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Desperately seeking a specialist in Toronto!

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  • AlissaV
    replied
    Re: Desperately seeking a specialist in Toronto!

    Yep, sure did! I just responded via private message

    Leave a comment:


  • Jaclyn4
    replied
    Re: Desperately seeking a specialist in Toronto!

    Hi Alissa! I sent you a private message but not sure if it sent correctly. Let me know! thanks

    Leave a comment:


  • AlissaV
    replied
    Re: Desperately seeking a specialist in Toronto!

    Originally posted by Jaclyn4 View Post
    I know this post is a little old, but just wondering if you were able to find a good urologist in Toronto? I have seen 3 over the past 2 years and none wanted to help patients with IC. I'm currently seeing pain management specialist in the Wasser clinic in Toronto, but that is only treating pain, not my IC. Thank you!
    Hi - just joined, but thought you could try Dr. Colleen McDermott at Mt. Sinai. She's been really great for me. She's a uro-gynecologist and I find that's better than trying to find a urologist who's remotely familiar with women's issues. Good luck!

    Leave a comment:


  • Jaclyn4
    replied
    Re: Desperately seeking a specialist in Toronto!

    Originally posted by carolspode View Post
    Thanks everybody for all the response - I will follow up on any "lead" I get
    You really do have to self advocate with this affliction don't you - my family doctor is clueless but helpful but she also suspects me of being a little paranoid and nuts - I really can't go back to her without a plan of my own because she hasn't got one.
    I know this post is a little old, but just wondering if you were able to find a good urologist in Toronto? I have seen 3 over the past 2 years and none wanted to help patients with IC. I'm currently seeing pain management specialist in the Wasser clinic in Toronto, but that is only treating pain, not my IC. Thank you!

    Leave a comment:


  • Iamwlk
    replied
    Re: Desperately seeking a specialist in Toronto!

    Originally posted by carolspode View Post
    Julie B
    Thanks for that - I'll bet out obstacles here in CAnada don't do UTI strips but gonna try anyway
    Dr Nickel ( researcher of the year) completely blew me off when I asked for some names of IC urologists in Toronto / with a one liner "Your Doctor has to refer you"
    duhhhhhhhhhhh
    Worth a try though
    Thx

    I use Dr. Leslie Carr at SunnyBrook hospital - she is also on the IC research team - extremely nice and compassionate - you need a referral and it usually takes 6 months - it's worth it - once your in she follows you every 6 to 8 months 😊

    Leave a comment:


  • carolspode
    replied
    Re: Desperately seeking a specialist in Toronto!

    Anyone using lidecain pessaries (badly surly I'm sure) to numb the pain

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  • carolspode
    replied
    Re: Desperately seeking a specialist in Toronto!

    Julie B
    Thanks for that - I'll bet out obstacles here in CAnada don't do UTI strips but gonna try anyway
    Dr Nickel ( researcher of the year) completely blew me off when I asked for some names of IC urologists in Toronto / with a one liner "Your Doctor has to refer you"
    duhhhhhhhhhhh
    Worth a try though
    Thx

    Leave a comment:


  • Julie B
    replied
    Re: Desperately seeking a specialist in Toronto!

    Hi Carolspode, I wrote about this in my blog a few years ago. http://interstitial-cystitis-diet.bl...-flare-or.html. Mostly look for hot foamy urine, a slight fever, pain when voiding vs pain when the bladder is full. You might even feel nauseous or have flank pain. Did you know you can buy UTI test strips at most pharmacies?

    Leave a comment:


  • carolspode
    replied
    Re: Desperately seeking a specialist in Toronto!

    Does anybody know how to discern whether one has an actual infection amidst a flare up. urine was "dipped" at the beginning and 3 weeks ago. Since then I had a cystoscopy - not the right one to determine IC . She did tell mevthatbi was not voiding each time I hit the loo but I am sooooo very bad last couple of days that wondering if I've gotten an infection due to not voiding properly
    Any tips on how actual infection might feel as opposed to day upon day of IC and muscular pain!?? I can't keep turning up at Drs to have urine tested
    Thx

    Leave a comment:


  • carolspode
    replied
    Re: Desperately seeking a specialist in Toronto!

    Thanks everybody for all the response - I will follow up on any "lead" I get
    You really do have to self advocate with this affliction don't you - my family doctor is clueless but helpful but she also suspects me of being a little paranoid and nuts - I really can't go back to her without a plan of my own because she hasn't got one.

    Leave a comment:


  • Julie B
    replied
    Re: Desperately seeking a specialist in Toronto!

    This guy does a lot of IC research! http://www.chrcrm.org/en/rotm/dr-j-c...ickel-md-frcsc

    PS: I am your neighbor from Michigan!

    Leave a comment:


  • carolspode
    replied
    Re: Desperately seeking a specialist in Toronto!

    Anyone found anyone else here
    Will try dr Lesley Carr though as shrewdly in a 12 month queue fit the Wasser pain clinic?? Not that they are going to treat me for IC just pain management!!!

    Leave a comment:


  • Marcy4
    replied
    Re: Desperately seeking a specialist in Toronto!

    Yes that's it!
    Dr. Lesley Carr - I remember now.
    She may accept patients who are not actively under treatment with a urologist.
    I would still contact the clinic at Sunnybrook.

    Well done CoopLoops!

    Leave a comment:


  • CoopLoops
    replied
    Re: Desperately seeking a specialist in Toronto!

    Hi Marcy,
    I think I know who you're talking about at Sunnybrook. I believe it's Dr. Lesley Carr who's the specialist in IC and I've heard rumours that she's not accepting any new patients or new IC patients. Bummer!

    Leave a comment:


  • Marcy4
    replied
    Re: Desperately seeking a specialist in Toronto!

    Hi fellow Toronto sufferers,


    It is SO critical to have the right urologist.
    My recommendation would be to contact Sunnybrook Hospital urology department.
    There is one urologist in particular, sorry I don't have her name now, who is a well-known expert in I.C.
    Call the hospital and or look it up on line and get the particulars on being "considered" for referral.

    I have an excellent urologist (not in the GTA) but he said she was more qualified to treat me.
    A while back, he presented a referral to her for me, but I was declined. I actually went to the clinic in person to appeal. How desperate is that.

    I don't know the basis on which she accepts new patient referrals but I would definitely try - she is a catch!

    Hope this leads you down the "right path".

    Marcy

    Leave a comment:

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