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  • anyone in halifax area of NS?

    Hi,
    I'm looking for anyone in the Halifax area of Nova Scotia diagonsed with IC that could recommend a uro that is very experienced in this field or just to chat with.
    Thanks

  • #2
    Hi - I am down in Annapolis Valley.. I have a friend in Truro who goes to a Uro. in Halifax. and I will email and see if I can get the name of her uro.. Hopefully she will get back to me with name.
    take care
    God brought me to it, He will bring me through it!!!

    Diagnosed 2003
    by cysto/hydro
    Elmiron took almost a year- made me sick, caused diarrhea
    Pyridium -Made me sick
    Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
    Tried DMSO instill- had 5 out of 6
    Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
    Cysto/hydro April 6th 2011-- on expansion only hold one cup
    IBS/ IC
    High blood pressure meds and Crestor
    Metformin (prediabetic)
    Sinequan (depression)

    Comment


    • #3
      Thanks that may be helpful. I have gone to two uros so far and almost a year later I am still in much discomfort. I don't feel as though they truly understand what I am going thru or even what I am trying to get across to them half the time.

      Comment


      • #4
        yah is sure is frustrating.. sorry my friend has not got back to me.. she could be away.. We have never met and she is an on line friend..
        God brought me to it, He will bring me through it!!!

        Diagnosed 2003
        by cysto/hydro
        Elmiron took almost a year- made me sick, caused diarrhea
        Pyridium -Made me sick
        Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
        Tried DMSO instill- had 5 out of 6
        Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
        Cysto/hydro April 6th 2011-- on expansion only hold one cup
        IBS/ IC
        High blood pressure meds and Crestor
        Metformin (prediabetic)
        Sinequan (depression)

        Comment


        • #5
          Welcome to the new boards, I am here for support and try my best to help answer your questions !
          As I am sure others will help you as well !


          Hi Pam , how are you ?

          Debbie
          Thinking positive has got me through to another day!!

          Comment


          • #6
            Hi Debbie,
            I am doing great.. been seeing a NaturalPath which has made a big difference in how I feel..
            Husband has been having skin problems but he is getting better.. I am trying to get him to see my NaturalPath but he is not convinced yet..
            How are you doing?
            God brought me to it, He will bring me through it!!!

            Diagnosed 2003
            by cysto/hydro
            Elmiron took almost a year- made me sick, caused diarrhea
            Pyridium -Made me sick
            Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
            Tried DMSO instill- had 5 out of 6
            Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
            Cysto/hydro April 6th 2011-- on expansion only hold one cup
            IBS/ IC
            High blood pressure meds and Crestor
            Metformin (prediabetic)
            Sinequan (depression)

            Comment


            • #7
              Hi Pam,

              Oh , I hope that the NaturalPath goes good for you , yes I know a lot that feel the way your husband does as well.

              Thanks for asking Pam , I am doing good thanks, I enjoy every day as is comes , cat scan and clinic visits every six months , hoping soon that I will be done all that stuff to.


              Tender hugs, Debbie
              Thinking positive has got me through to another day!!

              Comment


              • #8
                Hi
                I haven't been on this forum for some time but saw your message today. I am in Halifax, NS and was diagnosed with IC in Nov 08 but as I have been having increased pain over the last few years it is believed I have pudendal neuralgia and/or possible pudendal nerve entrapment. I have pelvic floor dysfunction (hypertonic muscles, super tight) and have been working with a physical therapist and osteopath as well as a pelvic floor therapist and although they have been able to help with some areas of pain, I now have pudendal pain where even sitting is difficult. I see Dr Bailey at the QE11 as my urologist and am seeing him tomorrow morning. He does not know whether I do in fact have IC or if it is a condition resulting from the pudendal nerve issues. I did not improve with any of the IC treatments including Elmiron and bladder installations. Hope this helps.

                Comment


                • #9
                  Hi.
                  How things can change in a year.. just recently finished 5 out of 6 DMSO treatments.. Last Wed. I had a Cysto/Hydro.. this is the second one I have had..this time told me I have a tiny bladder that with distension still only holds 1 cup.. I have been having lower back pain and it feels like it is pulling on bladder.. a feeling of something in vagina.. I am thinking it is PFD but my family Dr. does not suggest it ..He checked things out and did not see anything unusual... He has put me on Estrace ..
                  I see my Uro who did the Cysto/ hydro again in May.. He mentioned Elmiron but that makes me sick..

                  I am feeling better since the latest cysto/hydro but with such a small bladder I don't think I will get much release from frequency.. but I am I keep trying...

                  Have doubled the Sinequan which astleast helps me sleep better and also using Oxytrol patch...not sure if that is doing much or not..

                  Hopefully you are on the right track with the therapy..I wish I was closer to the city.. not even sure they would know how to treat PFD around here lol
                  God brought me to it, He will bring me through it!!!

                  Diagnosed 2003
                  by cysto/hydro
                  Elmiron took almost a year- made me sick, caused diarrhea
                  Pyridium -Made me sick
                  Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
                  Tried DMSO instill- had 5 out of 6
                  Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
                  Cysto/hydro April 6th 2011-- on expansion only hold one cup
                  IBS/ IC
                  High blood pressure meds and Crestor
                  Metformin (prediabetic)
                  Sinequan (depression)

                  Comment


                  • #10
                    Hi! I am from HFX NS. I made my intro post recently here: https://www.ic-network.com/forum/sho...565#post594565

                    The doctor I am seeing has a really difficult to remember name and I saw him a year ago and have been waiting that long for a scope. ugh. I cant really say if he's effective or not because all the good things I've been able to find have been through my own research and advocating to my doctor...
                    ------
                    26 year old in process of being diagnosed with IC, also diagnosed with environmental illness, chronic pain, extreme food sensitivities. read my into here

                    Comment


                    • #11
                      IC on Live at Five

                      I just saw a great article on Live At Five news on IC here in NS.. Finally! - hopefully it helps with awareness.. I get tired of explaining my trips to the bathroom and no one really understands..
                      The young lady's name was Carolyn ---Would like to thank her for doing that..Not sure if she is on this forum..
                      God brought me to it, He will bring me through it!!!

                      Diagnosed 2003
                      by cysto/hydro
                      Elmiron took almost a year- made me sick, caused diarrhea
                      Pyridium -Made me sick
                      Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
                      Tried DMSO instill- had 5 out of 6
                      Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
                      Cysto/hydro April 6th 2011-- on expansion only hold one cup
                      IBS/ IC
                      High blood pressure meds and Crestor
                      Metformin (prediabetic)
                      Sinequan (depression)

                      Comment


                      • #12
                        I'm so glad to hear this. I live in Dartmouth and feel so alone really when it comes to IC. No one seems to truly understand unless they have it themselves and although my family and friends are understanding it is so so difficult. I hope this disease or whatever you want to call it gets some attention and maybe in turn some kind of relief for us. I doubt a cure will come but at least relief if some sort would be enough right now for me. I could feel like the "old" me and do and wear the things I want. Sorry if I sound negative but I'm going on three years now of constant pain and discomft.
                        Thanks for the good news though . . . .things like that give you hope.
                        Stephanie

                        Comment


                        • #13
                          Yes -- I have only met two people who have IC face to face.. one lives in NB and the other lives down in Yarmouth...I have a very understanding Husband .. even my close friends really don't get understand..

                          I had a cysto hydro about a year ago and just before that did 5 out of 6 DMSO treatments..I have been doing quite well this past years.. I still have flares but not constant.. I am not so great sticking to the diet but I know certain things that I can not eat a lot of..

                          Hope you can find something that helps..
                          God brought me to it, He will bring me through it!!!

                          Diagnosed 2003
                          by cysto/hydro
                          Elmiron took almost a year- made me sick, caused diarrhea
                          Pyridium -Made me sick
                          Detrol and Ditropan, Toviaz and Mrrbetriq- caused constipation and head ache.
                          Tried DMSO instill- had 5 out of 6
                          Started Oxytrol Patch-stopped using them after 3 months-- skin was getting irritated
                          Cysto/hydro April 6th 2011-- on expansion only hold one cup
                          IBS/ IC
                          High blood pressure meds and Crestor
                          Metformin (prediabetic)
                          Sinequan (depression)

                          Comment


                          • #14
                            Just wondering if there is anyone out there from Nova Scotia?
                            I noticed this thread has been quiet for awhile.

                            Interested in talking with someone about treatment therapies, specialists etc. I am having a difficult time finding a specialist who understands how painful this disease is and is able to at least discuss pain management/medication etc.
                            ~ Summer ~

                            Medications:
                            Elmiron - 100mg 3x daily (Recently discontinued due to thinning of hair)
                            Ativan - (Anxiety) 1mg at bedtime
                            Motoprolol - (Tachycardia) 25mgs daily
                            Lamictal - (Depression) 250mg daily
                            Vesicare - (Bladder Spasms) 10 mgs when needed
                            Atarax - 25mg 3x daily
                            Nortriptyline 10mg daily


                            Things I'm trying:
                            09/12 - Weekly instills of heparin
                            Hot baths
                            Heat Bags (My best friend)
                            Drinking LOTS of water
                            IC diet
                            De-stressing
                            Prayer

                            Comment


                            • #15
                              Re: anyone in halifax area of NS?

                              I see that this thread is pretty old. Not sure if anyone is out there or if I'm even doing this properly since I've never posted before. I'm in Halifax. I'm 29 and have been struggling with this for a few years. I've been on 5mg of Vesicare for a few years. When I go off it I seem to get worse but I think it causes retention for me. I feel frustrated because my uro has so far only offered me vesicare and elmiron (the elmiron didnt help). I've had bladder instillations as well with no luck. My uro wants me to have a sacral nerve implant but I don't feel like we've tried many options and that seems kind of extreme. I tried to ask questions about other treatments/meds and also about the surgery itself but the uro was very dismissive. The feeling I got was "I'm the expert, trust me and don't ask questions". At one point, I asked him to spell the name of something and he said no (Querticine by the way). My GP is referring me to another uro but no idea if the uro is good with IC. I'm in pain but sometimes I wonder if it's just caused by anxiety. Has anyone in Halifax found a uro who is good with IC?

                              Comment

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