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Elmiron, Newmarket & Kingston

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  • Elmiron, Newmarket & Kingston

    If not being able to afford to take Elmiron because of the cost is a factor, you do have one option available to you if you live in Newmarket or Kingston Ontario.
    Those two locations are still recruiting for a study to test the effectiveness of Elmiron. Downsides: some people get the placebo.

    Here's the link:
    http://www.clinicaltrials.gov/ct2/sh...c+pain&rank=32
    ______
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per
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