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Toronto region IC clinics?

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  • Toronto region IC clinics?

    There's a possibility I may have to move to Toronto/Oakville and I'm anxious about it as I'm currently on 2-3 days/week hospital IC treatments, and waiting to get into a urologist can take up to a year yet I don't think I can go a week without instills.
    I want to start by finding out which hospitals in Toronto, and in the Hamilton-Toronto corridor, have IC clinics, and what treatments they do out of them. Is anyone here a patient at one of the IC clinics, who can help with this answer?
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per

  • #2
    Hi ,

    I know of a IC clinic in Kingston General Hospital , I don't know of any located in the Toronto area..
    I have a doctor in Toronto , as I had the InterStim Implant done and he is the only one that does this surgery ..
    I hope some girls that are from Toronto and area , can help out in finding a doctor in Toronto.

    All the best, Debbie
    Thinking positive has got me through to another day!!


    • #3
      Urologist in Toronto

      Sadly I do not know the answer... When I find out I will let you know.


      • #4
        Hi! Hope you see this, but more so I hope you found a uro already.
        I'm seeing Dr.Stanley Flax right now and he's open to helping IC any way possible.
        21 years old
        dx: severe OAB, mild/moderate IC, depression, PTSD, agoraphobia, chronic fatigue, IBS, peripheral neuropathy

        ♥ looking for a way or medication to help stop spasms ♥


        • #5
          Thanks for posting this for others to see !

          Thinking positive has got me through to another day!!


          • #6
            Hi Debbie,

            I live in Brampton and have my urologist here. I would like to know myself of any IC clinics in this area. My uro is familiar with IC, but not very passionate about it.
            Have you ever taken Elmiron?


            • #7
              Hi Polygon,
              where is this doctor Flax ? can you give more infornmation please ?