare 10mg 1x day
                        Elavil 10mg 1x day
                        Estring

                        Comment


                        • #13
                          I am so glad you got an appointment! I hope the flares go away. I know how much that can just make your days horrible.

                          Comment


                          • #14
                            Hi CindyLu. I am so happy you have found someone that may help you. I live in Maine but my roots run deep in Canada. St. John N.B. and Prince Edward Island. I must say from hearing from my kin folks about their problems with Canada's health care system I think it is less then positive. I Pray to God the US never tries that system. I love Canada and hope no one takes offence. When my Cousin had to go to Boston for his cancer treatments it rather upset me. He waited too long and we lost him anyway. Very sad. I will says Prayers for your well-being. Hugs, Ziggy

                            Comment


                            • #15
                              I love Maine. I grew up in Montreal and we used to spend summers at Higgins Beach near Old Orchard. It is a lovely spot with less traffic than Old Orchard. I was hit by a car there as a kid and spent a summer in traction at the Maine Medical Center in Portland. Not the best summer, but I still love Maine. We travel to Nova Scotia or PEI in the summer now, but I want to go back to Maine soon.
                              CindyLu

                              Current medications:

                              Elmiron 100mg 3x day
                              Vesicare 10mg 1x day
                              Elavil 10mg 1x day
                              Estring

                              Comment

                              Working...
                              X