Elmiron, Newmarket & Kingston

playethic

ICN Member

Join Date: Feb 2011

Posts: 100
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Elmiron, Newmarket & Kingston

04-28-2011, 09:36 AM

If not being able to afford to take Elmiron because of the cost is a factor, you do have one option available to you if you live in Newmarket or Kingston Ontario.
Those two locations are still recruiting for a study to test the effectiveness of Elmiron. Downsides: some people get the placebo.

Here's the link:

Effectiveness and Safety Study of Pentosan Polysulfate Sodium for the Treatment of Interstitial Cystitis - Full Text View - ClinicalTrials.gov

http://www.clinicaltrials.gov/ct2/show/NCT00399139?term=interstitial+cystitis+OR+painful+bladder+syndrome+OR+pelvic+pain&rank=32

Effectiveness and Safety Study of Pentosan Polysulfate Sodium for the Treatment of Interstitial Cystitis - Full Text View.

______
Severe IC developed fairly quickly, autumn 2010.
So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

- Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
- Methadone 9 ml/day
- Instillations:
- 40ml Kenalog (steroid for inflammation) 2 x per
week, along with rescue cocktail of heparin,
lidocaine, sodium bicarbonate
- 20ml Uracyst, monthly @ $100/per
- Depo lupron injections for endometriosis, monthly @ $88/per
Tags: canada, clinical trials, elmiron, ontario, research

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Elmiron, Newmarket & Kingston